Smith-Kingsmore Syndrome Foundation
Fund research to better understand Smith-Kingsmore syndrome and find treatments to improve patient quality of life and, ultimately, a cure.
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Visit smithkingsmore.orgAbout Smith-Kingsmore Syndrome Foundation
Smith-Kingsmore Syndrome Foundation is a health organization based in CINCINNATI, United States. Annual revenue: $656K. 1% of spending goes directly to programs. EIN: 842913037.
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
Fund research to better understand Smith-Kingsmore syndrome and find treatments to improve patient quality of life and, ultimately, a cure.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesConcerns
· 1 red flagWhere every $1 goes
· FY2025 · IRS 990 (FY2025)GiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
Based on the records currently verified by GiveRadar, Smith-Kingsmore Syndrome Foundation has a complete profile, cross-referenced across 3 independent sources including the IRS.
- It has more complete governance disclosure than nearly all comparable organizations, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
- GiveRadar holds 4 years of financial filings for this organization, the most recent for fiscal year 2025. See the filings
- Its integrity score of 77 places it in the top 25% of the 98,862 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its governance. View this cohort
- government registration
- financial records (4 filed years)
- disclosed leadership
- a website
- third-party accreditation
- a contact email
- a donation page
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologySmith-Kingsmore Syndrome Foundation is a registered health nonprofit based in Cincinnati, OH, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2019 and has been operating for 7 years. Its EIN is 842913037. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 77/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $168K in annual revenue. 37 officers and directors are publicly disclosed. GiveRadar has identified 1 potential concern.
Smith-Kingsmore Syndrome Foundation's EIN (Employer Identification Number) is 842913037. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
Smith-Kingsmore Syndrome Foundation has a GiveRadar Integrity Assessment of 77/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 77 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.
Smith-Kingsmore Syndrome Foundation is located in Cincinnati, OH, United States. The organization was established in 2019 and has been active for 7 years.
Based on official tax filings, Smith-Kingsmore Syndrome Foundation has $168K in annual revenue. It allocates 70% of expenses to programs and services. This is below the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Smith-Kingsmore Syndrome Foundation is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $168K in annual revenue. The organization has 37 disclosed officers and directors.
GiveRadar has identified 1 potential concern for Smith-Kingsmore Syndrome Foundation. Red flags are automatically detected from official data and may include high executive compensation relative to budget, low program spending, or missing financial filings. Red flags do not necessarily mean wrongdoing but indicate areas that may warrant further review before donating.
According to GiveRadar's records, Smith-Kingsmore Syndrome Foundation holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 70% of expenses go to programs (the peer average is 89%). GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
Smith-Kingsmore Syndrome Foundation is a health organization based in CINCINNATI, United States. Annual revenue: $656K. 1% of spending goes directly to programs. EIN: 842913037. Smith-Kingsmore Syndrome Foundation is classified as a health organization registered in United States. The organization was founded in 2019.
Among health charities registered in United States: It allocates 70% of expenses to programs, below the peer average of 89%. Its annual revenue of $168K is below the peer average of $41M.
Yes, donations to Smith-Kingsmore Syndrome Foundation are generally tax-deductible in the United States. Smith-Kingsmore Syndrome Foundation is a 501(c)(3) tax-exempt organization. Its EIN is 842913037, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Filing history
4 years on file from IRS 990 (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
SMITH-KINGSMORE SYNDROME FOUNDATION is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Staff & volunteers
From filings and published profiles
Leadership
From FY2025 filing
Officers & trustees (9)
Source: Public filings
9 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
News coverage will appear here when articles mention this organization.
Activity timeline
Filings and press mentions, merged
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How many charities work in each area, with this charity's area highlighted.
Most common causes in United States
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2025 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 37 disclosed in the public registry.
- Supplementary verification
- Charity Navigator
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · FY2025 on record
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Named leadership · 37 officers on file
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Executive pay · Disclosed
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Tax-deductibility · Verified
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Founding date · 2019
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Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Smith-Kingsmore Syndrome Foundation
- What is Smith-Kingsmore Syndrome Foundation?
- Smith-Kingsmore Syndrome Foundation is a health publicly-supported charity (509(a)(2)) based in Cincinnati, United States. Smith-Kingsmore Syndrome Foundation is a health organization based in CINCINNATI, United States. Annual revenue: $656K. 1% of spending goes directly to programs. EIN: 842913037.
- When was Smith-Kingsmore Syndrome Foundation founded?
- Smith-Kingsmore Syndrome Foundation was founded in 2019.
- Who leads Smith-Kingsmore Syndrome Foundation?
- Sarah Lepore serves as President.
- Where is Smith-Kingsmore Syndrome Foundation located?
- Headquartered in Cincinnati, OH, United States.
- What is Smith-Kingsmore Syndrome Foundation's annual budget?
- Annual revenue for fiscal year 2025 is approximately $100K-$1M. 70% of expenses go to program services.
- Is Smith-Kingsmore Syndrome Foundation trustworthy?
- Smith-Kingsmore Syndrome Foundation has a GiveRadar Integrity Assessment of 77 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Smith-Kingsmore Syndrome Foundation's registration number?
- IRS EIN: 842913037.
- What is Smith-Kingsmore Syndrome Foundation's website?
- https://smithkingsmore.org