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Acromegaly Community Inc

CONFERENCE TO EDUCATE THE PUBLIC AND SUPPORT RESEARCH REGARDING THE MEDICAL CONDITION KNOWN AS ACROMEGALY.

Health Williamsville, NY EIN: 272116493 (IRS) Sign up to see website
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70
Integrity Assessment
Strong transparency
70/100 · methodology

About Acromegaly Community Inc

Conference to educate the public and support research regarding the medical condition known as acromegaly.

Founded
Headquarters
Williamsville, NY
Foundation type
Publicly-supported charity (509(a)(2))
NTEE code
G018
IRS subsection
501(c)(03)
Ruling date
Size
small

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 2010

Mission

Conference to educate the public and support research regarding the medical condition known as acromegaly.

Focus areas & reach

· What they work on and where
❤️ Health · NTEE G018
Cause tags
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 97%
Peer average: 89%
CEO comp as % of revenue This charity: 19.03%
Peer average: 0.48%
Integrity Assessment This charity: 70
Peer average: 90

Concerns

· 1 red flag
High Executive Pay
Top executive compensation is 26.0% of total expenses ($59,542 of $229,388).

Where every $1 goes

· FY2024 · IRS 990 (FY2024)
$0.97
Program$0.97
97% to programs beats the peer average (89%) and beats the Charity Navigator "highly efficient" threshold (75%).

GiveRadar Analysis

Original analysis from GiveRadar's dataset of comparable organizations

Based on the records currently verified by GiveRadar, Acromegaly Community Inc has a complete profile, cross-referenced across 4 independent sources including the IRS.

  • GiveRadar has cross-referenced this organization across 4 independent sources, led by the IRS - more than 92% of comparable charities. See the sources
  • It has more complete contact information than nearly all comparable charities, with a verified website, email, phone and address on record. See national comparisons
  • GiveRadar's profile for Acromegaly Community Inc draws on its financial disclosures and its governance, in line with the typical health charities in the United States it tracks. View this cohort
GiveRadar has verified
  • government registration
  • financial records (5 filed years)
  • disclosed leadership
  • a website
  • a contact email
  • third-party accreditation
Not yet verified by GiveRadar
  • a donation page
  • an owner-submitted profile claim

Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.

Common questions

· Auto-generated from filings + methodology

Acromegaly Community Inc is a registered health nonprofit based in Williamsville, NY, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2010 and has been operating for 16 years. Its EIN is 272116493. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 70/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $313K in annual revenue. 24 officers and directors are publicly disclosed. GiveRadar has identified 1 potential concern.

Acromegaly Community Inc's EIN (Employer Identification Number) is 272116493. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.

Acromegaly Community Inc has a GiveRadar Integrity Assessment of 70/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 70 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 97% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for health charities in United States is 90/100.

Acromegaly Community Inc is located in Williamsville, NY, United States. The organization was established in 2010 and has been active for 16 years. Its registered address is 4704 Brentwood Dr, United States.

Based on official tax filings, Acromegaly Community Inc has $313K in annual revenue. It allocates 97% of expenses to programs and services. This is above the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Acromegaly Community Inc is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $313K in annual revenue. The organization has 24 disclosed officers and directors.

GiveRadar has identified 1 potential concern for Acromegaly Community Inc. Red flags are automatically detected from official data and may include high executive compensation relative to budget, low program spending, or missing financial filings. Red flags do not necessarily mean wrongdoing but indicate areas that may warrant further review before donating.

According to GiveRadar's records, Acromegaly Community Inc holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 97% of expenses go to programs (the peer average is 89%). GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

Conference to educate the public and support research regarding the medical condition known as acromegaly. Acromegaly Community Inc is classified as a health organization registered in United States. The organization was founded in 2010.

Among health charities registered in United States: It allocates 97% of expenses to programs, above the peer average of 89%. Its annual revenue of $313K is below the peer average of $41M.

Yes, donations to Acromegaly Community Inc are generally tax-deductible in the United States. Acromegaly Community Inc is a 501(c)(3) tax-exempt organization. Its EIN is 272116493, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Annual revenue
$100K-$1M
97% to programs
Source: IRS 990 (FY2024) why this matters
Unlock exact figures

Filing history

5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2024, FY2023, FY2022, FY2021, FY2020.
Financial details are free - with a GiveRadar account

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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Staff & volunteers

From filings and published profiles

Employees
1

Leadership

From FY2024 filing

RO
Robert J H•••
TREASURER

Officers & trustees (10)

Source: Public filings

See full names, roles, and stories

10 officers and trustees on file - free with a GiveRadar account.

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Latest news

From global news sources

4 articles found

From news sources and the organization. Shown for transparency; news never affects the integrity score.

Activity timeline

Filings and press mentions, merged

Form filed
$0.3M revenue
FY2024
IRS 990
Form filed
$0.3M revenue
FY2023
IRS 990
Form filed
$0.2M revenue
FY2022
IRS 990
Largest gathering of people with Acromegaly meets in Milpitas - The Milpitas Beat
May 2022
milpitasbeat.com
Form filed
$0.0M revenue
FY2021
IRS 990
Form filed
$0.3M revenue
FY2020
IRS 990
FDA Approves First Oral Somatostatin Analog for Acromegaly - Medscape
Jun 2020
www.medscape.com
Chiasma secures FDA approval for acromegaly pill Mycapssa years after near-catastrophic rejection - Fierce Pharma
Jun 2020
www.fiercepharma.com
Chiasma Supports Acromegaly Awareness with Launch of New Online Resource for Patients and Caregivers - MultiVu
Oct 2015
www.multivu.com

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Cause areas in United States

How many charities work in each area, with this charity's area highlighted.

Human Services 322,679
Education 195,586
Arts & Culture 133,128
Advocacy & Civil Rights 128,026
Religion 114,636
Health this charity 98,862
Community Development 56,086
Youth Development 53,450
See all cause areas in United States

Most common causes in United States

Causes charities work on most, with this charity's causes ticked.

Community Development 235,146
Education 159,016
Religion 103,741
Arts & Culture 101,203
Human Rights 76,926
Health 65,250
Youth Development 47,775
Animal Welfare 32,425

Sources and verification

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2024 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 24 disclosed in the public registry.
News and media coverage
GDELT Project + Google News
Supplementary verification
Charity Navigator

Data freshness

Last updated
Jun 12, 2026
Registry checked
Jun 6, 2026
Profile completeness
100%

What we know and don't know

Exactly which public data we hold on this charity. Our score reflects transparency, not impact.

On record · 10
  • Financial data · FY2024 on record
  • Named leadership · 24 officers on file
  • Executive pay · Disclosed
  • Government registration · Registered with an official registry
  • Mission statement · Published
  • Official website · On record
  • Headquarters address · On file
  • Direct contact · Email or phone published
  • Tax-deductibility · Verified
  • Founding date · 2010
Not available · 1
  • Programs & activities
    No named programs listed by the charity

Methodology

GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology

Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.

Quick facts about Acromegaly Community Inc

What is Acromegaly Community Inc?
Acromegaly Community Inc is a health publicly-supported charity (509(a)(2)) based in Williamsville, United States. Conference to educate the public and support research regarding the medical condition known as acromegaly.
When was Acromegaly Community Inc founded?
Acromegaly Community Inc was founded in 2010.
Who leads Acromegaly Community Inc?
Robert J Hoag serves as TREASURER.
Where is Acromegaly Community Inc located?
Headquartered in Williamsville, NY, United States.
What is Acromegaly Community Inc's annual budget?
Annual revenue for fiscal year 2024 is approximately $100K-$1M. 97% of expenses go to program services.
Is Acromegaly Community Inc trustworthy?
Acromegaly Community Inc has a GiveRadar Integrity Assessment of 70 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Acromegaly Community Inc's registration number?
IRS EIN: 272116493.
What is Acromegaly Community Inc's website?
https://www.acromegalycommunity.com