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Huntingtons Disease Socitey of America Group Return

Dedicated to improving the lives of people with huntington's disease and their families.

Huntington's Disease Society Of America

New York, NY EIN 900658125 · IRS Reg 13-3349872 · IRS Sign up to see website
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75
Integrity Assessment
Strong transparency
75/100 · methodology

About Huntingtons Disease Socitey of America Group Return

Huntingtons Disease Socitey of America Group Return is a sports organization based in NEW YORK, United States. Annual revenue: $3.6 million. EIN: 900658125.

Founded
Headquarters
New York, NY
Foundation type
Publicly-supported charity (509(a)(2))
IRS subsection
501(c)(03)
Ruling date
Size
medium

Mission

Dedicated to improving the lives of people with huntington's disease and their families.

Focus areas & reach

· What they work on and where
Sports & Recreation
Cause tags

How it stacks up against peers

· vs. 8 similar sports & recreation in United States
Program spending This charity: 0%
Peer average: 77%
Integrity Assessment This charity: 75
Peer average: 91

Red flags

· All clear
IRS revocation history
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Common questions

· Auto-generated from filings + methodology

Huntingtons Disease Socitey of America Group Return is a registered sports & recreation nonprofit based in New York, NY, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1986 and has been operating for 40 years. Its EIN is 900658125. It has a GiveRadar Integrity Assessment of 75/100 (Strong transparency), indicating well-documented governance, financials, and contact details. This is below the average of 90/100 for sports & recreation charities in United States. The organization reports $3M in annual revenue. 106 officers and directors are publicly disclosed. No red flags have been detected.

Huntingtons Disease Socitey of America Group Return has a GiveRadar Integrity Assessment of 75/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 75 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for sports & recreation charities in United States is 90/100.

Huntingtons Disease Socitey of America Group Return is located in New York, NY, United States. The organization was established in 1986 and has been active for 40 years.

Based on official tax filings, Huntingtons Disease Socitey of America Group Return has $3M in annual revenue. Its revenue is significantly above the peer average of $725K. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Huntingtons Disease Socitey of America Group Return is classified as a Sports & Recreation organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a medium organization. It has $3M in annual revenue. The organization has 106 disclosed officers and directors.

No red flags have been detected for Huntingtons Disease Socitey of America Group Return. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

Huntingtons Disease Socitey of America Group Return has a GiveRadar Integrity Assessment of 75/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the IRS. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

Huntingtons Disease Socitey of America Group Return is a sports organization based in NEW YORK, United States. Annual revenue: $3.6 million. EIN: 900658125. Huntingtons Disease Socitey of America Group Return is classified as a sports & recreation organization registered in United States. The organization was founded in 1986.

Among sports & recreation charities registered in United States: Huntingtons Disease Socitey of America Group Return's GiveRadar Integrity Assessment of 75/100 is below the peer average of 90/100. Its annual revenue of $3M is well above the peer average of $725K.

Yes, donations to Huntingtons Disease Socitey of America Group Return are generally tax-deductible in the United States. Huntingtons Disease Socitey of America Group Return is a 501(c)(3) tax-exempt organization. Its EIN is 900658125, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Verified against 4 official sources, last refreshed .

Annual revenue
$1M-$10M
0% to programs
Source: IRS 990 (FY2024) why this matters
Unlock exact figures

Filing history

5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2024, FY2023, FY2022, FY2021, FY2020.
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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

AR
Arik Johnson
Interim CEO

Officers & trustees (25)

Source: Public filings

AM
Amy G•••
President And CEO
AN
Angela A••••
TRUSTEE
AR
Arik J••••••
CHIEF MISSION OFFICER
BE
Beth H••••••
TRUSTEE
CH
Christopher C••••••••
Director
DA
Daniel B••••••
TRUSTEE
DE
Deborah B•••
REGIONAL DEVELOPMENT DIRECTOR
DE
Debra L••••••
Director
DO
Dominique T•••••
TRUSTEE
EJ
Ej G•••••
PAST CHAIR
ER
Erin F•••••••••••• M•
TRUSTEE
GE
George Y•••••••
CHIEF MISSION & SCI. AFFAIRS
JA
Jamison S••••
Director & NATIONAL DEVELOPMENT
JA
Jay H•••••
TRUSTEE
JE
Jeff C••••••
TRUSTEE
JE
Jeffrey B••••
TRUSTEE
JE
Jenne C•••••••••
SECRETARY
JO
Jonathan K•••• E••
TRUSTEE
KA
Kamran A•••
TREASURER
KE
Kelsey P•••••
TRUSTEE
LE
Leslie M T••••••• P••
TRUSTEE
LO
Louise V•••••
CHIEF EXECUTIVE OFFICER
MA
Mark C••
TRUSTEE
RE
Rebecca C•••
CONTROLLER
RO
Rosemary C•••••••
CHIEF OPERATIONS OFFICER
Full names, contact details & compensation

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$3.2M revenue
FY2024
IRS_990
Form filed
$3.3M revenue
FY2023
IRS_990
Form filed
$3.6M revenue
FY2022
IRS_990
Form filed
$2.9M revenue
FY2021
IRS_990
Form filed
$1.9M revenue
FY2020
IRS_990

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Peer charities

Other sports & recreation in United States, by integrity assessment

Charity Score Revenue Program %
Huntingtons Disease Socitey of America Group Return This page 75 $3.3 million -
USA Swimming Inc 93 $1.1 million 87%
Adaptive Sports Center of Crested Butte Inc 93 $5.2 million 83%
Arvada Hockey Association 90 $1.2 million 99%
Steamboat Springs Winter Sports Club Inc 90 $7.0 million 88%
Ignite Volleyball Club and Foundation Inc 90 $2.2 million 77%
Hazen Winter Sports Association Inc 90 $1.2 million 86%
Orono Hockey Boosters Inc 89 $1.0 million 93%
Ray County Transportation Inc 89 $1.9 million -

Sources and verification

Refreshed

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2024 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 106 disclosed in the public registry.
Supplementary verification
Charity Navigator

Data freshness

Last updated
May 2, 2026
Profile completeness
75%

What we don't know

Honest gaps - our score reflects transparency, not impact

Programs & projects
No named programs listed by the charity
Operating reach
Countries where programs run not specified

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Huntingtons Disease Socitey of America Group Return

What is Huntingtons Disease Socitey of America Group Return?
Huntingtons Disease Socitey of America Group Return is a sports & recreation publicly-supported charity (509(a)(2)) based in New York, United States. Huntingtons Disease Socitey of America Group Return is a sports organization based in NEW YORK, United States. Annual revenue: $3.6 million. EIN: 900658125.
When was Huntingtons Disease Socitey of America Group Return founded?
Huntingtons Disease Socitey of America Group Return was founded in 1986.
Who leads Huntingtons Disease Socitey of America Group Return?
Arik Johnson serves as Interim CEO.
Where is Huntingtons Disease Socitey of America Group Return located?
Headquartered in New York, United States.
What is Huntingtons Disease Socitey of America Group Return's annual budget?
Annual revenue for fiscal year 2024 is approximately $1M-$10M. 0% of expenses go to program services.
Is Huntingtons Disease Socitey of America Group Return trustworthy?
Huntingtons Disease Socitey of America Group Return has a GiveRadar Integrity Assessment of 75 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Huntingtons Disease Socitey of America Group Return's registration number?
IRS EIN: 900658125. Registration: 13-3349872 (United States).
What is Huntingtons Disease Socitey of America Group Return's website?
http://www.hdsa.org