Associació d'Afectats de Siringomièlia
Article 2. The purposes of the association are: • To support the affected persons of the siringomyelia and their relatives. • To achieve a better biopsychosocial quality of …
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Visit www.siringomielia.orgAbout Associació d'Afectats de Siringomièlia
Article 2. The purposes of the association are: • To support the affected persons of the siringomyelia and their relatives. • To achieve a better biopsychosocial quality of the affected persons. • To promote the need for a correct diagnosis of the affected persons. • To raise awareness of the public and private opinion about the disease. • To work for a correct assessment of the degree of disability of the affected persons. • To achieve its aims, the association carries out the following activities: • To disseminate and promote knowledge of the disease at the social and doctient level. • To inform, guide and assist the affected persons of the siringomyelia and family and/or attachments. • To promote research …
Article 2. Els fins de l'associació són: • Donar suport als afectats de siringomièlia i als seus familiars. • Aconseguir una millor qualitat biopsicosocial dels afectats. • Promocionar la necessitat d'un diagnòstic correcte dels afectats. • Sensibilitzar l'opinió pública i privada envers la malaltia. • Treballar per una correcta valoració del grau de discapacitat dels afectats. Per aconseguir les seves finalitats, l'associació realitza les activitats següents: • Divulgar i fomentar el coneixement de la malaltia a nivell social i docent. • Informar, orientar i assessorar al afectats de siringomièlia i llurs familiars i/o allegats. • Fomentar la investigació i divulgació de tècniques o tractaments, d'aquesta malaltia. • Col·laborar amb entitats, organismes públics i privats amb finalitats semblants. • Qualsevol altra …
Translated from Spanish by GiveRadar.
Mission
Article 2. The purposes of the association are: • To support the affected persons of the siringomyelia and their relatives. • To achieve a better biopsychosocial quality of the affected persons. • To promote the need for a correct diagnosis of the affected persons. • To raise awareness of the public and private opinion about the disease. • To work for a correct assessment of the degree of disability of the affected persons. • To achieve its aims, the association carries out the following activities: • To disseminate and promote knowledge of the disease at the social and doctient level. • To inform, guide and assist the affected persons of the siringomyelia and family and/or attachments. • To promote research and dissemination of techniques or treatments, of this disease. • To inform, guide and assist the affected persons of the family and/or attachments. • To promote the investigation and dissemination of the disease at the social and doctient level. • To collaborate with and assist the affected persons of the family and/or attachments. • To promote the dissemination of information and/or treatment of the disease. • To assist the affected persons of the activities of the public,
Article 2. Els fins de l'associació són: • Donar suport als afectats de siringomièlia i als seus familiars. • Aconseguir una millor qualitat biopsicosocial dels afectats. • Promocionar la necessitat d'un diagnòstic correcte dels afectats. • Sensibilitzar l'opinió pública i privada envers la malaltia. • Treballar per una correcta valoració del grau de discapacitat dels afectats. Per aconseguir les seves finalitats, l'associació realitza les activitats següents: • Divulgar i fomentar el coneixement de la malaltia a nivell social i docent. • Informar, orientar i assessorar al afectats de siringomièlia i llurs familiars i/o allegats. • Fomentar la investigació i divulgació de tècniques o tractaments, d'aquesta malaltia. • Col·laborar amb entitats, organismes públics i privats amb finalitats semblants. • Qualsevol altra activitat no contemplada en els presents estatuts i que afavoreixi la promoció, divulgació, defensa, integració social de les persones afectades de siringomièlia. En queda exclòs tot ànim de lucre.
Translated from Spanish by GiveRadar.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in SpainConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
From what GiveRadar has verified so far, Associació d'Afectats de Siringomièlia has a substantially complete profile.
- It has more complete contact information than 92% of comparable organizations, with a verified website, phone and address on record. See national comparisons
- GiveRadar has not yet verified financial records for this organization, nor for any health charities in Spain - a gap in GiveRadar's dataset for the region, not a feature of this charity. Explore Spain data
- It is one of the better-documented health charities in Spain GiveRadar currently tracks, because GiveRadar has verified its registration and its contact details. View this cohort
- government registration
- a website
- financial records
- leadership details
- a contact email
- a donation page
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyAssociació d'Afectats de Siringomièlia is a registered health nonprofit based in Barcelona, Spain. It is registered with the Registro Nacional de Asociaciones. It was founded in 2000 and has been operating for 26 years. Its registration number is G62513585. GiveRadar's Integrity Assessment for the organization is 49/100, which reflects how much public information is available, not whether the charity is legitimate.
Associació d'Afectats de Siringomièlia's official registration number is G62513585, as recorded in the national registry of Spain.
Associació d'Afectats de Siringomièlia has a GiveRadar Integrity Assessment of 49/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 49 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in Spain is 58/100.
Associació d'Afectats de Siringomièlia is located in Barcelona, Spain. The organization was established in 2000 and has been active for 26 years. Its registered address is Travessera de Gràcia, 272, 3r, 2a, 08025, Spain.
Associació d'Afectats de Siringomièlia is classified as a Health organization, registered in Spain. It operates as an Asociación.
According to GiveRadar's records, Associació d'Afectats de Siringomièlia is registered with the Registro Nacional de Asociaciones and overseen by the Ministry of the Interior. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
Article 2. The purposes of the association are: • To support the affected persons of the siringomyelia and their relatives. • To achieve a better biopsychosocial quality of the affected persons. • To promote the need for a correct diagnosis of the affected persons. • To raise awareness of the public and private opinion about the disease. • To work for a correct assessment of the degree of disability of the affected persons. • To achieve its aims, the association carries out the following activities: • To disseminate and promote knowledge of the disease at the social and doctient level. • To inform, guide and assist the affected persons of... Associació d'Afectats de Siringomièlia is classified as a health organization registered in Spain. The organization was founded in 2000.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of Spain under local rules. Confirm with the charity directly.
Associació d'Afectats de Siringomièlia is in Spain, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
Associació d'Afectats de Siringomièlia is registered in Spain. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
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How many charities work in each area, with this charity's area highlighted.
Most common causes in Spain
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Ministerio del Interior - Registro de Asociaciones
- News and media coverage
- GDELT Project + Google News
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Founding date · 2000
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Financial dataNo annual financial filings on file
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Named leadershipBoard and officer list not yet indexed
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Executive payTop-officer pay not disclosed
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Programs & activitiesNo named programs listed by the charity
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Tax-deductibilityNot verified
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Associació d'Afectats de Siringomièlia
- What is Associació d'Afectats de Siringomièlia?
- Associació d'Afectats de Siringomièlia is a health association based in Barcelona, Spain. Article 2. The purposes of the association are: • To support the affected persons of the siringomyelia and their relatives. • To achieve a better biopsychosocial quality of the affected persons. • To promote the need for a correct diagnosis of the affected persons. • To raise awareness of the public and private opinion about the disease. • To work for a correct assessment of the degree of disability of the affected persons. • To achieve its aims, the association carries out the following activities: • To disseminate and promote knowledge of the disease at the social and doctient level. • To inform, guide and assist the affected persons of the siringomyelia and family and/or attachments. • To promote research and dissemination of techniques or treatments, of this disease. • To inform, guide and assist the affected persons of the family and/or attachments. • To promote the investigation and dissemination of the disease at the social and doctient level. • To collaborate with and assist the affected persons of the family and/or attachments. • To promote the dissemination of information and/or treatment of the disease. • To assist the affected persons of the activities of the public,
- When was Associació d'Afectats de Siringomièlia founded?
- Associació d'Afectats de Siringomièlia was founded in 2000.
- Where is Associació d'Afectats de Siringomièlia located?
- Headquartered in Barcelona, Spain.
- Is Associació d'Afectats de Siringomièlia trustworthy?
- Associació d'Afectats de Siringomièlia has a GiveRadar Integrity Assessment of 49 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Associació d'Afectats de Siringomièlia's registration number?
- Registration: G62513585 (Spain).
- What is Associació d'Afectats de Siringomièlia's website?
- https://www.siringomielia.org
- Are donations to Associació d'Afectats de Siringomièlia tax-deductible?
- Donations may be tax-deductible for residents of Spain under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.