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Friedreich Ataxia Research Funding and Advocacy: Genetic conditions and birth defects
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar science & technology in AustraliaRed flags
· All clearCommon questions
· Auto-generated from filings + methodologyFriedreich Ataxia Research Association is a registered science & technology nonprofit based in Elsternwick, Vic, Australia. It is registered with the Australian Charities and Not-for-profits Commission (ACNC). It was founded in 2012 and has been operating for 14 years. Its registration number is 74156394973. It has a GiveRadar Integrity Assessment of 35/100 (Limited data available). This reflects limited public data, not concerns about the organization. The organization reports A$2M in annual revenue.
Friedreich Ataxia Research Association has a GiveRadar Integrity Assessment of 35/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 35 ('Limited data available') reflects limited public data, not concerns about the organization. This is common for smaller, newer, or non-US charities that file fewer public records. For comparison, the average integrity assessment for science & technology charities in Australia is 37/100.
Friedreich Ataxia Research Association is located in Elsternwick, Vic, Australia. The organization was established in 2012 and has been active for 14 years. Its registered address is Po Box 210, Australia.
Based on official tax filings, Friedreich Ataxia Research Association has A$2M in annual revenue. Its revenue is below the peer average of A$4M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Friedreich Ataxia Research Association is classified as a Science & Technology organization, registered in Australia. It operates as a Small. By size, it is categorized as a medium organization. It has A$2M in annual revenue.
Friedreich Ataxia Research Association has a GiveRadar Integrity Assessment of 35/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the ACNC. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.
Friedreich Ataxia Research Funding and Advocacy: Genetic conditions and birth defects Friedreich Ataxia Research Association is classified as a science & technology organization registered in Australia. The organization was founded in 2012.
Among science & technology charities registered in Australia: Friedreich Ataxia Research Association's GiveRadar Integrity Assessment of 35/100 is in line with the peer average of 37/100. Its annual revenue of A$2M is below the peer average of A$4M.
Friedreich Ataxia Research Association is registered with the Australian Charities and Not-for-profits Commission (ACNC). If the organization has Deductible Gift Recipient (DGR) status, donations of $2 or more are tax-deductible in Australia. Check the organization's DGR status on the ACNC or ATO website to confirm.
Verified against 3 official sources, last refreshed .
Filing history
1 year on file from ACNC (Australia) (FY2022): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Australian donations are deductible if Friedreich Ataxia Research Association holds DGR (Deductible Gift Recipient) status from the ATO. Check the DGR register before claiming.
Friedreich Ataxia Research Association is registered in Australia. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Friedreich Ataxia Research Association is registered in Australia. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
We check government filings and charity disclosures quarterly. If you represent this charity, claim this page to add officers directly.
Latest news
From global news sources
10 articles found
From global news sources
Sentiment
NeutralPenn research into Friedreich’s ataxia reveals how DNA folding can silence a key gene - Penn Medicine
Friedreich’s Ataxia Awareness Month to focus on education, community - Friedreich's Ataxia News
MRI Identifies 3 Friedreich Ataxia Subtypes - Conexiant
5 newly funded Oxford research projects to advance FA treatments - Friedreich's Ataxia News
The Oxford-Harrington Rare Disease Centre Advances Discovery of Therapies for Friedreich’s Ataxia (FA) - rdm.ox.ac.uk
New discovery offers real hope for rare genetic disease - ScienceDaily
Muscular Dystrophy Association Announces nearly $2 Million in Collaborative Research Grants Advancing Treatments Across Multiple Neuromuscular Diseases - ALS Network
Tampa’s FARA Energy Ball raises $1.4 million for Friedreich’s ataxia research - Tampa Bay Times
Tampa’s FARA Energy Ball raises $1.4 million for Friedreich’s ataxia research - Yahoo
Wendy Ryan emcees FARA Energy Ball to support Friedreich’s ataxia research - Tampa Bay 28
Activity timeline
Filings and press mentions, merged
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Other science & technology in Australia, by integrity assessment
Sources and verification
Refreshed
- Registration and legal identity
- Australian Charities and Not-for-profits Commission (ACNC)
- Financial filings
- Australian Charities and Not-for-profits Commission (ACNC) - Fiscal year 2022 most recent on file.
- News and media coverage
- GDELT Project + Google News
Data freshness
What we don't know
Honest gaps - our score reflects transparency, not impact
Methodology
GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.
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Quick facts about Friedreich Ataxia Research Association
- What is Friedreich Ataxia Research Association?
- Friedreich Ataxia Research Association is a science & technology small based in Elsternwick, Australia. Friedreich Ataxia Research Funding and Advocacy: Genetic conditions and birth defects
- When was Friedreich Ataxia Research Association founded?
- Friedreich Ataxia Research Association was founded in 2012.
- Where is Friedreich Ataxia Research Association located?
- Headquartered in Elsternwick, Australia.
- What is Friedreich Ataxia Research Association's annual budget?
- Annual revenue for fiscal year 2022 is approximately A$1M-A$10M.
- Is Friedreich Ataxia Research Association trustworthy?
- Friedreich Ataxia Research Association has a GiveRadar Integrity Assessment of 35 out of 100 (Limited data available). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Friedreich Ataxia Research Association's registration number?
- Registration: 74156394973 (Australia).
- What is Friedreich Ataxia Research Association's website?
- https://www.fara.org.au
- Are donations to Friedreich Ataxia Research Association tax-deductible?
- Donations may be tax-deductible for residents of Australia under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.