United Msd Foundation
Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase deficiency (msd)
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Multiple Sulfatase Deficiency (MSD) is a genetic, rare and fatal condition that is extremely progressive, similar in effect to Alzheimer's or Parkinson's - but in children. Since United MSD Foundation's creation in 2016, advancements in gene therapy research have been made as we aggressively move closer to a cure.
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase deficiency (msd)
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesConcerns
· None foundWhere every $1 goes
· FY2024 · IRS 990 (FY2024)GiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
From what GiveRadar has verified so far, United Msd Foundation has a complete profile, sourced from the IRS.
- It has more complete contact information than nearly all comparable charities, with a verified website, email, phone and address on record. See national comparisons
- It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
- Its integrity score of 76 places it in the top 25% of the 98,862 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyUnited Msd Foundation is a registered health nonprofit based in Biloxi, MS, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2016 and has been operating for 10 years. Its EIN is 813669443. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 76/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $331K in annual revenue. 52 officers and directors are publicly disclosed. No red flags have been detected.
United Msd Foundation's EIN (Employer Identification Number) is 813669443. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
United Msd Foundation has a GiveRadar Integrity Assessment of 76/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 76 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.
United Msd Foundation is located in Biloxi, MS, United States. The organization was established in 2016 and has been active for 10 years.
Based on official tax filings, United Msd Foundation has $331K in annual revenue. It allocates 67% of expenses to programs and services. This is below the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
United Msd Foundation is classified as a Health organization, registered in United States. It operates as a Supporting organization (509(a)(3)). By size, it is categorized as a small organization. It has $331K in annual revenue. The organization has 52 disclosed officers and directors.
No red flags have been detected for United Msd Foundation. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.
According to GiveRadar's records, United Msd Foundation holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 67% of expenses go to programs (the peer average is 89%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
Multiple Sulfatase Deficiency (MSD) is a genetic, rare and fatal condition that is extremely progressive, similar in effect to Alzheimer's or Parkinson's - but in children. Since United MSD Foundation's creation in 2016, advancements in gene therapy research have been made as we aggressively move closer to a cure. United Msd Foundation is classified as a health organization registered in United States. The organization was founded in 2016.
Among health charities registered in United States: It allocates 67% of expenses to programs, below the peer average of 89%. Its annual revenue of $331K is below the peer average of $41M.
Yes, donations to United Msd Foundation are generally tax-deductible in the United States. United Msd Foundation is a 501(c)(3) tax-exempt organization. Its EIN is 813669443, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Filing history
5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
UNITED MSD FOUNDATION is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Staff & volunteers
From filings and published profiles
Leadership
From FY2024 filing
Officers & trustees (19)
Source: Public filings
19 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
News coverage will appear here when articles mention this organization.
Activity timeline
Filings and press mentions, merged
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How many charities work in each area, with this charity's area highlighted.
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Sources and verification
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2024 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 52 disclosed in the public registry.
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · FY2024 on record
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Named leadership · 52 officers on file
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Tax-deductibility · Verified
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Founding date · 2016
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Executive payTop-officer pay not disclosed
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Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about United Msd Foundation
- What is United Msd Foundation?
- United Msd Foundation is a health supporting organization (509(a)(3)) based in Biloxi, United States. Multiple Sulfatase Deficiency (MSD) is a genetic, rare and fatal condition that is extremely progressive, similar in effect to Alzheimer's or Parkinson's - but in children. Since United MSD Foundation's creation in 2016, advancements in gene therapy research have been made as we aggressively move closer to a cure.
- When was United Msd Foundation founded?
- United Msd Foundation was founded in 2016.
- Who leads United Msd Foundation?
- Sarah Cortell Vandersypen serves as Executive Director.
- Where is United Msd Foundation located?
- Headquartered in Biloxi, MS, United States.
- What is United Msd Foundation's annual budget?
- Annual revenue for fiscal year 2024 is approximately $100K-$1M. 67% of expenses go to program services.
- Is United Msd Foundation trustworthy?
- United Msd Foundation has a GiveRadar Integrity Assessment of 76 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is United Msd Foundation's registration number?
- IRS EIN: 813669443. Registration: 81-3669443 (United States).
- What is United Msd Foundation's website?
- http://www.curemsd.org