Xeroderma Pigmentosum Family Support Group
To improve the quality of life of those persons with xeroderma pigmentosum and other diagnosed ultraviolet light sensitive conditions by providing support, ultraviolet protective equipment and other assistance.
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Make your donationAbout Xeroderma Pigmentosum Family Support Group
For 20+ years, XP Family Support Group has focused on empowering and connecting XP patients, caregivers, and communities. Helping to foster understanding, resilience, and hope in navigating the challenges associated with this rare genetic condition. Together, we aim to promote awareness, advocate for improved access to care, and ultimately enhance the quality of life for those impacted by XP.
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
To improve the quality of life of those persons with xeroderma pigmentosum and other diagnosed ultraviolet light sensitive conditions by providing support, ultraviolet protective equipment and other assistance.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesConcerns
· 1 red flagWhere every $1 goes
· FY2024 · IRS 990 (FY2024)GiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
From what GiveRadar has verified so far, Xeroderma Pigmentosum Family Support Group has a complete profile, sourced from the IRS.
- It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
- GiveRadar holds 5 years of financial filings for this organization, the most recent for fiscal year 2024. See the filings
- GiveRadar's profile for Xeroderma Pigmentosum Family Support Group draws on its financial disclosures and its governance, in line with the typical health charities in the United States it tracks. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a donation page
- third-party accreditation
- a contact email
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyXeroderma Pigmentosum Family Support Group is a registered health nonprofit based in Elk Grove, CA, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2005 and has been operating for 21 years. Its EIN is 593824809. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 71/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $85K in annual revenue. 43 officers and directors are publicly disclosed. GiveRadar has identified 1 potential concern.
Xeroderma Pigmentosum Family Support Group's EIN (Employer Identification Number) is 593824809. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
Xeroderma Pigmentosum Family Support Group has a GiveRadar Integrity Assessment of 71/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 71 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 93% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for health charities in United States is 90/100.
Xeroderma Pigmentosum Family Support Group is located in Elk Grove, CA, United States. The organization was established in 2005 and has been active for 21 years.
Based on official tax filings, Xeroderma Pigmentosum Family Support Group has $85K in annual revenue. It allocates 93% of expenses to programs and services. This is in line with the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Xeroderma Pigmentosum Family Support Group is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $85K in annual revenue. The organization has 43 disclosed officers and directors.
GiveRadar has identified 1 potential concern for Xeroderma Pigmentosum Family Support Group. Red flags are automatically detected from official data and may include high executive compensation relative to budget, low program spending, or missing financial filings. Red flags do not necessarily mean wrongdoing but indicate areas that may warrant further review before donating.
According to GiveRadar's records, Xeroderma Pigmentosum Family Support Group holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 93% of expenses go to programs (the peer average is 89%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
For 20+ years, XP Family Support Group has focused on empowering and connecting XP patients, caregivers, and communities. Helping to foster understanding, resilience, and hope in navigating the challenges associated with this rare genetic condition. Together, we aim to promote awareness, advocate for improved access to care, and ultimately enhance the quality of life for those impacted by XP. Xeroderma Pigmentosum Family Support Group is classified as a health organization registered in United States. The organization was founded in 2005.
Among health charities registered in United States: It allocates 93% of expenses to programs, in line with the peer average of 89%. Its annual revenue of $85K is below the peer average of $41M.
Yes, donations to Xeroderma Pigmentosum Family Support Group are generally tax-deductible in the United States. Xeroderma Pigmentosum Family Support Group is a 501(c)(3) tax-exempt organization. Its EIN is 593824809, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Filing history
5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Staff & volunteers
From filings and published profiles
Leadership
From FY2024 filing
Officers & trustees (13)
Source: Public filings
13 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
News coverage will appear here when articles mention this organization.
Activity timeline
Filings and press mentions, merged
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How many charities work in each area, with this charity's area highlighted.
Most common causes in United States
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2024 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 43 disclosed in the public registry.
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · FY2024 on record
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Named leadership · 43 officers on file
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Executive pay · Disclosed
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Tax-deductibility · Verified
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Founding date · 2005
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Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Xeroderma Pigmentosum Family Support Group
- What is Xeroderma Pigmentosum Family Support Group?
- Xeroderma Pigmentosum Family Support Group is a health publicly-supported charity (509(a)(2)) based in Elk Grove, United States. For 20+ years, XP Family Support Group has focused on empowering and connecting XP patients, caregivers, and communities. Helping to foster understanding, resilience, and hope in navigating the challenges associated with this rare genetic condition. Together, we aim to promote awareness, advocate for improved access to care, and ultimately enhance the quality of life for those impacted by XP.
- When was Xeroderma Pigmentosum Family Support Group founded?
- Xeroderma Pigmentosum Family Support Group was founded in 2005.
- Who leads Xeroderma Pigmentosum Family Support Group?
- Todd Feltner serves as Chair.
- Where is Xeroderma Pigmentosum Family Support Group located?
- Headquartered in Elk Grove, CA, United States.
- What is Xeroderma Pigmentosum Family Support Group's annual budget?
- Annual revenue for fiscal year 2024 is approximately $10K-$100K. 93% of expenses go to program services.
- Is Xeroderma Pigmentosum Family Support Group trustworthy?
- Xeroderma Pigmentosum Family Support Group has a GiveRadar Integrity Assessment of 71 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Xeroderma Pigmentosum Family Support Group's registration number?
- IRS EIN: 593824809.
- What is Xeroderma Pigmentosum Family Support Group's website?
- http://xpfamilysupport.org