Charities Netherlands Science & Technology Stichting ALS
Stichting ALS logo

Stichting ALS

Het vergroten van de beschikbare kennis van Amyotrophische Laterale Sclerose (A.L.S.) door het stimuleren van wetenschappelijk onderzoek, zowel fundamenteel als toegepast, met name gericht op de oorzaak en …

Utrecht RSIN 814186099 · KVK Sign up to see website
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69
Integrity Assessment
Partial transparency
69/100 · methodology

About Stichting ALS

Stichting ALS Nederland raises funds for research into the fatal nervous/muscle disease ALS and related diseases PSMA and PLS.

Stichting ALS Nederland werft fondsen voor onderzoek naar de dodelijke zenuw-/spierziekte ALS en de aanverwante ziekten PSMA en PLS.

Translated from Dutch by GiveRadar.

Headquarters
Utrecht
Foundation type
Foundation (Stichting)
Size
large

Verified certifications

Confirmed against the issuing authority - not self-reported.

ANBI
CBF-Erkend Goed Doel sinds 2009

Mission

Het vergroten van de beschikbare kennis van Amyotrophische Laterale Sclerose (A.L.S.) door het stimuleren van wetenschappelijk onderzoek, zowel fundamenteel als toegepast, met name gericht op de oorzaak en preventie van A.L.S. en voorts op de behandeling en de revalidatie van de A.L.S.-patiënten.

Focus areas & reach

· What they work on and where
Science & Technology
Cause tags
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.
SDG 3 SDG 3 · Good Health and Well-being Ensure healthy lives and promote well-being for all at all ages. SDG 6 SDG 6 · Clean Water and Sanitation Ensure availability and sustainable management of water and sanitation for all.

How it stacks up against peers

· vs. 8 similar science & technology in Netherlands
Program spending This charity: 85%
Peer average: 83%
Overhead (admin + fundraising) This charity: 15%
Peer average: 17%
Integrity Assessment This charity: 69
Peer average: 66

Red flags

· All clear
ANBI status revocation
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Where every €1 goes

€0.85
€0.14
Program expenses€0.85 (€10.3 million)
Administration€0.02 (€202,717)
Fundraising€0.14 (€1.6 million)
85% to programs beats the peer average (83%) and beats the Charity Navigator "highly efficient" threshold (75%).

Common questions

· Auto-generated from filings + methodology

Stichting ALS is a registered science & technology nonprofit based in Utrecht, Netherlands. It is registered with the Kamer van Koophandel (KVK). Its registration number is 814186099. It has a GiveRadar Integrity Assessment of 69/100 (Partial transparency), indicating some public data is available but key signals are missing. This is above the average of 66/100 for science & technology charities in Netherlands. The organization reports €13M in annual revenue. 8 officers and directors are publicly disclosed. No red flags have been detected.

Stichting ALS has a GiveRadar Integrity Assessment of 69/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 69 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. The charity allocates 85% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for science & technology charities in Netherlands is 66/100.

Stichting ALS is located in Utrecht, Netherlands. Its registered address is Koninginnegracht 73e verdieping, 2514 AA Den Haag, the Netherlands.

Based on official tax filings, Stichting ALS has €13M in annual revenue. It allocates 85% of expenses to programs and services. This is in line with the average of 83% for science & technology charities in Netherlands. Administrative costs account for 2% of expenses. Fundraising costs represent 14%. Its revenue is significantly above the peer average of €4M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Stichting ALS is classified as a Science & Technology organization, registered in Netherlands. It operates as a Stichting. By size, it is categorized as a large organization. It has €13M in annual revenue. The organization has 8 disclosed officers and directors.

No red flags have been detected for Stichting ALS. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

Stichting ALS has a GiveRadar Integrity Assessment of 69/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Dutch Tax Authority (Belastingdienst). 85% of expenses go to programs. The peer average is 83%. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

Stichting ALS Nederland raises funds for research into the fatal nervous/muscle disease ALS and related diseases PSMA and PLS. Stichting ALS is classified as a science & technology organization registered in Netherlands.

Among science & technology charities registered in Netherlands: Stichting ALS's GiveRadar Integrity Assessment of 69/100 is above the peer average of 66/100. It allocates 85% of expenses to programs, in line with the peer average of 83%. Its annual revenue of €13M is well above the peer average of €4M.

Stichting ALS is registered in the Netherlands. Stichting ALS has ANBI (Algemeen Nut Beogende Instelling) status, so donations are tax-deductible. You can deduct gifts that exceed 1% of your threshold income (minimum 60 euros). Periodic gifts (committed for 5+ years) are fully deductible without threshold.

Stichting ALS is a Dutch foundation (stichting) - the most common legal form for charities and public-benefit organisations in the Netherlands. A stichting has no members, is governed by a board, and is established by notarial deed for a specific purpose. It is the only Dutch legal form that can hold ANBI (public-benefit) status without member oversight. There are about 250,000 stichtingen on file at the Dutch Chamber of Commerce (KvK), of which roughly 50,000 hold ANBI status with the Belastingdienst. It is registered with the Kamer van Koophandel (KvK), the Dutch Chamber of Commerce, with RSIN 814186099.

You can verify Stichting ALS's legal status in three ways. First, look up the RSIN directly on the Belastingdienst ANBI register: https://www.belastingdienst.nl/wps/wcm/connect/nl/aftrek-en-kortingen/content/anbi-status-controleren and enter 814186099. The result page confirms whether the organisation currently holds ANBI status - a prerequisite for tax-deductible donations in the Netherlands. Second, search the Kamer van Koophandel public registry at https://www.kvk.nl/zoeken/ - the KvK record shows the legal form (Stichting / Vereniging / Coöperatie), registered address, board composition (where disclosed), and the date of incorporation. Third, every ANBI is legally required by the publicatieplicht to publish on its own website: the policy plan, financial statements, an overview of activities, board composition, and remuneration policy. A working ANBI page with current financials is the strongest signal of legitimacy beyond the registry. If all three sources agree on name, address and ANBI status, the organisation is legitimate.

You can donate to Stichting ALS directly through its donation page (https://www.als.nl/doneren/). Dutch charities typically accept iDEAL (the standard Dutch online-banking payment method), Tikkie payment requests, Bancontact for cross-border donors, SEPA bank transfer to the organisation's IBAN (account numbers starting with NL), and online payment processors (Mollie, Stripe). Many larger Dutch charities use platforms like Geef.nl, GeefSamen, Kentaa, and Pifworld for online fundraising. International donors can give via SEPA (the Netherlands is in the eurozone, so intra-EU transfers are cheap), PayPal, or GlobalGiving. For donations to count as a 'periodieke gift' - fully tax-deductible without a threshold - a written agreement (overeenkomst periodieke gift) committing for at least five years is required. Always confirm the recipient's RSIN and ANBI status before sending funds intended for the tax deduction.

Stichting ALS carries the CBF-Erkend Goed Doel label - the Dutch quality seal awarded by the Centraal Bureau Fondsenwerving (CBF). To qualify, a charity passes a three-yearly independent audit covering governance (separation of board, oversight, and management), financial transparency (audited annual accounts, clear expense breakdown), effective use of donations, responsible fundraising practices, and a working complaints procedure. You can read the public 'CBF-paspoort' for Stichting ALS here: https://cbf.nl/organisaties/796. The passport shows the most recent audit outcome and the headline financial ratios.

As an ANBI, Stichting ALS is legally required to publish the following information on its own website, free of charge and without a login (the 'publicatieplicht' obligation under Uitvoeringsregeling AWR 1994 art. 1a): the policy plan, an overview of the past year's activities, the financial statements (balance sheet, profit-and-loss, explanatory notes), board composition with names, and the remuneration policy for directors and key staff. Larger ANBIs (turnover above €50,000) must also publish a fuller financial report using the Belastingdienst's standard ANBI publication form. If you cannot find these documents on the organisation's website, that is a red flag worth raising with the board before donating.

Verified against 4 official sources, last refreshed .

Annual revenue
€10M-€100M
85% to programs
Source: cbf (FY2024) why this matters
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Filing history

1 year on file from cbf (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2024.
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Taxes

Tax-deductibility for donors

NL donations to Stichting ALS are tax-deductible only if the charity holds an active ANBI registration (Algemeen Nut Beogende Instelling). Check the charity's ANBI status before claiming a deduction.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

A.
A. Bramsen
Board Member

Officers & trustees (8)

Source: Public filings

A.
A. B••••••
Board Member
C.
C. A•••••••
Board Member
G.
G.J. B••••
Chair
I.
I. Z•••
Board Member
J.
J. K••••
Board Member
L.
L. S•••••••
Board Member
M.
M. S•••••••••
Board Member
R.
R. D••••••••••
Secretary
Full names, contact details & compensation

Free with an account.

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Latest news

From global news sources

10 articles found

From global news sources

Sentiment

Neutral

Activity timeline

Filings and press mentions, merged

Uitzending ’Carrie op vrijdag’ in allerijl offline gehaald: ’Gast blijkt betrokken bij omkoping en misbruik’ - De Telegr
May 2026
www.telegraaf.nl
Perkplantendag voor stichting ALS op De Kilsdonkse Molen - Mooi Bernheze
Apr 2026
www.mooibernheze.nl
Stichting Ecovrede dreigt Arnhemse locatie te verliezen: "Dit is onhaalbaar en onmenselijk" - RTV Connect
Apr 2026
www.rtvconnect.nl
Nabestaandendag - Stichting ALS Nederland
Apr 2026
www.als.nl
TriALSlon - Stichting ALS Nederland
Apr 2026
www.als.nl
Rotterdamse strijd op het water voor zenuw/spierziekte ALS - Stichting ALS Nederland
Apr 2026
www.als.nl
Meer genen ontdekt die ALS kunnen veroorzaken - Stichting ALS Nederland
Mar 2026
www.als.nl
Win een ticket voor de Nijmeegse Vierdaagse 2026 - Stichting ALS Nederland
Mar 2026
www.als.nl
Recordopbrengst ruim €1,65 miljoen jubileumeditie ALS Sunrise Walk - Stichting ALS Nederland
Mar 2026
www.als.nl
Frank’s PEDALS Fellowship voor onderzoeker Wouter van Rheenen - Stichting ALS Nederland
Mar 2026
www.als.nl
Form filed
€13.4M revenue
FY2024
CBF

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Peer charities

Other science & technology in Netherlands, by integrity assessment

Charity Score Revenue Program %
Stichting ALS This page 69 €13.4 million 85%
Stichting Kiddy Goodpills 69 €177,667 84%
Stichting Free Press Unlimited 69 €23.2 million 94%
Stichting Prader-Willi Fonds 67 €51,276 86%
Stichting Vlinderkind 66 €568,157 66%
Stichting MS Research 66 €6.1 million 83%
Stichting De Noordzee 66 €2.7 million 88%
Nationaal MS Fonds 64 €4.9 million 83%
Stichting Hulp na Onderzoek 62 - -

Sources and verification

Refreshed

Registration and legal identity
Belastingdienst (Dutch Tax Authority) and KVK
Financial filings
Belastingdienst ANBI publication standard - Fiscal year 2024 most recent on file.
Officers and trustees
Belastingdienst (Dutch Tax Authority) and KVK - 8 disclosed in the public registry.
News and media coverage
GDELT Project + Google News

Data freshness

Last updated
May 18, 2026
Profile completeness
85%

What we don't know

Honest gaps - our score reflects transparency, not impact

Executive compensation
Top-officer pay not disclosed
Programs & projects
No named programs listed by the charity
Operating reach
Countries where programs run not specified
Founding date
Year the organisation was founded not on file

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Stichting ALS

What is Stichting ALS?
Stichting ALS is a science & technology foundation based in Utrecht, Netherlands. Stichting ALS Nederland raises funds for research into the fatal nervous/muscle disease ALS and related diseases PSMA and PLS.
Where is Stichting ALS located?
Headquartered in Utrecht, Netherlands.
What is Stichting ALS's annual budget?
Annual revenue for fiscal year 2024 is approximately €10M-€100M. 85% of expenses go to program services.
Is Stichting ALS trustworthy?
Stichting ALS has a GiveRadar Integrity Assessment of 69 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Stichting ALS's registration number?
Registration: 814186099 (Netherlands).
What is Stichting ALS's website?
http://www.stichting-als.nl
Are donations to Stichting ALS tax-deductible?
Donations may be tax-deductible for residents of Netherlands under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.