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Myeloma UK

Edinburgh, Scotland Reg: SC026116 (Charity Commission) Sign up to see website
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Visit www.myeloma.org.uk
41
Integrity Assessment
Partial transparency
41/100 · methodology

About Myeloma UK

We are here to provide information and support to anyone affected by myeloma. Patients, families, friends, and carers can all draw on our information centre, support groups, discussion forums and Infoline for support when they need it. We invest in research that builds our knowledge of how myeloma develops and progresses. We do this to help everyone working in myeloma better understand and meet the needs of people living with myeloma and to help deliver change. We represent the voices of people affected by myeloma to government, the NHS and the wider healthcare sector to improve access to the latest treatments, remove barriers to prompt diagnosis, and improve the design and delivery of care. 'the advancement of education','the advancement of …

Founded
Headquarters
Edinburgh, Scotland
Foundation type
Charitable Company

Verified certifications

Confirmed against the issuing authority - not self-reported.

Good Fundraising Guarantee since 2026

Focus areas & reach

· What they work on and where

How it stacks up against peers

· vs. 8 similar education in United Kingdom
Program spending This charity: 67%
Peer average: 97%
Integrity Assessment This charity: 41
Peer average: 86

Concerns

· None found
No red flags found
Screened for Charity Commission removal, Open investigations, Governance scandals, Related-party deals, Excessive exec comp.

Where every £1 goes

· FY2024 · oscr (FY2024)
£0.67
£0.33
Program£0.67
Fundraising£0.33

GiveRadar Analysis

Original analysis from GiveRadar's dataset of comparable organizations

Based on the records currently verified by GiveRadar, Myeloma UK has a substantially complete profile, sourced from OSCR.

  • By reported annual revenue, it is larger than 92% of the 78,357 education charities in the United Kingdom with financial records on GiveRadar. See the filings
  • GiveRadar holds 5 years of financial filings for this organization, the most recent for fiscal year 2024. See the filings
  • Its integrity score of 41 is below most of the 87,708 education charities in the United Kingdom GiveRadar tracks. GiveRadar bases this on limited verified information so far, with little on record for its governance. Explore United Kingdom data
GiveRadar has verified
  • government registration
  • financial records (5 filed years)
  • a website
  • a contact email
Not yet verified by GiveRadar
  • leadership details (present for 78% of comparable organizations)
  • a donation page
  • third-party accreditation
  • an owner-submitted profile claim

Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.

Common questions

· Auto-generated from filings + methodology

Myeloma UK is a registered education nonprofit based in Edinburgh, Scotland, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 1997 and has been operating for 29 years. Its registration number is SC026116. GiveRadar's Integrity Assessment for the organization is 41/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £5M in annual revenue.

Myeloma UK's official registration number is SC026116, as recorded in the national registry of United Kingdom.

Myeloma UK has a GiveRadar Integrity Assessment of 41/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 41 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for education charities in United Kingdom is 86/100.

Myeloma UK is located in Edinburgh, Scotland, United Kingdom. The organization was established in 1997 and has been active for 29 years.

Based on official tax filings, Myeloma UK has £5M in annual revenue. It allocates 67% of expenses to programs and services. This is below the average of 97% for education charities in United Kingdom. Fundraising costs represent 33%. Its revenue is significantly above the peer average of £994K. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Myeloma UK is classified as an Education organization, registered in United Kingdom. It operates as a Charitable Company. It has £5M in annual revenue.

According to GiveRadar's records, Myeloma UK is registered with the Charity Commission for England and Wales and overseen by the Charity Commission. It reports that 67% of expenses go to programs (the peer average is 97%). GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

We are here to provide information and support to anyone affected by myeloma. Patients, families, friends, and carers can all draw on our information centre, support groups, discussion forums and Infoline for support when they need it. We invest in research that builds our knowledge of how myeloma develops and progresses. We do this to help everyone working in myeloma better understand and meet the needs of people living with myeloma and to help deliver change. We represent the voices of people affected by myeloma to government, the NHS and the wider healthcare sector to improve access to the latest treatments, remove barriers to prompt diagnosis, and improve the design... Myeloma UK is classified as an education organization registered in United Kingdom. The organization was founded in 1997.

Among education charities registered in United Kingdom: It allocates 67% of expenses to programs, below the peer average of 97%. Its annual revenue of £5M is well above the peer average of £994K.

Myeloma UK is a charitable company limited by guarantee, the most common incorporated form for UK charities. It is registered with both Companies House and the Charity Commission, and must file annual accounts with both regulators. Directors (who are also charity trustees) have limited liability. Its Charity Commission registration number is SC026116.

You can verify Myeloma UK in several ways. First, search the Charity Commission Register at https://register-of-charities.charitycommission.gov.uk/ - every charity registered in England and Wales appears here with its registration number, trustees, governing document, and filed accounts. Because this is a charitable company, you can also check its filings on Companies House (https://find-and-update.company-information.service.gov.uk/). Second, check whether the charity's annual return and accounts are up to date - the Commission flags charities with overdue filings. Third, look for the Fundraising Regulator badge on the charity's website, which signals voluntary compliance with the Code of Fundraising Practice.

Contact Myeloma UK directly for current donation methods. UK charities typically accept online card payments, direct debit, and bank transfer. Many also use platforms such as JustGiving or Charities Aid Foundation (CAF). If you are a UK taxpayer, make sure to tick the Gift Aid box: it lets the charity reclaim 25p from HMRC for every pound you give at no extra cost to you. Higher-rate taxpayers can claim back the difference between basic-rate and their marginal rate through Self Assessment. Payroll Giving (Give As You Earn) lets you donate pre-tax through your employer.

Donations to Myeloma UK are eligible for Gift Aid if you are a UK income-tax or capital-gains-tax payer. Gift Aid adds 25% to your donation at no cost to you (the charity reclaims basic-rate tax from HMRC). Higher-rate and additional-rate taxpayers can also claim back the difference through Self Assessment or by adjusting their PAYE tax code. Gifts of shares, property, or land to charity are free of Capital Gains Tax and can be deducted from your income for Income Tax purposes. Legacy gifts (in your will) reduce the value of your estate for Inheritance Tax and can lower the IHT rate from 40% to 36% if you leave at least 10% to charity.

Myeloma UK is based in Edinburgh in Scotland. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.

Myeloma UK was first registered in 1997, making it approximately 29 years old. UK charities must file an annual return with the Charity Commission to remain on the register. A long registration history generally indicates sustained operations and continuous regulatory compliance.

Annual revenue
£1M-£10M
67% to programs
Source: oscr (FY2024) why this matters
Unlock exact figures

Filing history

5 years on file from oscr (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2024, FY2023, FY2022, FY2021, FY2020.
Financial details are free - with a GiveRadar account

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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United Kingdom under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Staff & volunteers

From filings and published profiles

Employees
82
Still gathering leadership data

We check government filings and charity disclosures quarterly. If you represent this charity, claim this page to add officers directly.

Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
£5.5M revenue
FY2024
OSCR
Form filed
£5.2M revenue
FY2023
OSCR
Form filed
£5.2M revenue
FY2022
OSCR
Form filed
£4.5M revenue
FY2021
OSCR
Form filed
£4.7M revenue
FY2020
OSCR

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Cause areas in United Kingdom

How many charities work in each area, with this charity's area highlighted.

Education this charity 87,646
Health 28,382
Religion 22,146
Arts & Culture 21,802
Community Development 10,738
Environment 5,683
Social Services 4,899
Youth Development 4,637
See all cause areas in United Kingdom

Most common causes in United Kingdom

Causes charities work on most.

Education 54,780
Arts & Culture 17,729
Disability 17,106
Religion 16,671
Health 15,045
Poverty 14,062
Community Development 11,486
Cultural Heritage 8,526

Sources and verification

Registration and legal identity
Charity Commission for England and Wales - Register of Charities
Financial filings
Charity Commission annual returns - Fiscal year 2024 most recent on file.

Data freshness

Last updated
Jun 17, 2026
Registry checked
Jun 17, 2026
Profile completeness
75%

What we know and don't know

Exactly which public data we hold on this charity. Our score reflects transparency, not impact.

On record · 7
  • Financial data · FY2024 on record
  • Government registration · Registered with an official registry
  • Official website · On record
  • Headquarters address · On file
  • Direct contact · Email or phone published
  • Tax-deductibility · Verified
  • Founding date · 1997
Not available · 4
  • Named leadership
    Board and officer list not yet indexed
  • Executive pay
    Top-officer pay not disclosed
  • Mission statement
    No self-published statement of purpose
  • Programs & activities
    No named programs listed by the charity

Methodology

GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology

Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.

Quick facts about Myeloma UK

What is Myeloma UK?
Myeloma UK is a education charitable company based in Edinburgh, United Kingdom. We are here to provide information and support to anyone affected by myeloma. Patients, families, friends, and carers can all draw on our information centre, support groups, discussion forums and Infoline for support when they need it. We invest in research that builds our knowledge of how myeloma develops and progresses. We do this to help everyone working in myeloma better understand and meet the needs of people living with myeloma and to help deliver change. We represent the voices of people affected by myeloma to government, the NHS and the wider healthcare sector to improve access to the latest treatments, remove barriers to prompt diagnosis, and improve the design and delivery of care. 'the advancement of education','the advancement of health' The objects of the company shall be to promote in the UK and elsewhere in Europe the relief of sickness of persons suffering from multiple myeloma and related diseases
When was Myeloma UK founded?
Myeloma UK was founded in 1997.
Where is Myeloma UK located?
Headquartered in Edinburgh, Scotland, United Kingdom.
What is Myeloma UK's annual budget?
Annual revenue for fiscal year 2024 is approximately £1M-£10M. 67% of expenses go to program services.
Is Myeloma UK trustworthy?
Myeloma UK has a GiveRadar Integrity Assessment of 41 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Myeloma UK's registration number?
Registration: SC026116 (United Kingdom).
What is Myeloma UK's website?
https://www.myeloma.org.uk
Are donations to Myeloma UK tax-deductible?
Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.