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National Scleroderma Foundation

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Health Danvers, MA EIN: 521375827 (IRS) Sign up to see website
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90
Integrity Assessment
Strong transparency
90/100 · methodology

About National Scleroderma Foundation

Welcome to the National Scleroderma Foundation

Founded
Headquarters
Danvers, MA
Foundation type
Publicly-supported charity (509(a)(2))
NTEE code
H400
IRS subsection
501(c)(03)
Ruling date
Size
large

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 1985

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Focus areas & reach

· What they work on and where
❤️ Health · NTEE H400
Cause tags
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 63%
Peer average: 81%
CEO comp as % of revenue This charity: 3.41%
Peer average: 0.48%
Integrity Assessment This charity: 90
Peer average: 90

Concerns

· None found
No red flags found
Screened for IRS revocation history, Open investigations, Governance scandals, Related-party deals, Excessive exec comp.

Where every $1 goes

· FY2025 · IRS 990 (FY2025)
$0.63
Program$0.63

GiveRadar Analysis

Original analysis from GiveRadar's dataset of comparable organizations

Based on the records currently verified by GiveRadar, National Scleroderma Foundation has a complete profile, cross-referenced across 4 independent sources including the IRS.

  • GiveRadar has cross-referenced this organization across 4 independent sources, led by the IRS - more than 92% of comparable organizations. See the sources
  • GiveRadar holds 6 years of financial filings for this organization, the most recent for fiscal year 2025 - a deeper filing history than 91% of the 51,422 health charities in the United States with filings on record. See the filings
  • Its integrity score of 90 places it in the top 1% of the 98,862 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its governance. View this cohort
GiveRadar has verified
  • government registration
  • financial records (6 filed years)
  • disclosed leadership
  • a website
  • a contact email
  • a donation page
Not yet verified by GiveRadar
  • an owner-submitted profile claim

Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.

Common questions

· Auto-generated from filings + methodology

National Scleroderma Foundation is a registered health nonprofit based in Danvers, MA, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1993 and has been operating for 33 years. Its EIN is 521375827. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 90/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $7M in annual revenue. 76 officers and directors are publicly disclosed. No red flags have been detected.

National Scleroderma Foundation's EIN (Employer Identification Number) is 521375827. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.

National Scleroderma Foundation has a GiveRadar Integrity Assessment of 90/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 90 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.

National Scleroderma Foundation is located in Danvers, MA, United States. The organization was established in 1993 and has been active for 33 years.

Based on official tax filings, National Scleroderma Foundation has $7M in annual revenue. It allocates 63% of expenses to programs and services. This is below the average of 81% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

National Scleroderma Foundation is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a large organization. It has $7M in annual revenue. The organization has 76 disclosed officers and directors.

No red flags have been detected for National Scleroderma Foundation. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

According to GiveRadar's records, National Scleroderma Foundation holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 63% of expenses go to programs (the peer average is 81%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

Among health charities registered in United States: It allocates 63% of expenses to programs, below the peer average of 81%. Its annual revenue of $7M is below the peer average of $41M.

Yes, donations to National Scleroderma Foundation are generally tax-deductible in the United States. National Scleroderma Foundation is a 501(c)(3) tax-exempt organization. Its EIN is 521375827, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Annual revenue
$1M-$10M
63% to programs
Source: IRS 990 (FY2025) why this matters
Unlock exact figures

Filing history

6 years on file from IRS 990 (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2025, FY2024, FY2023, FY2022, FY2021, FY2020.
Financial details are free - with a GiveRadar account

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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Staff & volunteers

From filings and published profiles

Employees
33

Leadership

From FY2025 filing

MA
Mary J W••••••• I•• C••
Chief Executive Officer

Officers & trustees (25)

Source: Public filings

See full names, roles, and stories

25 officers and trustees on file - free with a GiveRadar account.

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Latest news

From global news sources

10 articles found

From news sources and the organization. Shown for transparency; news never affects the integrity score.

Activity timeline

Filings and press mentions, merged

Otsiningo Park to host Scleroderma fundraising walk - WBNG
Jun 2026
www.wbng.com
Annual scleroderma walk raises money, awareness to fight rare autoimmune disease - Yahoo
Jun 2026
www.yahoo.com
Spotlighting ‘Beacons of Hope’ for this year’s Scleroderma Awareness Month - Scleroderma News
May 2026
sclerodermanews.com
Form filed
$6.6M revenue
FY2025
IRS 990
New 3D tissue model offers hope for scleroderma treatment - News-Medical
Jul 2025
www.news-medical.net
Mequon names June National Scleroderma Awareness Month - GMToday.com
Jun 2025
www.gmtoday.com
Test Could Help Identify Patients at Risk for Severe Scleroderma - Yale School of Medicine
Apr 2025
medicine.yale.edu
MUSC Scleroderma Center Earns National Distinction for Excellence in Care and Research - Medical University of South Car
Mar 2025
www.musc.edu
Form filed
$4.9M revenue
FY2024
IRS 990
Form filed
$6.9M revenue
FY2023
IRS 990
Scleroderma Awareness Month – - National Today
Nov 2023
nationaltoday.com
Form filed
$4.6M revenue
FY2022
IRS 990
Balancing act: Reversing lung fibrosis in scleroderma requires increased antifibrotic proteins - Medical University of S
Sep 2022
www.musc.edu
Country Artist, Ashley Barron, Becomes The National Scleroderma Foundation's Celebrity Ambassador! - 24-7 Press Release
Apr 2022
www.24-7pressrelease.com
Form filed
$4.2M revenue
FY2021
IRS 990
Form filed
$3.8M revenue
FY2020
IRS 990

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Cause areas in United States

How many charities work in each area, with this charity's area highlighted.

Human Services 322,679
Education 195,586
Arts & Culture 133,128
Advocacy & Civil Rights 128,026
Religion 114,636
Health this charity 98,862
Community Development 56,086
Youth Development 53,450
See all cause areas in United States

Most common causes in United States

Causes charities work on most, with this charity's causes ticked.

Community Development 235,146
Education 159,016
Religion 103,741
Arts & Culture 101,203
Human Rights 76,926
Health 65,250
Youth Development 47,775
Animal Welfare 32,425

Sources and verification

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2025 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 76 disclosed in the public registry.
News and media coverage
GDELT Project + Google News
Supplementary verification
Charity Navigator

Data freshness

Last updated
Jun 12, 2026
Registry checked
Jun 6, 2026
Profile completeness
100%

What we know and don't know

Exactly which public data we hold on this charity. Our score reflects transparency, not impact.

On record · 10
  • Financial data · FY2025 on record
  • Named leadership · 76 officers on file
  • Executive pay · Disclosed
  • Government registration · Registered with an official registry
  • Mission statement · Published
  • Official website · On record
  • Headquarters address · On file
  • Direct contact · Email or phone published
  • Tax-deductibility · Verified
  • Founding date · 1993
Not available · 1
  • Programs & activities
    No named programs listed by the charity

Methodology

GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology

Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.

Quick facts about National Scleroderma Foundation

What is National Scleroderma Foundation?
National Scleroderma Foundation is a health publicly-supported charity (509(a)(2)) based in Danvers, United States. Welcome to the National Scleroderma Foundation
When was National Scleroderma Foundation founded?
National Scleroderma Foundation was founded in 1993.
Who leads National Scleroderma Foundation?
Mary J Wheatley Iom Cae serves as Chief Executive Officer.
Where is National Scleroderma Foundation located?
Headquartered in Danvers, MA, United States.
What is National Scleroderma Foundation's annual budget?
Annual revenue for fiscal year 2025 is approximately $1M-$10M. 63% of expenses go to program services.
Is National Scleroderma Foundation trustworthy?
National Scleroderma Foundation has a GiveRadar Integrity Assessment of 90 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is National Scleroderma Foundation's registration number?
IRS EIN: 521375827.
What is National Scleroderma Foundation's website?
http://www.scleroderma.org