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Make your donationAbout Alliance syndrome de Dravet
to disseminate and develop information about Dravet's syndrome or called E.M.S.N. "Epilepsie Myoclonique Sévère du Nourrisson"; to offer support and assistance to families affected by this disease; to contribute to the progress of research to promote better care
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· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in FranceRed flags
· All clearCommon questions
· Auto-generated from filings + methodologyAlliance syndrome de Dravet is a registered health nonprofit based in Léognan, Gironde, France. It is registered with the Repertoire National des Associations (RNA). It was founded in 2009 and has been operating for 17 years. Its registration number is W291004034. It has a GiveRadar Integrity Assessment of 52/100 (Partial transparency), indicating some public data is available but key signals are missing.
Alliance syndrome de Dravet has a GiveRadar Integrity Assessment of 52/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 52 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in France is 52/100.
Alliance syndrome de Dravet is located in Léognan, Gironde, France. The organization was established in 2009 and has been active for 17 years. Its registered address is 29 Bis CHEM1 de Lamarque, 33850, France.
Alliance syndrome de Dravet is classified as a Health organization, registered in France. It operates as a Déclaration simple.
Alliance syndrome de Dravet has a GiveRadar Integrity Assessment of 52/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Prefecture. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.
to disseminate and develop information about Dravet's syndrome or called E.M.S.N. "Epilepsie Myoclonique Sévère du Nourrisson"; to offer support and assistance to families affected by this disease; to contribute to the progress of research to promote better care Alliance syndrome de Dravet is classified as a health organization registered in France. The organization was founded in 2009.
Among health charities registered in France: Alliance syndrome de Dravet's GiveRadar Integrity Assessment of 52/100 is in line with the peer average of 52/100.
Alliance syndrome de Dravet is a registered association in France. Donations to qualifying French nonprofits are eligible for a tax reduction of 66% of the donated amount, up to 20% of your taxable income. Donations to organizations providing aid to people in need qualify for a 75% reduction up to a set ceiling.
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Tax-deductibility for donors
French donations to associations d'intérêt général or associations reconnues d'utilité publique are deductible (66% crédit d'impôt for individuals up to a cap).
Alliance syndrome de Dravet is in France, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
Alliance syndrome de Dravet is registered in France. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
We check government filings and charity disclosures quarterly. If you represent this charity, claim this page to add officers directly.
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Other health in France, by integrity assessment
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Refreshed
- Registration and legal identity
- Journal Officiel des Associations (JOAFE)
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Honest gaps - our score reflects transparency, not impact
Methodology
GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.
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Quick facts about Alliance syndrome de Dravet
- What is Alliance syndrome de Dravet?
- Alliance syndrome de Dravet is a health registered association based in Léognan, France. to disseminate and develop information about Dravet's syndrome or called E.M.S.N. "Epilepsie Myoclonique Sévère du Nourrisson"; to offer support and assistance to families affected by this disease; to contribute to the progress of research to promote better care
- When was Alliance syndrome de Dravet founded?
- Alliance syndrome de Dravet was founded in 2009.
- Where is Alliance syndrome de Dravet located?
- Headquartered in Léognan, France.
- Is Alliance syndrome de Dravet trustworthy?
- Alliance syndrome de Dravet has a GiveRadar Integrity Assessment of 52 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Alliance syndrome de Dravet's registration number?
- Registration: W291004034 (France).
- What is Alliance syndrome de Dravet's website?
- http://www.dravet.fr
- Are donations to Alliance syndrome de Dravet tax-deductible?
- Donations may be tax-deductible for residents of France under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.