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Make your donationAbout Cerebrospinal Fluid Leak Association
We are dedicated to supporting CSF leak patients, working to ensure every cerebrospinal fluid (CSF) leak is diagnosed promptly, treated effectively, and prevented wherever possible to reduce suffering and avoid serious complications. CSF leaks are curable, yet too often missed or misdiagnosed. We empower patients to seek appropriate healthcare and treatment through practical advice, support, and advocacy. We campaign for equitable and timely access to holistic care for all CSF leak patients. By collaborating with leading experts and those with lived experience, we raise awareness, advance understanding through education, and drive progress by supporting research. Our aim is simple: to help as many people as possible access best-practice care, achieve a cure, and return to living pain free and free …
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Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar education in United KingdomConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
GiveRadar's verified records show Cerebrospinal Fluid Leak Association with a substantially complete profile, sourced from OSCR.
- GiveRadar holds 5 years of financial filings for this organization, the most recent for fiscal year 2025. See the filings
- Its integrity score of 49 is below most of the 87,708 education charities in the United Kingdom GiveRadar tracks. GiveRadar bases this on limited verified information so far, with little on record for its governance. Explore United Kingdom data
- government registration
- financial records (5 filed years)
- a website
- a contact email
- a donation page
- leadership details (present for 78% of comparable organizations)
- third-party accreditation
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyCerebrospinal Fluid Leak Association is a registered education nonprofit based in Glasgow, Scotland, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 2016 and has been operating for 10 years. Its registration number is SC046319. GiveRadar's Integrity Assessment for the organization is 49/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £43K in annual revenue.
Cerebrospinal Fluid Leak Association's official registration number is SC046319, as recorded in the national registry of United Kingdom.
Cerebrospinal Fluid Leak Association has a GiveRadar Integrity Assessment of 49/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 49 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for education charities in United Kingdom is 86/100.
Cerebrospinal Fluid Leak Association is located in Glasgow, Scotland, United Kingdom. The organization was established in 2016 and has been active for 10 years.
Based on official tax filings, Cerebrospinal Fluid Leak Association has £43K in annual revenue. Its revenue is below the peer average of £994K. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Cerebrospinal Fluid Leak Association is classified as an Education organization, registered in United Kingdom. It operates as a SCIO. It has £43K in annual revenue.
According to GiveRadar's records, Cerebrospinal Fluid Leak Association is registered with the Charity Commission for England and Wales and overseen by the Charity Commission. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
We are dedicated to supporting CSF leak patients, working to ensure every cerebrospinal fluid (CSF) leak is diagnosed promptly, treated effectively, and prevented wherever possible to reduce suffering and avoid serious complications. CSF leaks are curable, yet too often missed or misdiagnosed. We empower patients to seek appropriate healthcare and treatment through practical advice, support, and advocacy. We campaign for equitable and timely access to holistic care for all CSF leak patients. By collaborating with leading experts and those with lived experience, we raise awareness, advance understanding through education, and drive progress by supporting research. Our aim is simple: to help as many people as possible access best-practice care, achieve... Cerebrospinal Fluid Leak Association is classified as an education organization registered in United Kingdom. The organization was founded in 2016.
Among education charities registered in United Kingdom: Its annual revenue of £43K is below the peer average of £994K.
You can verify Cerebrospinal Fluid Leak Association in several ways. First, search the Charity Commission Register at https://register-of-charities.charitycommission.gov.uk/ - every charity registered in England and Wales appears here with its registration number, trustees, governing document, and filed accounts. Second, check whether the charity's annual return and accounts are up to date - the Commission flags charities with overdue filings. Third, look for the Fundraising Regulator badge on the charity's website, which signals voluntary compliance with the Code of Fundraising Practice.
You can donate to Cerebrospinal Fluid Leak Association directly through its donation page (https://csfleak.uk/donate). UK charities typically accept online card payments, direct debit, and bank transfer. Many also use platforms such as JustGiving or Charities Aid Foundation (CAF). If you are a UK taxpayer, make sure to tick the Gift Aid box: it lets the charity reclaim 25p from HMRC for every pound you give at no extra cost to you. Higher-rate taxpayers can claim back the difference between basic-rate and their marginal rate through Self Assessment. Payroll Giving (Give As You Earn) lets you donate pre-tax through your employer.
Donations to Cerebrospinal Fluid Leak Association are eligible for Gift Aid if you are a UK income-tax or capital-gains-tax payer. Gift Aid adds 25% to your donation at no cost to you (the charity reclaims basic-rate tax from HMRC). Higher-rate and additional-rate taxpayers can also claim back the difference through Self Assessment or by adjusting their PAYE tax code. Gifts of shares, property, or land to charity are free of Capital Gains Tax and can be deducted from your income for Income Tax purposes. Legacy gifts (in your will) reduce the value of your estate for Inheritance Tax and can lower the IHT rate from 40% to 36% if you leave at least 10% to charity.
Cerebrospinal Fluid Leak Association is based in Glasgow in Scotland. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.
Cerebrospinal Fluid Leak Association was first registered in 2016, making it approximately 10 years old. UK charities must file an annual return with the Charity Commission to remain on the register. A long registration history generally indicates sustained operations and continuous regulatory compliance.
Filing history
5 years on file from oscr (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of United Kingdom under local rules. Confirm with the charity directly.
Cerebrospinal Fluid Leak Association is in United Kingdom, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
Cerebrospinal Fluid Leak Association is registered in United Kingdom. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
We check government filings and charity disclosures quarterly. If you represent this charity, claim this page to add officers directly.
Latest news
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Activity timeline
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Sign up to write a reviewCause areas in United Kingdom
How many charities work in each area, with this charity's area highlighted.
Most common causes in United Kingdom
Causes charities work on most.
Sources and verification
- Registration and legal identity
- Charity Commission for England and Wales - Register of Charities
- Financial filings
- Charity Commission annual returns - Fiscal year 2025 most recent on file.
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · FY2025 on record
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Government registration · Registered with an official registry
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Tax-deductibility · Verified
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Founding date · 2016
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Named leadershipBoard and officer list not yet indexed
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Executive payTop-officer pay not disclosed
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Mission statementNo self-published statement of purpose
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Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Cerebrospinal Fluid Leak Association
- What is Cerebrospinal Fluid Leak Association?
- Cerebrospinal Fluid Leak Association is a education scio based in Glasgow, United Kingdom. We are dedicated to supporting CSF leak patients, working to ensure every cerebrospinal fluid (CSF) leak is diagnosed promptly, treated effectively, and prevented wherever possible to reduce suffering and avoid serious complications. CSF leaks are curable, yet too often missed or misdiagnosed. We empower patients to seek appropriate healthcare and treatment through practical advice, support, and advocacy. We campaign for equitable and timely access to holistic care for all CSF leak patients. By collaborating with leading experts and those with lived experience, we raise awareness, advance understanding through education, and drive progress by supporting research. Our aim is simple: to help as many people as possible access best-practice care, achieve a cure, and return to living pain free and free from harm. 'the advancement of health' To raise the profile and promote awareness of Cerebrospinal Fluid Leaks (with a particular focus on spinal Cerebrospinal Fluid Leaks), hereafter within these purposes referred to as 'CSF Leaks', in all areas of society, including the general public, the media and the medical profession, for the public benefit. To improve, for the public benefit, the general availability of and access to information and resources relating to the causes, symptoms, diagnosis and treatment of CSF Leaks. To advance, for the public benefit, understanding of the causes, symptoms, diagnosis and treatment of CSF Leaks through research, education, fora, publications, practical advice, and other appropriate means and services. To campaign for, encourage and support positive change and advancements within government, the four national health services within the UK, other relevant health care providers (including those outwith the UK), other relevant organisations and general society that address the various issues faced by people suffering or suspected to be suffering from CSF Leaks, their families and supporters. To work to support and improve the availability of and access to investigatory tests and treatments required by people suffering or suspected to be suffering from CSF Leaks. To encourage and support the establishment, development and furtherance of organisations and initiatives the aim(s) of which are to a) undertake and/or facilitate research into CSF Leaks (incl. their underlying causes and resultant effects) and/or b) support people suffering or suspected to be suffering from CSF Leaks, their families and supporters. The promotion of such other similar charitable purposes as may from time to time be determined.
- When was Cerebrospinal Fluid Leak Association founded?
- Cerebrospinal Fluid Leak Association was founded in 2016.
- Where is Cerebrospinal Fluid Leak Association located?
- Headquartered in Glasgow, Scotland, United Kingdom.
- What is Cerebrospinal Fluid Leak Association's annual budget?
- Annual revenue for fiscal year 2025 is approximately £10K-£100K.
- Is Cerebrospinal Fluid Leak Association trustworthy?
- Cerebrospinal Fluid Leak Association has a GiveRadar Integrity Assessment of 49 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Cerebrospinal Fluid Leak Association's registration number?
- Registration: SC046319 (United Kingdom).
- What is Cerebrospinal Fluid Leak Association's website?
- https://www.csfleak.uk
- Are donations to Cerebrospinal Fluid Leak Association tax-deductible?
- Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.