Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi
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Scientific research into the disease called Congenital Muscular Dystrophy due to collagen deficiency VI (from now on DMC due to collagen deficiency VI), provide information to the sick and their families, as well as the management, promotion and monitoring of research programs of this pathology and its dissemination to society.
La investigación científica de la enfermedad denominada Distrofia Muscular Congénita por déficit de Colágeno VI (a partir de ahora DMC por déficit de colágeno VI), facilitar información a los enfermos y sus familias, así como la gestión, la promoción y el seguimiento de programas de investigación de esta patología y su divulgación a la sociedad.
Translated from Spanish by GiveRadar.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar youth development in SpainRed flags
· All clearCommon questions
· Auto-generated from filings + methodologyNoelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi is a registered youth development nonprofit based in Tarragona, Spain. It is registered with the Registro Nacional de Asociaciones. Its registration number is G55664387. It has a GiveRadar Integrity Assessment of 39/100 (Limited data available). This reflects limited public data, not concerns about the organization.
Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi has a GiveRadar Integrity Assessment of 39/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 39 ('Limited data available') reflects limited public data, not concerns about the organization. This is common for smaller, newer, or non-US charities that file fewer public records. For comparison, the average integrity assessment for youth development charities in Spain is 39/100.
Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi is located in Tarragona, Spain.
Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi is classified as a Youth Development organization, registered in Spain.
Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi has a GiveRadar Integrity Assessment of 39/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Ministry of the Interior. Visit the Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi profile on GiveRadar for full details before deciding. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.
Scientific research into the disease called Congenital Muscular Dystrophy due to collagen deficiency VI (from now on DMC due to collagen deficiency VI), provide information to the sick and their families, as well as the management, promotion and monitoring of research programs of this pathology and its dissemination to society. Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi is classified as a youth development organization registered in Spain.
Among youth development charities registered in Spain: Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi's GiveRadar Integrity Assessment of 39/100 is in line with the peer average of 39/100.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of Spain under local rules. Confirm with the charity directly.
NOELIA, NIÑOS CONTRA LA DISTROFIA MUSCULAR CONGÉNITA POR DÉFICIT DE COLÁGENO VI is in Spain, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
NOELIA, NIÑOS CONTRA LA DISTROFIA MUSCULAR CONGÉNITA POR DÉFICIT DE COLÁGENO VI is registered in Spain. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
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Latest news
From global news sources
5 articles found
From global news sources
Sentiment
NeutralEl movimiento asociativo de enfermedades raras destina más 7 millones de euros a la investigación en los últimos tres años | FEDER - Federación Española de Enfermedades Raras
Fundación FEDER impulsa 7 investigaciones en enfermedades raras gracias a su VIII Convocatoria de Ayudas - Federación Española de Enfermedades Raras
I Encuentro científico y de familias Distrofia Muscular Colágeno VI del 10 al 12 de Junio del 2022 - Federación Española de Enfermedades Raras
«La voz del paciente» de Cinfa: Solidaridad y salud - ABC
Una niña con una enfermedad rara escribe un libro sobre su caso - Antena 3
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Other youth development in Spain, by integrity assessment
Sources and verification
Refreshed
- Registration and legal identity
- Ministerio del Interior - Registro de Asociaciones
- News and media coverage
- GDELT Project + Google News
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Methodology
GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.
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Quick facts about Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi
- What is Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi?
- Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi is a youth development nonprofit organization based in Tarragona, Spain. Scientific research into the disease called Congenital Muscular Dystrophy due to collagen deficiency VI (from now on DMC due to collagen deficiency VI), provide information to the sick and their families, as well as the management, promotion and monitoring of research programs of this pathology and its dissemination to society.
- Where is Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi located?
- Headquartered in Tarragona, Spain.
- Is Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi trustworthy?
- Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi has a GiveRadar Integrity Assessment of 39 out of 100 (Limited data available). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi's registration number?
- Registration: G55664387 (Spain).
- Are donations to Noelia, Niños Contra la Distrofia Muscular Congénita por Déficit de Colágeno Vi tax-deductible?
- Donations may be tax-deductible for residents of Spain under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.