Home Countries United States Health Kif1aorg Inc
Kif1aorg Inc logo

Kif1aorg Inc

KIF1A.ORG IS A GLOBAL COMMUNITY DEDICATED TO IMPROVING THE LIVES OF THOSE AFFECTED BY KIF1A-ASSOCIATED NEUROLOGICAL DISORDERS AND ACCELERATING RESEARCH TO FIND A CURE.

Health New York, NY EIN: 820714729 (IRS) Sign up to see website
Claim this charity
Ready to give?
100% goes to Kif1aorg Inc

GiveRadar doesn't take a cut. Donate directly on their site.

Make your donation
69
Integrity Assessment
Partial transparency
69/100 · methodology

About Kif1aorg Inc

KIF1A.ORG is dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder and accelerating research to find a cure.

Founded
Headquarters
New York, NY
Foundation type
Publicly-supported charity (509(a)(2))
NTEE code
F01
IRS subsection
501(c)(03)
Ruling date

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 2017

Mission

Kif1a.org is a global community dedicated to improving the lives of those affected by kif1a-associated neurological disorders and accelerating research to find a cure.

Focus areas & reach

· What they work on and where
❤️ Health · NTEE F01
Cause tags

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 73%
Peer average: 89%
CEO comp as % of revenue This charity: 36.91%
Peer average: 0.48%
Integrity Assessment This charity: 69
Peer average: 90

Concerns

· 1 red flag
High Executive Pay
Top executive compensation is 20.0% of total expenses ($84,696 of $423,665).

Where every $1 goes

· FY2023 · IRS 990 (FY2023)
$0.73
Program$0.73

GiveRadar Analysis

Original analysis from GiveRadar's dataset of comparable organizations

Based on the records currently verified by GiveRadar, Kif1aorg Inc has a complete profile, cross-referenced across 3 independent sources including the IRS.

  • It has more complete contact information than nearly all comparable charities, with a verified website, email, phone and address on record. See national comparisons
  • It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
  • GiveRadar's profile for Kif1aorg Inc draws on its financial disclosures and its governance, in line with the typical health charities in the United States it tracks. View this cohort
GiveRadar has verified
  • government registration
  • financial records (4 filed years)
  • disclosed leadership
  • a website
  • a contact email
  • a donation page
Not yet verified by GiveRadar
  • an owner-submitted profile claim

Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.

Common questions

· Auto-generated from filings + methodology

Kif1aorg Inc is a registered health nonprofit based in New York, NY, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2017 and has been operating for 9 years. Its EIN is 820714729. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 69/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $229K in annual revenue. 33 officers and directors are publicly disclosed. GiveRadar has identified 1 potential concern.

Kif1aorg Inc's EIN (Employer Identification Number) is 820714729. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.

Kif1aorg Inc has a GiveRadar Integrity Assessment of 69/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 69 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in United States is 90/100.

Kif1aorg Inc is located in New York, NY, United States. The organization was established in 2017 and has been active for 9 years. Its registered address is 1178 Broadway 3rd Floor 3535, United States.

Based on official tax filings, Kif1aorg Inc has $229K in annual revenue. It allocates 73% of expenses to programs and services. This is below the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Kif1aorg Inc is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). It has $229K in annual revenue. The organization has 33 disclosed officers and directors.

GiveRadar has identified 1 potential concern for Kif1aorg Inc. Red flags are automatically detected from official data and may include high executive compensation relative to budget, low program spending, or missing financial filings. Red flags do not necessarily mean wrongdoing but indicate areas that may warrant further review before donating.

According to GiveRadar's records, Kif1aorg Inc holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 73% of expenses go to programs (the peer average is 89%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

KIF1A.ORG is dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder and accelerating research to find a cure. Kif1aorg Inc is classified as a health organization registered in United States. The organization was founded in 2017.

Among health charities registered in United States: It allocates 73% of expenses to programs, below the peer average of 89%. Its annual revenue of $229K is below the peer average of $41M.

Yes, donations to Kif1aorg Inc are generally tax-deductible in the United States. Kif1aorg Inc is a 501(c)(3) tax-exempt organization. Its EIN is 820714729, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Annual revenue
$100K-$1M
73% to programs
Source: IRS 990 (FY2023) why this matters
Unlock exact figures

Filing history

4 years on file from IRS 990 (FY2023): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2023, FY2022, FY2021, FY2020.
Financial details are free - with a GiveRadar account

See 5 years of revenue, expense breakdowns, and balance sheet.

Sign up to view
Already have an account? Log in
No credit card · Takes 20 seconds

Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Staff & volunteers

From filings and published profiles

Employees
2

Leadership

From FY2023 filing

SA
Sally J••••••
Director

Officers & trustees (14)

Source: Public filings

See full names, roles, and stories

14 officers and trustees on file - free with a GiveRadar account.

Already have an account? Log in
Sign up to view

Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$0.2M revenue
FY2023
IRS 990
Form filed
$0.6M revenue
FY2022
IRS 990
Form filed
$0.8M revenue
FY2021
IRS 990
Form filed
$0.7M revenue
FY2020
IRS 990

No reviews yet. Be the first to share your experience.

Have you donated or volunteered here?

Share your experience - it takes 30 seconds. Verified reviews help other donors decide.

Sign up to write a review

Cause areas in United States

How many charities work in each area, with this charity's area highlighted.

Human Services 322,679
Education 195,586
Arts & Culture 133,128
Advocacy & Civil Rights 128,026
Religion 114,636
Health this charity 98,862
Community Development 56,086
Youth Development 53,450
See all cause areas in United States

Most common causes in United States

Causes charities work on most, with this charity's causes ticked.

Community Development 235,146
Education 159,016
Religion 103,741
Arts & Culture 101,203
Human Rights 76,926
Health 65,250
Youth Development 47,775
Animal Welfare 32,425

Sources and verification

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2023 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 33 disclosed in the public registry.
Supplementary verification
Charity Navigator

Data freshness

Last updated
Jun 6, 2026
Registry checked
Jun 6, 2026
Profile completeness
90%

What we know and don't know

Exactly which public data we hold on this charity. Our score reflects transparency, not impact.

On record · 10
  • Financial data · FY2023 on record
  • Named leadership · 33 officers on file
  • Executive pay · Disclosed
  • Government registration · Registered with an official registry
  • Mission statement · Published
  • Official website · On record
  • Headquarters address · On file
  • Direct contact · Email or phone published
  • Tax-deductibility · Verified
  • Founding date · 2017
Not available · 1
  • Programs & activities
    No named programs listed by the charity

Methodology

GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology

Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.

Quick facts about Kif1aorg Inc

What is Kif1aorg Inc?
Kif1aorg Inc is a health publicly-supported charity (509(a)(2)) based in New York, United States. KIF1A.ORG is dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder and accelerating research to find a cure.
When was Kif1aorg Inc founded?
Kif1aorg Inc was founded in 2017.
Who leads Kif1aorg Inc?
Sally Jackson serves as Director.
Where is Kif1aorg Inc located?
Headquartered in New York, NY, United States.
What is Kif1aorg Inc's annual budget?
Annual revenue for fiscal year 2023 is approximately $100K-$1M. 73% of expenses go to program services.
Is Kif1aorg Inc trustworthy?
Kif1aorg Inc has a GiveRadar Integrity Assessment of 69 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Kif1aorg Inc's registration number?
IRS EIN: 820714729.
What is Kif1aorg Inc's website?
https://www.kif1a.org