Charities France Science & Technology A.L.I.S (Association du Locked-In Syndrome)
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A.L.I.S (Association du Locked-In Syndrome)

Boulogne-Billancourt, Hauts-de-Seine Reg W923000298 · RNA/JOAFE Sign up to see website
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52
Integrity Assessment
Partial transparency
52/100 · methodology

About A.L.I.S (Association du Locked-In Syndrome)

locked-in is a rare neurology disease leading to complete tetraplegia and mutism but with an intact state of consciousness and intellectual faculties

Founded
Headquarters
Boulogne-Billancourt, Hauts-de-Seine
Foundation type
Recognized of Public Utility (Reconnue d'utilité publique)

Focus areas & reach

· What they work on and where
Science & Technology

How it stacks up against peers

· vs. 8 similar science & technology in France
Integrity Assessment This charity: 52
Peer average: 52

Red flags

· All clear
Préfecture deregistration
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Common questions

· Auto-generated from filings + methodology

A.L.I.S (Association du Locked-In Syndrome) is a registered science & technology nonprofit based in Boulogne-Billancourt, Hauts-de-Seine, France. It is registered with the Repertoire National des Associations (RNA). It was founded in 1997 and has been operating for 29 years. Its registration number is W923000298. It has a GiveRadar Integrity Assessment of 52/100 (Partial transparency), indicating some public data is available but key signals are missing.

A.L.I.S (Association du Locked-In Syndrome) has a GiveRadar Integrity Assessment of 52/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 52 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for science & technology charities in France is 52/100.

A.L.I.S (Association du Locked-In Syndrome) is located in Boulogne-Billancourt, Hauts-de-Seine, France. The organization was established in 1997 and has been active for 29 years. Its registered address is 241 BD jean jaures, 92100, France.

A.L.I.S (Association du Locked-In Syndrome) is classified as a Science & Technology organization, registered in France. It operates as a Reconnue d'utilité publique.

A.L.I.S (Association du Locked-In Syndrome) has a GiveRadar Integrity Assessment of 52/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Prefecture. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

locked-in is a rare neurology disease leading to complete tetraplegia and mutism but with an intact state of consciousness and intellectual faculties A.L.I.S (Association du Locked-In Syndrome) is classified as a science & technology organization registered in France. The organization was founded in 1997.

Among science & technology charities registered in France: A.L.I.S (Association du Locked-In Syndrome)'s GiveRadar Integrity Assessment of 52/100 is in line with the peer average of 52/100.

A.L.I.S (Association du Locked-In Syndrome) is a registered association in France. Donations to qualifying French nonprofits are eligible for a tax reduction of 66% of the donated amount, up to 20% of your taxable income. Donations to organizations providing aid to people in need qualify for a 75% reduction up to a set ceiling.

Verified against 2 official sources, last refreshed .

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Taxes

Tax-deductibility for donors

French donations to associations d'intérêt général or associations reconnues d'utilité publique are deductible (66% crédit d'impôt for individuals up to a cap).

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Still gathering leadership data

We check government filings and charity disclosures quarterly. If you represent this charity, claim this page to add officers directly.

Latest news

From global news sources

2 articles found

From global news sources

Sentiment

Neutral

Activity timeline

Filings and press mentions, merged

Prisonnier de son corps, David Corbet souhaite retrouver un peu de liberté - Ouest-France
Jul 2023
www.ouest-france.fr
Anne Paillat, tétraplégique, livre son quotidien... - Ouest-France
Jun 2017
www.ouest-france.fr

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Sources and verification

Refreshed

Registration and legal identity
Journal Officiel des Associations (JOAFE)
News and media coverage
GDELT Project + Google News

Data freshness

Last updated
Apr 21, 2026
Profile completeness
45%

What we don't know

Honest gaps - our score reflects transparency, not impact

Financial filings
No Comptes annuels (Journal Officiel) on file
Executive compensation
Top-officer pay not disclosed
Named leadership
Board and officer list not yet indexed
Mission statement
No self-published statement of purpose
Programs & projects
No named programs listed by the charity
Tax-deductibility status
Whether donations are tax-deductible has not been verified

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about A.L.I.S (Association du Locked-In Syndrome)

What is A.L.I.S (Association du Locked-In Syndrome)?
A.L.I.S (Association du Locked-In Syndrome) is a science & technology recognized of public utility based in Boulogne-Billancourt, France. locked-in is a rare neurology disease leading to complete tetraplegia and mutism but with an intact state of consciousness and intellectual faculties
When was A.L.I.S (Association du Locked-In Syndrome) founded?
A.L.I.S (Association du Locked-In Syndrome) was founded in 1997.
Where is A.L.I.S (Association du Locked-In Syndrome) located?
Headquartered in Boulogne-Billancourt, France.
Is A.L.I.S (Association du Locked-In Syndrome) trustworthy?
A.L.I.S (Association du Locked-In Syndrome) has a GiveRadar Integrity Assessment of 52 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is A.L.I.S (Association du Locked-In Syndrome)'s registration number?
Registration: W923000298 (France).
What is A.L.I.S (Association du Locked-In Syndrome)'s website?
http://alis-asso.fr
Are donations to A.L.I.S (Association du Locked-In Syndrome) tax-deductible?
Donations may be tax-deductible for residents of France under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.