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Foreningen for Fragilt X-Syndrom

Oslo Reg: 984460392 (Brønnøysund) Sign up to see website
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60
Integrity Assessment
Partial transparency
60/100 · methodology

About Foreningen for Fragilt X-Syndrom

The purpose of the association is: - to perform advisory, informative and. assisting activities for all born with Deprecated X syndrome and. their families - to disseminate knowledge about Deprecated X syndrome and related.diagnosis, to healthcare stations, pediatricians, hospitals and other. treating institutions - to work to get the authorities and. public to know Deprecated X syndrome and the group's problems.

Foreningens formål er: - å utøve en rådgivende, opplysende og. hjelpende virksomhet til alle som er født med Fragilt X-syndrom og. deres familier - å spre kunnskap om Fragilt X-syndrom og relaterte. diagnoser, til helsestasjoner, barneleger, sykehus og andre. behandlende institusjoner - å arbeide for at myndighetene og. allmennheten skal få kjennskap til Fragilt X- syndrom og gruppens. problemer.. Aktiviteter i andre medlemsorganisasjoner ellers

Translated from Norwegian by GiveRadar.

Founded
Headquarters
Oslo
Foundation type
Association (Forening/lag/innretning)
Size
small

Focus areas & reach

· What they work on and where

How it stacks up against peers

· vs. 8 similar community development in Norway
Integrity Assessment This charity: 60
Peer average: 86

Concerns

· 1 red flag
Stale Filings
Most recent filing is from 2021, which is 5 years ago.

GiveRadar Analysis

Original analysis from GiveRadar's dataset of comparable organizations

From what GiveRadar has verified so far, Foreningen for Fragilt X-Syndrom has a substantially complete profile.

  • GiveRadar has verified financial records for only 4% of community development charities in Norway, and this is one of them. See national comparisons
  • It has more complete contact information than nearly all comparable charities, with a verified website, email, phone and address on record. See national comparisons
  • Its integrity score of 60 places it in the top 25% of the 101,326 community development charities in Norway GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
GiveRadar has verified
  • government registration
  • financial records
  • disclosed leadership
  • a website
  • a contact email
Not yet verified by GiveRadar
  • a donation page
  • third-party accreditation
  • an owner-submitted profile claim

Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.

Common questions

· Auto-generated from filings + methodology

Foreningen for Fragilt X-Syndrom is a registered community development nonprofit based in Oslo, Norway. It is registered with the Brønnøysund Register Centre. It was founded in 1988 and has been operating for 38 years. Its registration number is 984460392. GiveRadar's Integrity Assessment for the organization is 60/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports NOK 805K in annual revenue. 5 officers and directors are publicly disclosed. GiveRadar has identified 1 potential concern.

Foreningen for Fragilt X-Syndrom's official registration number is 984460392, as recorded in the national registry of Norway.

Foreningen for Fragilt X-Syndrom has a GiveRadar Integrity Assessment of 60/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 60 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for community development charities in Norway is 86/100.

Foreningen for Fragilt X-Syndrom is located in Oslo, Norway. The organization was established in 1988 and has been active for 38 years.

Based on official tax filings, Foreningen for Fragilt X-Syndrom has NOK 805K in annual revenue. Its revenue is below the peer average of NOK 17M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Foreningen for Fragilt X-Syndrom is classified as a Community Development organization, registered in Norway. It operates as a Forening/lag/innretning. By size, it is categorized as a small organization. It has NOK 805K in annual revenue. The organization has 5 disclosed officers and directors.

GiveRadar has identified 1 potential concern for Foreningen for Fragilt X-Syndrom. Red flags are automatically detected from official data and may include high executive compensation relative to budget, low program spending, or missing financial filings. Red flags do not necessarily mean wrongdoing but indicate areas that may warrant further review before donating.

According to GiveRadar's records, Foreningen for Fragilt X-Syndrom is registered with the Brønnøysund Register Centre and overseen by the Lotteri- og stiftelsestilsynet. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

The purpose of the association is: - to perform advisory, informative and. assisting activities for all born with Deprecated X syndrome and. their families - to disseminate knowledge about Deprecated X syndrome and related.diagnosis, to healthcare stations, pediatricians, hospitals and other. treating institutions - to work to get the authorities and. public to know Deprecated X syndrome and the group's problems. Foreningen for Fragilt X-Syndrom is classified as a community development organization registered in Norway. The organization was founded in 1988.

Among community development charities registered in Norway: Its annual revenue of NOK 805K is below the peer average of NOK 17M.

Foreningen for Fragilt X-Syndrom is registered in Norway. Donations of at least 500 NOK (up to 50,000 NOK per year) to approved Norwegian nonprofits are tax-deductible. The organization must be registered in the Volunteer Register and report donations to the Norwegian Tax Administration.

Annual revenue
NOK 100K-NOK 1M
Source: no_brreg (FY2021) why this matters
Unlock exact figures

Filing history

1 year on file from no_brreg (FY2021): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2021.
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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of Norway under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

From FY2021 filing

BE
Bente I•••• G••••••

Officers & trustees (5)

Source: Public filings

See full names, roles, and stories

5 officers and trustees on file - free with a GiveRadar account.

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
NOK 0.8M revenue
FY2021
NO_BRREG

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Cause areas in Norway

How many charities work in each area, with this charity's area highlighted.

Community Development this charity 101,326
Sports & Recreation 15,631
Arts & Culture 9,213
Social Services 4,831
Education 1,956
Health 148
See all cause areas in Norway

Most common causes in Norway

Causes charities work on most.

Veterans 637
Cancer 549
Disability 337
Health 152
HIV/AIDS 49
Peace 45
Sanitation 39
Orphans 24

Sources and verification

Registration and legal identity
Brønnøysund Register Centre
Financial filings
Brønnøysund Register Centre - Fiscal year 2021 most recent on file.
Officers and trustees
Brønnøysund Register Centre - 5 disclosed in the public registry.

Data freshness

Last updated
Apr 21, 2026
Registry checked
Apr 1, 2026
Profile completeness
65%

What we know and don't know

Exactly which public data we hold on this charity. Our score reflects transparency, not impact.

On record · 7
  • Financial data · FY2021 on record
  • Named leadership · 5 officers on file
  • Government registration · Registered with an official registry
  • Official website · On record
  • Headquarters address · On file
  • Direct contact · Email or phone published
  • Founding date · 1988
Not available · 4
  • Executive pay
    Top-officer pay not disclosed
  • Mission statement
    No self-published statement of purpose
  • Programs & activities
    No named programs listed by the charity
  • Tax-deductibility
    Not verified

Methodology

GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology

Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.

Quick facts about Foreningen for Fragilt X-Syndrom

What is Foreningen for Fragilt X-Syndrom?
Foreningen for Fragilt X-Syndrom is a community development association based in Oslo, Norway. The purpose of the association is: - to perform advisory, informative and. assisting activities for all born with Deprecated X syndrome and. their families - to disseminate knowledge about Deprecated X syndrome and related.diagnosis, to healthcare stations, pediatricians, hospitals and other. treating institutions - to work to get the authorities and. public to know Deprecated X syndrome and the group's problems.
When was Foreningen for Fragilt X-Syndrom founded?
Foreningen for Fragilt X-Syndrom was founded in 1988.
Who leads Foreningen for Fragilt X-Syndrom?
Bente Irene Greaker.
Where is Foreningen for Fragilt X-Syndrom located?
Headquartered in Oslo, Norway.
What is Foreningen for Fragilt X-Syndrom's annual budget?
Annual revenue for fiscal year 2021 is approximately NOK 100K-NOK 1M.
Is Foreningen for Fragilt X-Syndrom trustworthy?
Foreningen for Fragilt X-Syndrom has a GiveRadar Integrity Assessment of 60 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Foreningen for Fragilt X-Syndrom's registration number?
Registration: 984460392 (Norway).
What is Foreningen for Fragilt X-Syndrom's website?
https://frax.no
Are donations to Foreningen for Fragilt X-Syndrom tax-deductible?
Donations may be tax-deductible for residents of Norway under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.