Charities Spain Health Associació d'Afectats de Siringomièlia
AS

Associació d'Afectats de Siringomièlia

Article 2. Els fins de l'associació són: • Donar suport als afectats de siringomièlia i als seus familiars. • Aconseguir una millor qualitat biopsicosocial dels afectats. • Promocionar …

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49
Integrity Assessment
Partial transparency
49/100 · methodology

About Associació d'Afectats de Siringomièlia

Article 2. The purposes of the association are: • To support the affected persons of the siringomyelia and their relatives. • To achieve a better biopsychosocial quality of the affected persons. • To promote the need for a correct diagnosis of the affected persons. • To raise awareness of the public and private opinion about the disease. • To work for a correct assessment of the degree of disability of the affected persons. • To achieve its aims, the association carries out the following activities: • To disseminate and promote knowledge of the disease at the social and doctient level. • To inform, guide and assist the affected persons of the siringomyelia and family and/or attachments. • To promote research …

Article 2. Els fins de l'associació són: • Donar suport als afectats de siringomièlia i als seus familiars. • Aconseguir una millor qualitat biopsicosocial dels afectats. • Promocionar la necessitat d'un diagnòstic correcte dels afectats. • Sensibilitzar l'opinió pública i privada envers la malaltia. • Treballar per una correcta valoració del grau de discapacitat dels afectats. Per aconseguir les seves finalitats, l'associació realitza les activitats següents: • Divulgar i fomentar el coneixement de la malaltia a nivell social i docent. • Informar, orientar i assessorar al afectats de siringomièlia i llurs familiars i/o allegats. • Fomentar la investigació i divulgació de tècniques o tractaments, d'aquesta malaltia. • Col·laborar amb entitats, organismes públics i privats amb finalitats semblants. • Qualsevol altra …

Translated from Spanish by GiveRadar.

Founded
Headquarters
Barcelona
Foundation type
Salut

Mission

Article 2. Els fins de l'associació són: • Donar suport als afectats de siringomièlia i als seus familiars. • Aconseguir una millor qualitat biopsicosocial dels afectats. • Promocionar la necessitat d'un diagnòstic correcte dels afectats. • Sensibilitzar l'opinió pública i privada envers la malaltia. • Treballar per una correcta valoració del grau de discapacitat dels afectats. Per aconseguir les seves finalitats, l'associació realitza les activitats següents: • Divulgar i fomentar el coneixement de la malaltia a nivell social i docent. • Informar, orientar i assessorar al afectats de siringomièlia i llurs familiars i/o allegats. • Fomentar la investigació i divulgació de tècniques o tractaments, d'aquesta malaltia. • Col·laborar amb entitats, organismes públics i privats amb finalitats semblants. • Qualsevol altra activitat no contemplada en els presents estatuts i que afavoreixi la promoció, divulgació, defensa, integració social de les persones afectades de siringomièlia. En queda exclòs tot ànim de lucre.

Focus areas & reach

· What they work on and where
❤️ Health

How it stacks up against peers

· vs. 8 similar health in Spain
Integrity Assessment This charity: 49
Peer average: 58

Red flags

· All clear
Regional register suspension
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Common questions

· Auto-generated from filings + methodology

Associació d'Afectats de Siringomièlia is a registered health nonprofit based in Barcelona, Spain. It is registered with the Registro Nacional de Asociaciones. It was founded in 2000 and has been operating for 26 years. Its registration number is G62513585. It has a GiveRadar Integrity Assessment of 49/100 (Partial transparency), indicating some public data is available but key signals are missing.

Associació d'Afectats de Siringomièlia has a GiveRadar Integrity Assessment of 49/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 49 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in Spain is 58/100.

Associació d'Afectats de Siringomièlia is located in Barcelona, Spain. The organization was established in 2000 and has been active for 26 years. Its registered address is Travessera de Gràcia, 272, 3r, 2a, 08025, Spain.

Associació d'Afectats de Siringomièlia is classified as a Health organization, registered in Spain. It operates as a Salut.

Associació d'Afectats de Siringomièlia has a GiveRadar Integrity Assessment of 49/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Ministry of the Interior. Visit the Associació d'Afectats de Siringomièlia profile on GiveRadar for full details before deciding. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

Article 2. The purposes of the association are: • To support the affected persons of the siringomyelia and their relatives. • To achieve a better biopsychosocial quality of the affected persons. • To promote the need for a correct diagnosis of the affected persons. • To raise awareness of the public and private opinion about the disease. • To work for a correct assessment of the degree of disability of the affected persons. • To achieve its aims, the association carries out the following activities: • To disseminate and promote knowledge of the disease at the social and doctient level. • To inform, guide and assist the affected persons of... Associació d'Afectats de Siringomièlia is classified as a health organization registered in Spain. The organization was founded in 2000.

Among health charities registered in Spain: Associació d'Afectats de Siringomièlia's GiveRadar Integrity Assessment of 49/100 is in line with the peer average of 58/100.

Verified against 2 official sources, last refreshed .

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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of Spain under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Still gathering leadership data

We check government filings and charity disclosures quarterly. If you represent this charity, claim this page to add officers directly.

Latest news

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Sources and verification

Refreshed

Registration and legal identity
Ministerio del Interior - Registro de Asociaciones
News and media coverage
GDELT Project + Google News

Data freshness

Last updated
Apr 21, 2026
Profile completeness
35%

What we don't know

Honest gaps - our score reflects transparency, not impact

Financial filings
No annual financial filings on file
Executive compensation
Top-officer pay not disclosed
Named leadership
Board and officer list not yet indexed
Programs & projects
No named programs listed by the charity
Tax-deductibility status
Whether donations are tax-deductible has not been verified
Operating reach
Countries where programs run not specified

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Associació d'Afectats de Siringomièlia

What is Associació d'Afectats de Siringomièlia?
Associació d'Afectats de Siringomièlia is a health salut based in Barcelona, Spain. Article 2. The purposes of the association are: • To support the affected persons of the siringomyelia and their relatives. • To achieve a better biopsychosocial quality of the affected persons. • To promote the need for a correct diagnosis of the affected persons. • To raise awareness of the public and private opinion about the disease. • To work for a correct assessment of the degree of disability of the affected persons. • To achieve its aims, the association carries out the following activities: • To disseminate and promote knowledge of the disease at the social and doctient level. • To inform, guide and assist the affected persons of the siringomyelia and family and/or attachments. • To promote research and dissemination of techniques or treatments, of this disease. • To inform, guide and assist the affected persons of the family and/or attachments. • To promote the investigation and dissemination of the disease at the social and doctient level. • To collaborate with and assist the affected persons of the family and/or attachments. • To promote the dissemination of information and/or treatment of the disease. • To assist the affected persons of the activities of the public,
When was Associació d'Afectats de Siringomièlia founded?
Associació d'Afectats de Siringomièlia was founded in 2000.
Where is Associació d'Afectats de Siringomièlia located?
Headquartered in Barcelona, Spain.
Is Associació d'Afectats de Siringomièlia trustworthy?
Associació d'Afectats de Siringomièlia has a GiveRadar Integrity Assessment of 49 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Associació d'Afectats de Siringomièlia's registration number?
Registration: G62513585 (Spain).
What is Associació d'Afectats de Siringomièlia's website?
https://www.siringomielia.org
Are donations to Associació d'Afectats de Siringomièlia tax-deductible?
Donations may be tax-deductible for residents of Spain under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.