Charities United Kingdom Youth Development Dravet Syndrome Uk
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Dravet Syndrome Uk

Charity No 1128289 · Charity Commission Sign up to see website
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87
Integrity Assessment
Strong transparency
87/100 · methodology

About Dravet Syndrome Uk

Support for children and adults suffering from Dravet syndrome and their families

Founded
Size
medium

Focus areas & reach

· What they work on and where
Youth Development
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.
SDG 4 SDG 4 · Quality Education Ensure inclusive and equitable quality education and promote lifelong learning opportunities for all. SDG 10 SDG 10 · Reduced Inequalities Reduce inequality within and among countries.

How it stacks up against peers

· vs. 8 similar youth development in United Kingdom
Program spending This charity: 92%
Peer average: 97%
Integrity Assessment This charity: 87
Peer average: 87

Red flags

· All clear
Charity Commission removal
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Where every £1 goes

£0.92
Program expenses£0.92 (£728,852)
92% to programs beats the Charity Navigator "highly efficient" threshold (75%).

Common questions

· Auto-generated from filings + methodology

Dravet Syndrome Uk is a registered youth development nonprofit, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 2009 and has been operating for 17 years. It has a GiveRadar Integrity Assessment of 87/100 (Strong transparency), indicating well-documented governance, financials, and contact details. The organization reports £562K in annual revenue. 5 officers and directors are publicly disclosed. No red flags have been detected.

Dravet Syndrome Uk has a GiveRadar Integrity Assessment of 87/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 87 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 92% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for youth development charities in United Kingdom is 87/100.

Dravet Syndrome Uk is registered in United Kingdom. The organization was established in 2009 and has been active for 17 years.

Based on official tax filings, Dravet Syndrome Uk has £562K in annual revenue. It allocates 92% of expenses to programs and services. This is below the average of 97% for youth development charities in United Kingdom. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Dravet Syndrome Uk is classified as a Youth Development organization, registered in United Kingdom. By size, it is categorized as a medium organization. It has £562K in annual revenue. The organization has 5 disclosed officers and directors.

No red flags have been detected for Dravet Syndrome Uk. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

Dravet Syndrome Uk has a GiveRadar Integrity Assessment of 87/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the Charity Commission. 92% of expenses go to programs. The peer average is 97%. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

Support for children and adults suffering from Dravet syndrome and their families Dravet Syndrome Uk is classified as a youth development organization registered in United Kingdom. The organization was founded in 2009.

Among youth development charities registered in United Kingdom: Dravet Syndrome Uk's GiveRadar Integrity Assessment of 87/100 is in line with the peer average of 87/100. It allocates 92% of expenses to programs, below the peer average of 97%. Its annual revenue of £562K is comparable to the peer average of £376K.

Dravet Syndrome Uk is a registered charity in the United Kingdom. If you are a UK taxpayer, your donation may qualify for Gift Aid, which allows the charity to claim an extra 25p for every 1 pound you donate at no cost to you. Higher-rate and additional-rate taxpayers can also claim additional relief on their Self Assessment tax return.

Verified against 4 official sources, last refreshed .

Annual revenue
£100K-£1M
92% to programs
Source: Charity Commission (UK) (FY2025) why this matters
Unlock exact figures

Filing history

5 years on file from Charity Commission (UK) (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2025, FY2024, FY2023, FY2022, FY2021.
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Taxes

Tax-deductibility for donors

UK donations qualify for Gift Aid. DRAVET SYNDROME UK is registered with the Charity Commission. Eligible UK taxpayers can boost their gift by 25% at no extra cost.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

AL
Alex Williams
Trustee

Officers & trustees (5)

Source: Public filings

AL
Alex W•••••••
Trustee
GA
Galia W••••••••••
Trustee
JO
John D•••• R••• L••••
Trustee
NE
Neil W•••••••••
Trustee
ST
Stephanie S••••
Trustee
Full names, contact details & compensation

Free with an account.

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Latest news

From global news sources

6 articles found

From global news sources

Sentiment

Neutral

Activity timeline

Filings and press mentions, merged

New epilepsy treatment offers hope to children with Dravet syndrome - Learning Disability Today
Mar 2026
www.learningdisabilitytoday.co.uk
Dravet Syndrome UK appoints leading paediatric neurologist as trustee - Charity Today News
Jan 2026
www.charitytoday.co.uk
Form filed
£0.6M revenue
FY2025
CCEW
Form filed
£0.5M revenue
FY2024
CCEW
The Institute partners with Dravet Syndrome UK to invest in future leaders in Dravet and epilepsy research - Epilepsy Re
Jun 2024
epilepsy-institute.org.uk
New research finds half of people living with Dravet Syndrome experience feeding problems - Epilepsy Society
Apr 2024
epilepsysociety.org.uk
Form filed
£0.5M revenue
FY2023
CCEW
Woman raises awareness and funds for Dravet Syndrome families - BBC
Jun 2023
www.bbc.com
Raising awareness of Dravet syndrome – a rare epilepsy - Epilepsy Research Institute
Jun 2023
epilepsy-institute.org.uk
Form filed
£0.3M revenue
FY2022
CCEW
Form filed
£0.3M revenue
FY2021
CCEW

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Peer charities

Other youth development in United Kingdom, by integrity assessment

Charity Score Revenue Program %
Dravet Syndrome Uk This page 87 £561,982 92%
Blackheath Montessori Centre Limited 89 £641,907 100%
Brave Futures 87 £881,344 90%
Ebony Horse Club 87 £582,342 97%
Little Pals Childrens Centre Nursery Ltd 87 £928,516 100%
Blackshaw Nursery 87 £702,606 100%
Heads Up Leicester Limited 87 £594,224 99%
Child Autism Uk 87 £603,137 91%
Home-Start Barnet 87 £647,123 100%

Sources and verification

Refreshed

Registration and legal identity
Charity Commission for England and Wales - Register of Charities
Financial filings
Charity Commission annual returns - Fiscal year 2025 most recent on file.
Officers and trustees
Charity Commission for England and Wales - Register of Charities - 5 disclosed in the public registry.
News and media coverage
GDELT Project + Google News

Data freshness

Last updated
Apr 21, 2026
Profile completeness
85%

What we don't know

Honest gaps - our score reflects transparency, not impact

Executive compensation
Top-officer pay not disclosed
Mission statement
No self-published statement of purpose
Programs & projects
No named programs listed by the charity
Headquarters address
No street address on file
Operating reach
Countries where programs run not specified
Programmatic detail
Specific cause areas not yet tagged

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Dravet Syndrome Uk

What is Dravet Syndrome Uk?
Dravet Syndrome Uk is a youth development nonprofit organization, United Kingdom. Support for children and adults suffering from Dravet syndrome and their families
When was Dravet Syndrome Uk founded?
Dravet Syndrome Uk was founded in 2009.
Where is Dravet Syndrome Uk located?
Headquartered in United Kingdom.
What is Dravet Syndrome Uk's annual budget?
Annual revenue for fiscal year 2025 is approximately £100K-£1M. 92% of expenses go to program services.
Is Dravet Syndrome Uk trustworthy?
Dravet Syndrome Uk has a GiveRadar Integrity Assessment of 87 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Dravet Syndrome Uk's website?
https://www.dravet.org.uk
Are donations to Dravet Syndrome Uk tax-deductible?
Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.