Charities Netherlands Science & Technology Stichting OverdrukSyndroom NL
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Stichting OverdrukSyndroom NL

De doelstelling van de stichting is om patiënten bij te staan in het informeren over overdruksyndroom en Tarlov-cysten, hen te begeleiden en bekendheid creëren onder het Nederlandse publiek …

Haaksbergen RSIN 858785730 · KVK Sign up to see website
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59
Integrity Assessment
Partial transparency
59/100 · methodology

About Stichting OverdrukSyndroom NL

SOSNL-BE Pressure Syndrome and Tarlov cysts are committed to research and treatment for overpressure syndrome & Tarlov cysts and are responsible for raising awareness of this severely disabled condition.

SOSNL-BE Overdruksyndroom en Tarlov-cysten zet zich in voor onderzoek en behandeling naar overdruksyndroom & Tarlov-cysten en zorgt voor meer bekendheid over deze ernstig invaliderende aandoening.

Translated from Dutch by GiveRadar.

Headquarters
Haaksbergen
Foundation type
Foundation (Stichting)

Verified certifications

Confirmed against the issuing authority - not self-reported.

ANBI

Mission

De doelstelling van de stichting is om patiënten bij te staan in het informeren over overdruksyndroom en Tarlov-cysten, hen te begeleiden en bekendheid creëren onder het Nederlandse publiek en fondsen/subsidies te werven om aan onderzoek bij te kunnen dragen,

Focus areas & reach

· What they work on and where
Science & Technology
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.
SDG 3 SDG 3 · Good Health and Well-being Ensure healthy lives and promote well-being for all at all ages.

How it stacks up against peers

· vs. 8 similar science & technology in Netherlands
Integrity Assessment This charity: 59
Peer average: 67

Red flags

· All clear
ANBI status revocation
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Common questions

· Auto-generated from filings + methodology

Stichting OverdrukSyndroom NL is a registered science & technology nonprofit based in Haaksbergen, Netherlands. It is registered with the Kamer van Koophandel (KVK). Its registration number is 858785730. It has a GiveRadar Integrity Assessment of 59/100 (Partial transparency), indicating some public data is available but key signals are missing.

Stichting OverdrukSyndroom NL has a GiveRadar Integrity Assessment of 59/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 59 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for science & technology charities in Netherlands is 67/100.

Stichting OverdrukSyndroom NL is located in Haaksbergen, Netherlands.

Stichting OverdrukSyndroom NL is classified as a Science & Technology organization, registered in Netherlands. It operates as a Stichting. The organization has 3 disclosed officers and directors.

Stichting OverdrukSyndroom NL has a GiveRadar Integrity Assessment of 59/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Dutch Tax Authority (Belastingdienst). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

SOSNL-BE Pressure Syndrome and Tarlov cysts are committed to research and treatment for overpressure syndrome & Tarlov cysts and are responsible for raising awareness of this severely disabled condition. Stichting OverdrukSyndroom NL is classified as a science & technology organization registered in Netherlands.

Among science & technology charities registered in Netherlands: Stichting OverdrukSyndroom NL's GiveRadar Integrity Assessment of 59/100 is in line with the peer average of 67/100.

Stichting OverdrukSyndroom NL is registered in the Netherlands. Stichting OverdrukSyndroom NL has ANBI (Algemeen Nut Beogende Instelling) status, so donations are tax-deductible. You can deduct gifts that exceed 1% of your threshold income (minimum 60 euros). Periodic gifts (committed for 5+ years) are fully deductible without threshold.

Stichting OverdrukSyndroom NL is a Dutch foundation (stichting) - the most common legal form for charities and public-benefit organisations in the Netherlands. A stichting has no members, is governed by a board, and is established by notarial deed for a specific purpose. It is the only Dutch legal form that can hold ANBI (public-benefit) status without member oversight. There are about 250,000 stichtingen on file at the Dutch Chamber of Commerce (KvK), of which roughly 50,000 hold ANBI status with the Belastingdienst. It is registered with the Kamer van Koophandel (KvK), the Dutch Chamber of Commerce, with RSIN 858785730.

You can verify Stichting OverdrukSyndroom NL's legal status in three ways. First, look up the RSIN directly on the Belastingdienst ANBI register: https://www.belastingdienst.nl/wps/wcm/connect/nl/aftrek-en-kortingen/content/anbi-status-controleren and enter 858785730. The result page confirms whether the organisation currently holds ANBI status - a prerequisite for tax-deductible donations in the Netherlands. Second, search the Kamer van Koophandel public registry at https://www.kvk.nl/zoeken/ - the KvK record shows the legal form (Stichting / Vereniging / Coöperatie), registered address, board composition (where disclosed), and the date of incorporation. Third, every ANBI is legally required by the publicatieplicht to publish on its own website: the policy plan, financial statements, an overview of activities, board composition, and remuneration policy. A working ANBI page with current financials is the strongest signal of legitimacy beyond the registry. If all three sources agree on name, address and ANBI status, the organisation is legitimate.

You can donate to Stichting OverdrukSyndroom NL directly through its donation page (https://sosnl.nl/doneren/). Dutch charities typically accept iDEAL (the standard Dutch online-banking payment method), Tikkie payment requests, Bancontact for cross-border donors, SEPA bank transfer to the organisation's IBAN (account numbers starting with NL), and online payment processors (Mollie, Stripe). Many larger Dutch charities use platforms like Geef.nl, GeefSamen, Kentaa, and Pifworld for online fundraising. International donors can give via SEPA (the Netherlands is in the eurozone, so intra-EU transfers are cheap), PayPal, or GlobalGiving. For donations to count as a 'periodieke gift' - fully tax-deductible without a threshold - a written agreement (overeenkomst periodieke gift) committing for at least five years is required. Always confirm the recipient's RSIN and ANBI status before sending funds intended for the tax deduction.

As an ANBI, Stichting OverdrukSyndroom NL is legally required to publish the following information on its own website, free of charge and without a login (the 'publicatieplicht' obligation under Uitvoeringsregeling AWR 1994 art. 1a): the policy plan, an overview of the past year's activities, the financial statements (balance sheet, profit-and-loss, explanatory notes), board composition with names, and the remuneration policy for directors and key staff. Larger ANBIs (turnover above €50,000) must also publish a fuller financial report using the Belastingdienst's standard ANBI publication form. If you cannot find these documents on the organisation's website, that is a red flag worth raising with the board before donating.

Verified against 3 official sources, last refreshed .

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Taxes

Tax-deductibility for donors

NL donations to Stichting OverdrukSyndroom NL are tax-deductible only if the charity holds an active ANBI registration (Algemeen Nut Beogende Instelling). Check the charity's ANBI status before claiming a deduction.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

JW
JW van der Veer
Secretary

Officers & trustees (3)

Source: Public filings

JW
JW v•• d•• V•••
Secretary
RD
RD t•• M•••
Treasurer
RJ
RJ d• B••• v•• d•• H••••
Chair
Full names, contact details & compensation

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Latest news

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Peer charities

Other science & technology in Netherlands, by integrity assessment

Charity Score Revenue Program %
Stichting OverdrukSyndroom NL This page 59 - -
Stichting ALS 69 €13.4 million 85%
Stichting Kiddy Goodpills 69 €177,667 84%
Stichting Free Press Unlimited 69 €23.2 million 94%
Stichting Prader-Willi Fonds 67 €51,276 86%
Stichting Vlinderkind 66 €568,157 66%
Stichting MS Research 66 €6.1 million 83%
Stichting De Noordzee 66 €2.7 million 88%
Nationaal MS Fonds 64 €4.9 million 83%

Sources and verification

Refreshed

Registration and legal identity
Belastingdienst (Dutch Tax Authority) and KVK
Officers and trustees
Belastingdienst (Dutch Tax Authority) and KVK - 3 disclosed in the public registry.
News and media coverage
GDELT Project + Google News

Data freshness

Last updated
May 18, 2026
Profile completeness
35%

What we don't know

Honest gaps - our score reflects transparency, not impact

Financial filings
No ANBI publication (publicatieplicht) on file
Executive compensation
Top-officer pay not disclosed
Programs & projects
No named programs listed by the charity
Operating reach
Countries where programs run not specified
Founding date
Year the organisation was founded not on file

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Stichting OverdrukSyndroom NL

What is Stichting OverdrukSyndroom NL?
Stichting OverdrukSyndroom NL is a science & technology foundation based in Haaksbergen, Netherlands. SOSNL-BE Pressure Syndrome and Tarlov cysts are committed to research and treatment for overpressure syndrome & Tarlov cysts and are responsible for raising awareness of this severely disabled condition.
Where is Stichting OverdrukSyndroom NL located?
Headquartered in Haaksbergen, Netherlands.
Is Stichting OverdrukSyndroom NL trustworthy?
Stichting OverdrukSyndroom NL has a GiveRadar Integrity Assessment of 59 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Stichting OverdrukSyndroom NL's registration number?
Registration: 858785730 (Netherlands).
What is Stichting OverdrukSyndroom NL's website?
https://sosnl.nl/
Are donations to Stichting OverdrukSyndroom NL tax-deductible?
Donations may be tax-deductible for residents of Netherlands under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.