Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France)
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The purpose of this association is to undertake useful actions with the agencies of the state in order to demand the recognition of the cysts of Tarlov and related; this association was established on 22 June 2017 at 18:00 on the initiative of two patients with Tarlov cyst; to break the isolation of the patients and their families; to bring together all persons likely to support the association; to seek as many patients as possible with Kyste of Tarlov and Kyste Arachnoidians; to form an active group of patients; to have the disease recognized as an orphan disease; to build a database and to synthesize and sort out existing publications; to all questionnaires on the cysts of Tarlov and Kyste …
cette association a pour objet d'entreprendre des actions utiles auprès des organismes de l'état afin de demander la reconnaissance des kystes de Tarlov et apparentées ; cette association a été créée le 22 juin 2017 à 18h00 à l'initiative de deux patients atteints de kyste de Tarlov ; rompre l'isolement des patients et de leur famille ; regrouper toutes personnes susceptibles de soutenir l'association ; rechercher le plus possible de patients atteints de Kyste de Tarlov et de Kyste Arachnoïdiens ; constituer un groupe actif de malades ; faire reconnaître la maladie comme maladie orpheline ; construire une base de données ainsi que de synthétiser les publications existantes et les trier ; tous questionnaires sur les kystes de Tarlov et …
Translated from French by GiveRadar.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in FranceConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
GiveRadar's verified records show Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) with a partial profile.
- GiveRadar has not yet verified financial records for this organization, nor for only 2% of health charities in France - a gap in GiveRadar's dataset for the region, not a feature of this charity. Explore France data
- Its integrity score of 44 is below most of the 132,826 health charities in France GiveRadar tracks. GiveRadar bases this on limited verified information so far, with little on record for its financial disclosures and its contact details. Explore France data
- government registration
- financial records
- leadership details
- a website
- a contact email
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyAssociation Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is a registered health nonprofit based in Saint-Lon-les-Mines, Landes, France. It is registered with the Repertoire National des Associations (RNA). It was founded in 2017 and has been operating for 9 years. Its registration number is W401006087. GiveRadar's Integrity Assessment for the organization is 44/100, which reflects how much public information is available, not whether the charity is legitimate.
Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France)'s official registration number is W401006087, as recorded in the national registry of France.
Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) has a GiveRadar Integrity Assessment of 44/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 44 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in France is 52/100.
Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is located in Saint-Lon-les-Mines, Landes, France. The organization was established in 2017 and has been active for 9 years. Its registered address is 4 RUE DU BARRAT, 40300, France.
Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is classified as a Health organization, registered in France. It operates as an Association déclarée.
According to GiveRadar's records, Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is registered with the Repertoire National des Associations (RNA) and overseen by the Prefecture. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
The purpose of this association is to undertake useful actions with the agencies of the state in order to demand the recognition of the cysts of Tarlov and related; this association was established on 22 June 2017 at 18:00 on the initiative of two patients with Tarlov cyst; to break the isolation of the patients and their families; to bring together all persons likely to support the association; to seek as many patients as possible with Kyste of Tarlov and Kyste Arachnoidians; to form an active group of patients; to have the disease recognized as an orphan disease; to build a database and to synthesize and sort out existing publications... Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is classified as a health organization registered in France. The organization was founded in 2017.
Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is a registered association in France. Donations to qualifying French nonprofits are eligible for a tax reduction of 66% of the donated amount, up to 20% of your taxable income. Donations to organizations providing aid to people in need qualify for a 75% reduction up to a set ceiling.
Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is a French declared association (association declaree) governed by the Loi du 1er juillet 1901. It is registered with the prefecture and published in the Journal Officiel des Associations (JOAFE). It is registered in the Repertoire National des Associations (RNA), maintained by the French Ministry of the Interior, under RNA number W401006087.
You can verify Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France)'s legal status in several ways. First, look up the RNA record directly on the JOAFE (Journal Officiel des Associations et Fondations d'Entreprise) at https://www.journal-officiel.gouv.fr/pages/associations-search-associations using RNA number W401006087. The result shows the official name, registered purpose, registered address, and date of creation. Second, check the Data Associations portal maintained by the DJEPVA (Direction de la Jeunesse, de l'Education Populaire et de la Vie Associative) at https://www.data-asso.fr/ - this aggregates RNA data with financial information (comptes annuels), public subsidies received, and employment data. Third, ask the organisation for its statuts (bylaws), its most recent rapport d'activite (annual report), and its comptes annuels (annual accounts). Legitimate French charities, especially those receiving public subsidies or donations exceeding 153,000 EUR per year, are required to publish these. If the RNA record exists, the purpose matches, and financial reports are available, the organisation is legitimate.
Contact Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) directly for current donation methods. French charities typically accept bank transfers (virement bancaire via IBAN), cheques, online card payments, and recurring direct debits (prelevement automatique). Many use platforms like HelloAsso (France's leading free fundraising platform for associations), Hellodon, or their own website. For tax-deductible giving: donations to associations d'interet general and organismes d'utilite publique are eligible for a 66% income-tax reduction (reduction d'impot) up to 20% of taxable income, or 75% for organisations providing meals, shelter, or healthcare to the needy (up to 1,000 EUR per year, then 66% above that). The charity must issue a recu fiscal (tax receipt) for the donation to be deductible. Corporate donors (mecenat d'entreprise) can deduct 60% of donations up to 0.5% of turnover.
Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is based in Saint-Lon-les-Mines, Landes. France is divided into 101 departements across 18 regions (13 in metropolitan France plus 5 overseas). French associations can operate nationally regardless of where they are registered - the RNA registration is done at the prefecture of the registered address but does not limit the geographic scope of activities.
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Tax-deductibility for donors
French donations to associations d'intérêt général or associations reconnues d'utilité publique are deductible (66% crédit d'impôt for individuals up to a cap).
Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is in France, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is registered in France. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
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How many charities work in each area, with this charity's area highlighted.
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Sources and verification
- Registration and legal identity
- Journal Officiel des Associations (JOAFE)
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Government registration · Registered with an official registry
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Headquarters address · On file
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Founding date · 2017
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Financial dataNo Comptes annuels (Journal Officiel) on file
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Named leadershipBoard and officer list not yet indexed
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Executive payTop-officer pay not disclosed
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Mission statementNo self-published statement of purpose
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Programs & activitiesNo named programs listed by the charity
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Official websiteNo verified website on record
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Direct contactNo email or phone published
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Tax-deductibilityNot verified
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France)
- What is Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France)?
- Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) is a health registered association based in Saint-Lon-les-Mines, France. The purpose of this association is to undertake useful actions with the agencies of the state in order to demand the recognition of the cysts of Tarlov and related; this association was established on 22 June 2017 at 18:00 on the initiative of two patients with Tarlov cyst; to break the isolation of the patients and their families; to bring together all persons likely to support the association; to seek as many patients as possible with Kyste of Tarlov and Kyste Arachnoidians; to form an active group of patients; to have the disease recognized as an orphan disease; to build a database and to synthesize and sort out existing publications; to all questionnaires on the cysts of Tarlov and Kyste Arachnoidians; to Llassociation AKTKA-France has "to gather information on the conditions of the cysts of Tarlov, arachnoid cysts, to inform the people who suffer from them, to listen to them and to help them break their isolation; to better inform these diseases; the Kystes of Tarlov and the Kystes of this association are not very complex; to make them aware of the fact that they do not have a disease; to do not a very well; to be able to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do so to do so to do not to do to do to do to do not to do to do not to do not to do not to do not to do to do not to do not to do to do to do to do to do not to do to do not to do not to do not to do so to do to do to do not to do not to do not to do to do to do to do to do not to do not to do to do to do to do not to do to do to do to do to do to do to do to do to do not to do to do to do to do to do to do to do not to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do to do not to do
- When was Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) founded?
- Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) was founded in 2017.
- Where is Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) located?
- Headquartered in Saint-Lon-les-Mines, Landes, France.
- Is Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) trustworthy?
- Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) has a GiveRadar Integrity Assessment of 44 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France)'s registration number?
- Registration: W401006087 (France).
- Are donations to Association Kyste de Tarlov - Kyste Arachnoïdiens-France (Aktka-France) tax-deductible?
- Donations may be tax-deductible for residents of France under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.