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Make your donationAbout Dravet Syndrome Uk
Support for children and adults suffering from Dravet syndrome and their families
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar youth development in United KingdomRed flags
· All clearWhere every £1 goes
Common questions
· Auto-generated from filings + methodologyDravet Syndrome Uk is a registered youth development nonprofit, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 2009 and has been operating for 17 years. It has a GiveRadar Integrity Assessment of 87/100 (Strong transparency), indicating well-documented governance, financials, and contact details. The organization reports £562K in annual revenue. 5 officers and directors are publicly disclosed. No red flags have been detected.
Dravet Syndrome Uk has a GiveRadar Integrity Assessment of 87/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 87 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 92% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for youth development charities in United Kingdom is 87/100.
Dravet Syndrome Uk is registered in United Kingdom. The organization was established in 2009 and has been active for 17 years.
Based on official tax filings, Dravet Syndrome Uk has £562K in annual revenue. It allocates 92% of expenses to programs and services. This is below the average of 97% for youth development charities in United Kingdom. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Dravet Syndrome Uk is classified as a Youth Development organization, registered in United Kingdom. By size, it is categorized as a medium organization. It has £562K in annual revenue. The organization has 5 disclosed officers and directors.
No red flags have been detected for Dravet Syndrome Uk. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.
Dravet Syndrome Uk has a GiveRadar Integrity Assessment of 87/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the Charity Commission. 92% of expenses go to programs. The peer average is 97%. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.
Support for children and adults suffering from Dravet syndrome and their families Dravet Syndrome Uk is classified as a youth development organization registered in United Kingdom. The organization was founded in 2009.
Among youth development charities registered in United Kingdom: Dravet Syndrome Uk's GiveRadar Integrity Assessment of 87/100 is in line with the peer average of 87/100. It allocates 92% of expenses to programs, below the peer average of 97%. Its annual revenue of £562K is comparable to the peer average of £376K.
Dravet Syndrome Uk is a registered charity in the United Kingdom. If you are a UK taxpayer, your donation may qualify for Gift Aid, which allows the charity to claim an extra 25p for every 1 pound you donate at no cost to you. Higher-rate and additional-rate taxpayers can also claim additional relief on their Self Assessment tax return.
Verified against 4 official sources, last refreshed .
Filing history
5 years on file from Charity Commission (UK) (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
UK donations qualify for Gift Aid. DRAVET SYNDROME UK is registered with the Charity Commission. Eligible UK taxpayers can boost their gift by 25% at no extra cost.
DRAVET SYNDROME UK is in United Kingdom, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
DRAVET SYNDROME UK is registered in United Kingdom. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
Officers & trustees (5)
Source: Public filings
Latest news
From global news sources
6 articles found
From global news sources
Sentiment
NeutralNew epilepsy treatment offers hope to children with Dravet syndrome - Learning Disability Today
Dravet Syndrome UK appoints leading paediatric neurologist as trustee - Charity Today News
The Institute partners with Dravet Syndrome UK to invest in future leaders in Dravet and epilepsy research - Epilepsy Research Institute
New research finds half of people living with Dravet Syndrome experience feeding problems - Epilepsy Society
Woman raises awareness and funds for Dravet Syndrome families - BBC
Raising awareness of Dravet syndrome – a rare epilepsy - Epilepsy Research Institute
Activity timeline
Filings and press mentions, merged
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Other youth development in United Kingdom, by integrity assessment
Sources and verification
Refreshed
- Registration and legal identity
- Charity Commission for England and Wales - Register of Charities
- Financial filings
- Charity Commission annual returns - Fiscal year 2025 most recent on file.
- Officers and trustees
- Charity Commission for England and Wales - Register of Charities - 5 disclosed in the public registry.
- News and media coverage
- GDELT Project + Google News
Data freshness
What we don't know
Honest gaps - our score reflects transparency, not impact
Methodology
GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.
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Quick facts about Dravet Syndrome Uk
- What is Dravet Syndrome Uk?
- Dravet Syndrome Uk is a youth development nonprofit organization, United Kingdom. Support for children and adults suffering from Dravet syndrome and their families
- When was Dravet Syndrome Uk founded?
- Dravet Syndrome Uk was founded in 2009.
- Where is Dravet Syndrome Uk located?
- Headquartered in United Kingdom.
- What is Dravet Syndrome Uk's annual budget?
- Annual revenue for fiscal year 2025 is approximately £100K-£1M. 92% of expenses go to program services.
- Is Dravet Syndrome Uk trustworthy?
- Dravet Syndrome Uk has a GiveRadar Integrity Assessment of 87 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Dravet Syndrome Uk's website?
- https://www.dravet.org.uk
- Are donations to Dravet Syndrome Uk tax-deductible?
- Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.