Malaysia Lysosomal Diseases Association (MLDA)
Patient support for lysosomal storage diseases in Malaysia
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Make your donationAbout Malaysia Lysosomal Diseases Association (MLDA)
The Malaysia Lysosomal Diseases Association (MLDA) is a non-profit patient support organisation based in Seremban, Negeri Sembilan, dedicated to improving the lives of patients with Lysosomal Storage Diseases (LSDs). The association advocates for a sustainable healthcare system for LSD patients, raises awareness of the approximately 50 known lysosomal storage conditions, supports research into treatments and cures, and builds a community network for patients and their families.
Mission
To advocate for healthcare access, raise awareness, and support research for the approximately 50 lysosomal storage diseases affecting patients in Malaysia.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in MalaysiaConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
GiveRadar's verified records show Malaysia Lysosomal Diseases Association (MLDA) with a partial profile.
- GiveRadar holds a more complete profile for this organization than for 87% of the 141 health charities in Malaysia it tracks, because GiveRadar has verified its governance and its contact details. Most of those have little verified data on record yet. View this cohort
- It has more complete governance disclosure than nearly all similar organizations, because GiveRadar has verified leadership, a mission statement and a founding date. See national comparisons
- GiveRadar has not yet verified financial records for this organization, nor for any health charities in Malaysia - a gap in GiveRadar's dataset for the region, not a feature of this charity. Explore Malaysia data
- government registration
- disclosed leadership
- a website
- a contact email
- a donation page
- financial records
- third-party accreditation
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyMalaysia Lysosomal Diseases Association (MLDA) is a health nonprofit based in Seremban, Negeri Sembilan, Malaysia. GiveRadar lists it from public charity directories and does not hold an official government registration record for it. It was founded in 2011 and has been operating for 15 years. Its registration number is 2621-NSE. GiveRadar's Integrity Assessment for the organization is 46/100, which reflects how much public information is available, not whether the charity is legitimate. 7 officers and directors are publicly disclosed.
Malaysia Lysosomal Diseases Association (MLDA) has a GiveRadar Integrity Assessment of 46/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 46 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in Malaysia is 48/100.
Malaysia Lysosomal Diseases Association (MLDA) is located in Seremban, Negeri Sembilan, Malaysia. The organization was established in 2011 and has been active for 15 years.
Malaysia Lysosomal Diseases Association (MLDA) is classified as a Health organization, based in Malaysia. The organization has 7 disclosed officers and directors.
Malaysia Lysosomal Diseases Association (MLDA) is listed in GiveRadar's directory of Malaysia nonprofits, compiled from public charity directories. GiveRadar does not hold an official government registration record for it, so confirm its registration status directly before giving. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
The Malaysia Lysosomal Diseases Association (MLDA) is a non-profit patient support organisation based in Seremban, Negeri Sembilan, dedicated to improving the lives of patients with Lysosomal Storage Diseases (LSDs). The association advocates for a sustainable healthcare system for LSD patients, raises awareness of the approximately 50 known lysosomal storage conditions, supports research into treatments and cures, and builds a community network for patients and their families. Malaysia Lysosomal Diseases Association (MLDA) is a health organization based in Malaysia. The organization was founded in 2011.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of Malaysia under local rules. Confirm with the charity directly.
Malaysia Lysosomal Diseases Association (MLDA) is listed in Malaysia. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Malaysia Lysosomal Diseases Association (MLDA) is listed in Malaysia. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
Officers & trustees (7)
Source: Charity website (via AI extraction)
7 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
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How many charities work in each area, with this charity's area highlighted.
Most common causes in Malaysia
Causes charities work on most.
Sources and verification
- News and media coverage
- GDELT Project + Google News
Part of this profile's description was written with AI, summarizing public sources such as official registry data and the organization's own website. Financial figures, registration details, and the sources listed above are not AI-generated. Read how we use AI.
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Named leadership · 7 officers on file
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Founding date · 2011
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Financial dataNo annual financial filings on file
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Executive payTop-officer pay not disclosed
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Programs & activitiesNo named programs listed by the charity
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Tax-deductibilityNot verified
Methodology
GiveRadar builds each profile from official charity directories and public registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Malaysia Lysosomal Diseases Association (MLDA)
- What is Malaysia Lysosomal Diseases Association (MLDA)?
- Malaysia Lysosomal Diseases Association (MLDA) is a health nonprofit organization based in Seremban, Malaysia. The Malaysia Lysosomal Diseases Association (MLDA) is a non-profit patient support organisation based in Seremban, Negeri Sembilan, dedicated to improving the lives of patients with Lysosomal Storage Diseases (LSDs). The association advocates for a sustainable healthcare system for LSD patients, raises awareness of the approximately 50 known lysosomal storage conditions, supports research into treatments and cures, and builds a community network for patients and their families.
- When was Malaysia Lysosomal Diseases Association (MLDA) founded?
- Malaysia Lysosomal Diseases Association (MLDA) was founded in 2011.
- Where is Malaysia Lysosomal Diseases Association (MLDA) located?
- Headquartered in Seremban, Negeri Sembilan, Malaysia.
- Is Malaysia Lysosomal Diseases Association (MLDA) trustworthy?
- Malaysia Lysosomal Diseases Association (MLDA) has a GiveRadar Integrity Assessment of 46 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Malaysia Lysosomal Diseases Association (MLDA)'s registration number?
- Registration: 2621-NSE (Malaysia).
- What is Malaysia Lysosomal Diseases Association (MLDA)'s website?
- https://www.mymlda.com
- Are donations to Malaysia Lysosomal Diseases Association (MLDA) tax-deductible?
- Donations may be tax-deductible for residents of Malaysia under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.