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National Scleroderma Foundation

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Health Danvers, MA EIN 521375827 · IRS Sign up to see website
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89
Integrity Assessment
Strong transparency
89/100 · methodology

About National Scleroderma Foundation

Welcome to the National Scleroderma Foundation

Founded
Headquarters
Danvers, MA
Foundation type
Publicly-supported charity (509(a)(2))
NTEE code
H400
IRS subsection
501(c)(03)
Ruling date
Size
medium

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 1985

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Focus areas & reach

· What they work on and where
❤️ Health · NTEE H400
Cause tags

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 0%
Peer average: 24%
CEO comp as % of revenue This charity: 3.41%
Peer average: 0.48%
Integrity Assessment This charity: 89
Peer average: 90

Red flags

· All clear
IRS revocation history
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Common questions

· Auto-generated from filings + methodology

National Scleroderma Foundation is a registered health nonprofit based in Danvers, MA, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1993 and has been operating for 33 years. Its EIN is 521375827. It has a GiveRadar Integrity Assessment of 89/100 (Strong transparency), indicating well-documented governance, financials, and contact details. The organization reports $7M in annual revenue. 76 officers and directors are publicly disclosed. No red flags have been detected.

National Scleroderma Foundation has a GiveRadar Integrity Assessment of 89/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 89 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.

National Scleroderma Foundation is located in Danvers, MA, United States. The organization was established in 1993 and has been active for 33 years.

Based on official tax filings, National Scleroderma Foundation has $7M in annual revenue. Its revenue is below the peer average of $38M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

National Scleroderma Foundation is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a medium organization. It has $7M in annual revenue. The organization has 76 disclosed officers and directors.

No red flags have been detected for National Scleroderma Foundation. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

National Scleroderma Foundation has a GiveRadar Integrity Assessment of 89/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the IRS. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

Among health charities registered in United States: National Scleroderma Foundation's GiveRadar Integrity Assessment of 89/100 is in line with the peer average of 90/100. Its annual revenue of $7M is below the peer average of $38M.

Yes, donations to National Scleroderma Foundation are generally tax-deductible in the United States. National Scleroderma Foundation is a 501(c)(3) tax-exempt organization. Its EIN is 521375827, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Verified against 4 official sources, last refreshed .

Annual revenue
$1M-$10M
0% to programs
Source: IRS 990 (FY2025) why this matters
Unlock exact figures

Filing history

6 years on file from IRS 990 (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2025, FY2024, FY2023, FY2022, FY2021, FY2020.
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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

MA
Mary J Wheatley Iom Cae
Chief Executive Officer

Officers & trustees (25)

Source: Public filings

CA
Carol F••••••••••••••• P••
VICE CHAIR
CA
Carol F••••••••••••••• P• D
VICE CHAIR
CH
Christina L•••••
Director
CO
Cos M•••••••
Director
CO
Courtney C•••••••
Director
CY
Cyndy B••••••••••
Director
CY
Cyndy B•••••••••• C••
TREASURER
GR
Greg M•••••
TREASURER
JE
Jeanne T•••••••
Director
KE
Kerri C•••••••
NAT. DIRECTOR OF PROGRAMS & SERV.
KE
Kevin B•••••••••
CHAIR
LI
Linda B•••
Director
LI
Linda B•••••••• B••• O•
Director
MA
Marcia W•••••
Director
MA
Mark O•••••
Director
MA
Mark O••••• I•• M••
Director
MA
Mary B••• T••••••
Director
MA
Mary B•••••
Director
MA
Mary J W•••••••
CEO
MA
Mary J W••••••• I•• C••
Chief Executive Officer
MI
Michael B H•••
COO/CFO
MI
Michael P•••••
Director
MI
Mike L••••••••
SECRETARY
MI
Mike L•••••••• E••
SECRETARY
RO
Robert J R••••
CEO
Full names, contact details & compensation

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$6.6M revenue
FY2025
IRS_990
Form filed
$4.9M revenue
FY2024
IRS_990
Form filed
$6.9M revenue
FY2023
IRS_990
Form filed
$4.6M revenue
FY2022
IRS_990
Form filed
$4.2M revenue
FY2021
IRS_990
Form filed
$3.8M revenue
FY2020
IRS_990

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Peer charities

Other health in United States, by integrity assessment

Charity Score Revenue Program %
National Scleroderma Foundation This page 89 $6.6 million -
Dr Lorna Breen Heroes Foundation 93 $2.3 million 100%
Attune Center for Healing 93 $1.2 million 87%
Connections for Life 89 $2.8 million -
Dream on 3 89 $3.0 million -
Brain Injury Services Inc 89 $3.9 million 2%
Ellen Obrien Gaiser Addiction Center Inc 89 $4.8 million -
Center for Pranic Healing Inc 89 $1.8 million -
Community Blood Bank of Erie County 89 $8.1 million -

Sources and verification

Refreshed

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2025 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 76 disclosed in the public registry.
Supplementary verification
Charity Navigator

Data freshness

Last updated
May 27, 2026
Profile completeness
90%

What we don't know

Honest gaps - our score reflects transparency, not impact

Programs & projects
No named programs listed by the charity
Operating reach
Countries where programs run not specified

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about National Scleroderma Foundation

What is National Scleroderma Foundation?
National Scleroderma Foundation is a health publicly-supported charity (509(a)(2)) based in Danvers, United States. Welcome to the National Scleroderma Foundation
When was National Scleroderma Foundation founded?
National Scleroderma Foundation was founded in 1993.
Who leads National Scleroderma Foundation?
Mary J Wheatley Iom Cae serves as Chief Executive Officer.
Where is National Scleroderma Foundation located?
Headquartered in Danvers, United States.
What is National Scleroderma Foundation's annual budget?
Annual revenue for fiscal year 2025 is approximately $1M-$10M. 0% of expenses go to program services.
Is National Scleroderma Foundation trustworthy?
National Scleroderma Foundation has a GiveRadar Integrity Assessment of 89 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is National Scleroderma Foundation's registration number?
IRS EIN: 521375827.
What is National Scleroderma Foundation's website?
http://www.scleroderma.org