Als Worldwide
ALS Worldwide brings guidance, compassion and hope to thousands of ALS patients and their families in more than 150 countries. ALS Worldwide fills a unique niche of free …
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100 Skype individual visits 24 Newsletters with current info 24/7 access for patients via phone and email
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
ALS Worldwide brings guidance, compassion and hope to thousands of ALS patients and their families in more than 150 countries. ALS Worldwide fills a unique niche of free counseling and information for people living with ALS/MND via videoconference, email, phone and online resources, including videos and website. ALS Worldwide helps people understand and cope with an ALS/MND diagnosis, explains treatment options to better manage symptoms and provides emotional support and guidance on a wide range of topics to improve quality of life.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesConcerns
· None foundWhere every $1 goes
· FY2022 · IRS 990 (FY2023)GiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
Based on the records currently verified by GiveRadar, Als Worldwide has a complete profile, cross-referenced across 4 independent sources including the IRS.
- GiveRadar has cross-referenced this organization across 4 independent sources, led by the IRS - more than 82% of comparable organizations. See the sources
- It has more complete contact information than nearly all comparable organizations, with a verified website, email, phone and address on record. See national comparisons
- GiveRadar's profile for Als Worldwide draws on its financial disclosures and its registration, in line with the typical health charities in the United States it tracks. View this cohort
- government registration
- financial records (4 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyAls Worldwide is a registered health nonprofit based in Milwaukee, WI, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2008 and has been operating for 18 years. Its EIN is 263632267. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 71/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $66K in annual revenue. 24 officers and directors are publicly disclosed. No red flags have been detected.
Als Worldwide's EIN (Employer Identification Number) is 263632267. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
Als Worldwide has a GiveRadar Integrity Assessment of 71/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 71 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.
Als Worldwide is located in Milwaukee, WI, United States. The organization was established in 2008 and has been active for 18 years.
Based on official tax filings, Als Worldwide has $66K in annual revenue. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Als Worldwide is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $66K in annual revenue. The organization has 24 disclosed officers and directors.
No red flags have been detected for Als Worldwide. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.
According to GiveRadar's records, Als Worldwide holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
100 Skype individual visits 24 Newsletters with current info 24/7 access for patients via phone and email Als Worldwide is classified as a health organization registered in United States. The organization was founded in 2008.
Among health charities registered in United States: Its annual revenue of $66K is below the peer average of $41M.
Yes, donations to Als Worldwide are generally tax-deductible in the United States. Als Worldwide is a 501(c)(3) tax-exempt organization. Its EIN is 263632267, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Filing history
4 years on file from IRS 990 (FY2023): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
ALS WORLDWIDE is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Staff & volunteers
From filings and published profiles
Leadership
From FY2023 filing
Officers & trustees (7)
Source: Public filings
7 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
9 articles found
From news sources and the organization. Shown for transparency; news never affects the integrity score.
ALS Worldwide looks to next chapter in Africa - Heavy Lift & Project Forwarding International
Target ALS Research Cores: Empowering Global ALS Discovery - Target ALS
ALS gene therapy prepares to move to clinical trials in China, US - ALS News Today
Hope Through Caring Gala Draws $620,000 for ALS Research and Care: Development & Alumni Relations - Northwestern Feinberg School of Medicine
Classmates Generate Support for ALS Research - Northwestern Magazine
Les Turner ALS Foundation Raises $700,000 for ALS Care and Research at Annual Gala - Northwestern Feinberg School of Medicine
Epidemiology of ALS: Incidence, Prevalence, and Suspected Clusters - Target ALS
ALS patient who made 'ice bucket challenge' a hit remembered as hero in death - 11Alive.com
Thousands to Give Unique Birthday Gift to Rabbi With ALS - Chabad.org
Activity timeline
Filings and press mentions, merged
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Sign up to write a reviewCause areas in United States
How many charities work in each area, with this charity's area highlighted.
Most common causes in United States
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2023 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 24 disclosed in the public registry.
- News and media coverage
- GDELT Project + Google News
- Supplementary verification
- Charity Navigator
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · FY2023 on record
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Named leadership · 24 officers on file
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Tax-deductibility · Verified
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Founding date · 2008
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Executive payTop-officer pay not disclosed
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Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Als Worldwide
- What is Als Worldwide?
- Als Worldwide is a health publicly-supported charity (509(a)(2)) based in Milwaukee, United States. 100 Skype individual visits 24 Newsletters with current info 24/7 access for patients via phone and email
- When was Als Worldwide founded?
- Als Worldwide was founded in 2008.
- Who leads Als Worldwide?
- Barbara L Byer serves as Executive Director.
- Where is Als Worldwide located?
- Headquartered in Milwaukee, WI, United States.
- What is Als Worldwide's annual budget?
- Annual revenue for fiscal year 2023 is approximately $10K-$100K.
- Is Als Worldwide trustworthy?
- Als Worldwide has a GiveRadar Integrity Assessment of 71 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Als Worldwide's registration number?
- IRS EIN: 263632267.
- What is Als Worldwide's website?
- http://alsworldwide.org