Yaya Foundation for 4h Leukodystrophy
Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people …
GiveRadar doesn't take a cut. Donate directly on their site.
Make your donationAbout Yaya Foundation for 4h Leukodystrophy
Yaya Foundation for 4h Leukodystrophy is a health organization based in MINNEAPOLIS, United States. Annual revenue: $403K. 2% of spending goes directly to programs. EIN: 823888108.
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesConcerns
· 1 red flagWhere every $1 goes
· FY2024 · IRS 990 (FY2024)GiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
GiveRadar's verified records show Yaya Foundation for 4h Leukodystrophy with a complete profile, cross-referenced across 3 independent sources including the IRS.
- It has more complete governance disclosure than nearly all similar organizations, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
- GiveRadar holds 5 years of financial filings for this organization, the most recent for fiscal year 2024. See the filings
- GiveRadar's profile for Yaya Foundation for 4h Leukodystrophy draws on its financial disclosures and its governance, in line with the typical health charities in the United States it tracks. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a donation page
- third-party accreditation
- a contact email
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyYaya Foundation for 4h Leukodystrophy is a registered health nonprofit based in Minneapolis, MN, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2017 and has been operating for 9 years. Its EIN is 823888108. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 67/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $284K in annual revenue. 50 officers and directors are publicly disclosed. GiveRadar has identified 1 potential concern.
Yaya Foundation for 4h Leukodystrophy's EIN (Employer Identification Number) is 823888108. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
Yaya Foundation for 4h Leukodystrophy has a GiveRadar Integrity Assessment of 67/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 67 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in United States is 90/100.
Yaya Foundation for 4h Leukodystrophy is located in Minneapolis, MN, United States. The organization was established in 2017 and has been active for 9 years.
Based on official tax filings, Yaya Foundation for 4h Leukodystrophy has $284K in annual revenue. It allocates 50% of expenses to programs and services. This is below the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Yaya Foundation for 4h Leukodystrophy is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $284K in annual revenue. The organization has 50 disclosed officers and directors.
GiveRadar has identified 1 potential concern for Yaya Foundation for 4h Leukodystrophy. Red flags are automatically detected from official data and may include high executive compensation relative to budget, low program spending, or missing financial filings. Red flags do not necessarily mean wrongdoing but indicate areas that may warrant further review before donating.
According to GiveRadar's records, Yaya Foundation for 4h Leukodystrophy holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 50% of expenses go to programs (the peer average is 89%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
Yaya Foundation for 4h Leukodystrophy is a health organization based in MINNEAPOLIS, United States. Annual revenue: $403K. 2% of spending goes directly to programs. EIN: 823888108. Yaya Foundation for 4h Leukodystrophy is classified as a health organization registered in United States. The organization was founded in 2017.
Among health charities registered in United States: It allocates 50% of expenses to programs, below the peer average of 89%. Its annual revenue of $284K is below the peer average of $41M.
Yes, donations to Yaya Foundation for 4h Leukodystrophy are generally tax-deductible in the United States. Yaya Foundation for 4h Leukodystrophy is a 501(c)(3) tax-exempt organization. Its EIN is 823888108, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Filing history
5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
Sign up to viewTaxes
Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
YAYA FOUNDATION FOR 4H LEUKODYSTROPHY is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Staff & volunteers
From filings and published profiles
Leadership
From FY2024 filing
Officers & trustees (13)
Source: Public filings
13 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
News coverage will appear here when articles mention this organization.
Activity timeline
Filings and press mentions, merged
No reviews yet. Be the first to share your experience.
Have you donated or volunteered here?
Share your experience - it takes 30 seconds. Verified reviews help other donors decide.
Sign up to write a reviewCause areas in United States
How many charities work in each area, with this charity's area highlighted.
Most common causes in United States
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2024 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 50 disclosed in the public registry.
- Supplementary verification
- Charity Navigator
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
-
Financial data · FY2024 on record
-
Named leadership · 50 officers on file
-
Executive pay · Disclosed
-
Government registration · Registered with an official registry
-
Mission statement · Published
-
Official website · On record
-
Headquarters address · On file
-
Direct contact · Email or phone published
-
Tax-deductibility · Verified
-
Founding date · 2017
-
Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
Read full methodologyAre you the owner or a board member?
If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.
Report an issue
Tell us what's wrong with this charity's page. We review every report and typically reply within 2 business days.
Report sent
Thanks for flagging this. Our team will review it.
Press Esc to close
Save Yaya Foundation for 4h Leukodystro…?
Create a free GiveRadar account to save charities and track them in your dashboard.
Quick facts about Yaya Foundation for 4h Leukodystrophy
- What is Yaya Foundation for 4h Leukodystrophy?
- Yaya Foundation for 4h Leukodystrophy is a health publicly-supported charity (509(a)(2)) based in Minneapolis, United States. Yaya Foundation for 4h Leukodystrophy is a health organization based in MINNEAPOLIS, United States. Annual revenue: $403K. 2% of spending goes directly to programs. EIN: 823888108.
- When was Yaya Foundation for 4h Leukodystrophy founded?
- Yaya Foundation for 4h Leukodystrophy was founded in 2017.
- Who leads Yaya Foundation for 4h Leukodystrophy?
- Ron Garber serves as Secretary And Chair.
- Where is Yaya Foundation for 4h Leukodystrophy located?
- Headquartered in Minneapolis, MN, United States.
- What is Yaya Foundation for 4h Leukodystrophy's annual budget?
- Annual revenue for fiscal year 2024 is approximately $100K-$1M. 50% of expenses go to program services.
- Is Yaya Foundation for 4h Leukodystrophy trustworthy?
- Yaya Foundation for 4h Leukodystrophy has a GiveRadar Integrity Assessment of 67 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Yaya Foundation for 4h Leukodystrophy's registration number?
- IRS EIN: 823888108. Registration: 82-3888108 (United States).
- What is Yaya Foundation for 4h Leukodystrophy's website?
- http://www.yayafoundation4hl.org