Charities Netherlands Health Fshd Stichting
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Fshd Stichting

De stichting heeft ten doel: het stimuleren, faciliteren en financieren van het, zowel genetisch als klinisch, wetenschappelijk onderzoek naar de oorzaken en achtergronden van de facioscapalo humerale vorm …

The Hague ('s-Gravenhage) RSIN 806000466 · KVK Sign up to see website
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69
Integrity Assessment
Partial transparency
69/100 · methodology

About Fshd Stichting

Fshd Stichting is a nonprofit organization based in 'S-GRAVENHAGE, Netherlands. Annual revenue: $137K. 90% of spending goes directly to programs. Registration: 806000466.

Headquarters
The Hague
Foundation type
Foundation (Stichting)
Size
small

Verified certifications

Confirmed against the issuing authority - not self-reported.

ANBI
CBF-Erkend Goed Doel sinds 2010

Mission

De stichting heeft ten doel: het stimuleren, faciliteren en financieren van het, zowel genetisch als klinisch, wetenschappelijk onderzoek naar de oorzaken en achtergronden van de facioscapalo humerale vorm van spierdystrofie, hierna afgekort tot: FSHD, teneinde genezingswijzen te ontdekken. De onderzoeksresultaten dienen hierbij zoveel mogelijk eigendom te worden van de stichting, die die resultaten vervolgens om niet of tegen vergoeding aan derden beschikbaar kan stellen. Zodra een betrouwbare geneeswijze is ontdekt stelt de stichting zich eveneens ten doel het verdere wetenschappelijk onderzoek te financieren. Voorts stelt de stichting zich ten doel al hetgeen met het voorgaande rechtstreeks of zijdelings verband houdt of daaraan bevorderlijk kan zijn, alles in de ruimste zin.

Focus areas & reach

· What they work on and where
❤️ Health
Cause tags
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.
SDG 3 SDG 3 · Good Health and Well-being Ensure healthy lives and promote well-being for all at all ages. SDG 4 SDG 4 · Quality Education Ensure inclusive and equitable quality education and promote lifelong learning opportunities for all.

How it stacks up against peers

· vs. 8 similar health in Netherlands
Program spending This charity: 90%
Peer average: 89%
Overhead (admin + fundraising) This charity: 10%
Peer average: 11%
Integrity Assessment This charity: 69
Peer average: 72

Red flags

· All clear
ANBI status revocation
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Where every €1 goes

€0.90
Program expenses€0.90 (€110,337)
Administration€0.07 (€8,957)
Fundraising€0.03 (€3,432)
90% to programs beats the peer average (89%) and beats the Charity Navigator "highly efficient" threshold (75%).

Common questions

· Auto-generated from filings + methodology

Fshd Stichting is a registered health nonprofit based in The Hague, Netherlands. It is registered with the Kamer van Koophandel (KVK). Its registration number is 806000466. It has a GiveRadar Integrity Assessment of 69/100 (Partial transparency), indicating some public data is available but key signals are missing. The organization reports €137K in annual revenue. 6 officers and directors are publicly disclosed. No red flags have been detected.

Fshd Stichting has a GiveRadar Integrity Assessment of 69/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 69 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. The charity allocates 90% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for health charities in Netherlands is 72/100.

Fshd Stichting is located in The Hague, Netherlands. Its registered address is Kievietslaan 34, 2243 GD Wassenaar, the Netherlands.

Based on official tax filings, Fshd Stichting has €137K in annual revenue. It allocates 90% of expenses to programs and services. This is in line with the average of 89% for health charities in Netherlands. Administrative costs account for 7% of expenses. Fundraising costs represent 3%. Its revenue is below the peer average of €11M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Fshd Stichting is classified as a Health organization, registered in Netherlands. It operates as a Stichting. By size, it is categorized as a small organization. It has €137K in annual revenue. The organization has 6 disclosed officers and directors.

No red flags have been detected for Fshd Stichting. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

Fshd Stichting has a GiveRadar Integrity Assessment of 69/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Dutch Tax Authority (Belastingdienst). 90% of expenses go to programs. The peer average is 89%. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

Fshd Stichting is a nonprofit organization based in 'S-GRAVENHAGE, Netherlands. Annual revenue: $137K. 90% of spending goes directly to programs. Registration: 806000466. Fshd Stichting is classified as a health organization registered in Netherlands.

Among health charities registered in Netherlands: Fshd Stichting's GiveRadar Integrity Assessment of 69/100 is in line with the peer average of 72/100. It allocates 90% of expenses to programs, in line with the peer average of 89%. Its annual revenue of €137K is below the peer average of €11M.

Fshd Stichting is registered in the Netherlands. Fshd Stichting has ANBI (Algemeen Nut Beogende Instelling) status, so donations are tax-deductible. You can deduct gifts that exceed 1% of your threshold income (minimum 60 euros). Periodic gifts (committed for 5+ years) are fully deductible without threshold.

Fshd Stichting is a Dutch foundation (stichting) - the most common legal form for charities and public-benefit organisations in the Netherlands. A stichting has no members, is governed by a board, and is established by notarial deed for a specific purpose. It is the only Dutch legal form that can hold ANBI (public-benefit) status without member oversight. There are about 250,000 stichtingen on file at the Dutch Chamber of Commerce (KvK), of which roughly 50,000 hold ANBI status with the Belastingdienst. It is registered with the Kamer van Koophandel (KvK), the Dutch Chamber of Commerce, with RSIN 806000466.

You can verify Fshd Stichting's legal status in three ways. First, look up the RSIN directly on the Belastingdienst ANBI register: https://www.belastingdienst.nl/wps/wcm/connect/nl/aftrek-en-kortingen/content/anbi-status-controleren and enter 806000466. The result page confirms whether the organisation currently holds ANBI status - a prerequisite for tax-deductible donations in the Netherlands. Second, search the Kamer van Koophandel public registry at https://www.kvk.nl/zoeken/ - the KvK record shows the legal form (Stichting / Vereniging / Coöperatie), registered address, board composition (where disclosed), and the date of incorporation. Third, every ANBI is legally required by the publicatieplicht to publish on its own website: the policy plan, financial statements, an overview of activities, board composition, and remuneration policy. A working ANBI page with current financials is the strongest signal of legitimacy beyond the registry. If all three sources agree on name, address and ANBI status, the organisation is legitimate.

You can donate to Fshd Stichting directly through its donation page (http://www.fshd.nl/doneren). Dutch charities typically accept iDEAL (the standard Dutch online-banking payment method), Tikkie payment requests, Bancontact for cross-border donors, SEPA bank transfer to the organisation's IBAN (account numbers starting with NL), and online payment processors (Mollie, Stripe). Many larger Dutch charities use platforms like Geef.nl, GeefSamen, Kentaa, and Pifworld for online fundraising. International donors can give via SEPA (the Netherlands is in the eurozone, so intra-EU transfers are cheap), PayPal, or GlobalGiving. For donations to count as a 'periodieke gift' - fully tax-deductible without a threshold - a written agreement (overeenkomst periodieke gift) committing for at least five years is required. Always confirm the recipient's RSIN and ANBI status before sending funds intended for the tax deduction.

Fshd Stichting carries the CBF-Erkend Goed Doel label - the Dutch quality seal awarded by the Centraal Bureau Fondsenwerving (CBF). To qualify, a charity passes a three-yearly independent audit covering governance (separation of board, oversight, and management), financial transparency (audited annual accounts, clear expense breakdown), effective use of donations, responsible fundraising practices, and a working complaints procedure. You can read the public 'CBF-paspoort' for Fshd Stichting here: https://cbf.nl/organisaties/944. The passport shows the most recent audit outcome and the headline financial ratios.

As an ANBI, Fshd Stichting is legally required to publish the following information on its own website, free of charge and without a login (the 'publicatieplicht' obligation under Uitvoeringsregeling AWR 1994 art. 1a): the policy plan, an overview of the past year's activities, the financial statements (balance sheet, profit-and-loss, explanatory notes), board composition with names, and the remuneration policy for directors and key staff. Larger ANBIs (turnover above €50,000) must also publish a fuller financial report using the Belastingdienst's standard ANBI publication form. If you cannot find these documents on the organisation's website, that is a red flag worth raising with the board before donating.

Verified against 4 official sources, last refreshed .

Annual revenue
€100K-€1M
90% to programs
Source: cbf (FY2024) why this matters
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Filing history

1 year on file from cbf (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2024.
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Taxes

Tax-deductibility for donors

NL donations to FSHD STICHTING are tax-deductible only if the charity holds an active ANBI registration (Algemeen Nut Beogende Instelling). Check the charity's ANBI status before claiming a deduction.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

A.
A.I. Lanser-Weber
Board Member

Officers & trustees (6)

Source: Public filings

A.
A.I. L•••••••••••
Board Member
C.
C.J. v•• d•• G••••
Chair
G.
G.W.A.M. P••••••
Board Member
R.
R. R•••
Board Member
R.
R. S••••••••
Treasurer
R.
R. v•• B•••••••••••
Secretary
Full names, contact details & compensation

Free with an account.

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Latest news

From global news sources

7 articles found

From global news sources

Sentiment

Neutral

Activity timeline

Filings and press mentions, merged

Bas (38) rende een marathon rond Nationaal Monument op de Dam: ‘Af en toe liep een toerist een rondje mee’ - Hardloopnie
Mar 2026
www.hardloopnieuws.nl
Marathon in rondjes om Nationaal Monument op de Dam: Bas Jacob deed het - 3athlon.nl
Mar 2026
3athlon.nl
Bas (38) rende een marathon rond Nationaal Monument op de Dam: ‘Af en toe liep een toerist een rondje mee’ - Het Parool
Mar 2026
www.parool.nl
Als peuter kon Nynke haar bovenlip niet bewegen en haar ogen niet goed sluiten: 50 jaar later doet ze haar verhaal - De
Dec 2025
www.gelderlander.nl
Zwemmers SingelSwim halen 68.671 euro op voor onderzoek naar spierziekte - RTV Utrecht
Sep 2025
www.rtvutrecht.nl
Form filed
€0.1M revenue
FY2024
CBF
Wetenschappers willen weten: hoe denken jullie over embryo’s uit het lab? - Amazing Erasmus MC
Dec 2022
amazingerasmusmc.nl
Lintjesregen 2019: Lees hier wie er in Wassenaar een lintje heeft gekregen - Omroep West
Apr 2019
www.omroepwest.nl

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Peer charities

Other health in Netherlands, by integrity assessment

Charity Score Revenue Program %
Fshd Stichting This page 69 €136,890 90%
Stichting Improve 76 €114,207 92%
Stichting De Regenboogboom 73 €203,717 78%
astmaVereniging Nederland en Davos 73 €218,593 80%
Stichting Nepal 72 €180,470 96%
Stichting Cure ADOA Foundation 72 €159,779 94%
Stichting Hoogvliegers 72 €279,098 83%
Stichting Lion Heart Foundation 69 €306,310 96%
Stichting Kinderoncologische Vakantiekampen 69 €225,406 93%

Sources and verification

Refreshed

Registration and legal identity
Belastingdienst (Dutch Tax Authority) and KVK
Financial filings
Belastingdienst ANBI publication standard - Fiscal year 2024 most recent on file.
Officers and trustees
Belastingdienst (Dutch Tax Authority) and KVK - 6 disclosed in the public registry.
News and media coverage
GDELT Project + Google News

Data freshness

Last updated
May 18, 2026
Profile completeness
85%

What we don't know

Honest gaps - our score reflects transparency, not impact

Executive compensation
Top-officer pay not disclosed
Programs & projects
No named programs listed by the charity
Operating reach
Countries where programs run not specified
Founding date
Year the organisation was founded not on file

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Fshd Stichting

What is Fshd Stichting?
Fshd Stichting is a health foundation based in The Hague, Netherlands. Fshd Stichting is a nonprofit organization based in 'S-GRAVENHAGE, Netherlands. Annual revenue: $137K. 90% of spending goes directly to programs. Registration: 806000466.
Where is Fshd Stichting located?
Headquartered in The Hague ('s-Gravenhage in the local language), Netherlands.
What is Fshd Stichting's annual budget?
Annual revenue for fiscal year 2024 is approximately €100K-€1M. 90% of expenses go to program services.
Is Fshd Stichting trustworthy?
Fshd Stichting has a GiveRadar Integrity Assessment of 69 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Fshd Stichting's registration number?
Registration: 806000466 (Netherlands).
What is Fshd Stichting's website?
http://www.fshd.nl
Are donations to Fshd Stichting tax-deductible?
Donations may be tax-deductible for residents of Netherlands under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.