Alport Syndrome Foundation Inc
To improve the lives of those affected by alport syndrome through education, empowerment, advocacy, and funding research. The foundations vision is to make alport syndrome a treatable disease …
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Visit alportsyndrome.orgAbout Alport Syndrome Foundation Inc
Alport Syndrome Foundation Inc is a health organization based in PHOENIX, United States. Annual revenue: $994K. EIN: 208237159.
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
To improve the lives of those affected by alport syndrome through education, empowerment, advocacy, and funding research. The foundations vision is to make alport syndrome a treatable disease and find a cure.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesConcerns
· None foundWhere every $1 goes
· FY2024 · IRS 990 (FY2024)GiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
From what GiveRadar has verified so far, Alport Syndrome Foundation Inc has a complete profile, cross-referenced across 4 independent sources including the IRS.
- It has more complete contact information than nearly all similar organizations, with a verified website, email, phone and address on record. See national comparisons
- It has more complete governance disclosure than nearly all similar organizations, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
- Its integrity score of 76 places it in the top 25% of the 98,862 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a contact email
- third-party accreditation
- a donation page
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyAlport Syndrome Foundation Inc is a registered health nonprofit based in Scottsdale, AZ, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2007 and has been operating for 19 years. Its EIN is 208237159. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 76/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $1M in annual revenue. 40 officers and directors are publicly disclosed. No red flags have been detected.
Alport Syndrome Foundation Inc's EIN (Employer Identification Number) is 208237159. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
Alport Syndrome Foundation Inc has a GiveRadar Integrity Assessment of 76/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 76 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 91% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for health charities in United States is 90/100.
Alport Syndrome Foundation Inc is located in Scottsdale, AZ, United States. The organization was established in 2007 and has been active for 19 years.
Based on official tax filings, Alport Syndrome Foundation Inc has $1M in annual revenue. It allocates 91% of expenses to programs and services. This is above the average of 81% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Alport Syndrome Foundation Inc is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a medium organization. It has $1M in annual revenue. The organization has 40 disclosed officers and directors.
No red flags have been detected for Alport Syndrome Foundation Inc. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.
According to GiveRadar's records, Alport Syndrome Foundation Inc holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 91% of expenses go to programs (the peer average is 81%). GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
Alport Syndrome Foundation Inc is a health organization based in PHOENIX, United States. Annual revenue: $994K. EIN: 208237159. Alport Syndrome Foundation Inc is classified as a health organization registered in United States. The organization was founded in 2007.
Among health charities registered in United States: It allocates 91% of expenses to programs, above the peer average of 81%. Its annual revenue of $1M is below the peer average of $41M.
Yes, donations to Alport Syndrome Foundation Inc are generally tax-deductible in the United States. Alport Syndrome Foundation Inc is a 501(c)(3) tax-exempt organization. Its EIN is 208237159, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Filing history
5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
Sign up to viewTaxes
Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
ALPORT SYNDROME FOUNDATION INC is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Staff & volunteers
From filings and published profiles
Leadership
From FY2024 filing
Officers & trustees (13)
Source: Public filings
13 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
10 articles found
From news sources and the organization. Shown for transparency; news never affects the integrity score.
Urine Test Can Predict Kidney Decline in Alport Syndrome - Medscape
ONYX-101 restores COL4A5 expression in X-linked Alport syndrome - BioWorld News
Case Report: Early diagnosis of X-linked Alport syndrome in a pediatric patient and literature review - Frontiers
Sequential sequencing reveals the architecture and complexity of genomic variants in patients with Alport syndrome - Nature
Systematic reassessment of reported variants in individuals with suspicion of Alport spectrum disorder reveals a high rate of ambiguous results - Nature
‘Missing’ disease-causing variants in Alport syndrome - Nature
Q&A: Managing Pregnancy in Patients With Alport Syndrome - Physician's Weekly
Alport syndrome complicated with IgA nephropathy: a case report - Frontiers
Redefining Alport syndrome in the era of genomic medicine: time for a unified, genotype-driven nomenclature - Springer Nature Link
ENYO Pharma Announces Completion and Topline Data From Phase 2 Alpestria-1 Clinical Study in Alport Syndrome Demonstrating Vonafexor Reverses Kidney Function Decline and Has Sustained Therapeutic Benefit - Business Wire
Activity timeline
Filings and press mentions, merged
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How many charities work in each area, with this charity's area highlighted.
Most common causes in United States
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2024 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 40 disclosed in the public registry.
- News and media coverage
- GDELT Project + Google News
- Supplementary verification
- Charity Navigator
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · FY2024 on record
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Named leadership · 40 officers on file
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Tax-deductibility · Verified
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Founding date · 2007
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Executive payTop-officer pay not disclosed
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Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Alport Syndrome Foundation Inc
- What is Alport Syndrome Foundation Inc?
- Alport Syndrome Foundation Inc is a health publicly-supported charity (509(a)(2)) based in Scottsdale, United States. Alport Syndrome Foundation Inc is a health organization based in PHOENIX, United States. Annual revenue: $994K. EIN: 208237159.
- When was Alport Syndrome Foundation Inc founded?
- Alport Syndrome Foundation Inc was founded in 2007.
- Who leads Alport Syndrome Foundation Inc?
- Daniel Kilpatrick serves as Treasurer.
- Where is Alport Syndrome Foundation Inc located?
- Headquartered in Scottsdale, AZ, United States.
- What is Alport Syndrome Foundation Inc's annual budget?
- Annual revenue for fiscal year 2024 is approximately $1M-$10M. 91% of expenses go to program services.
- Is Alport Syndrome Foundation Inc trustworthy?
- Alport Syndrome Foundation Inc has a GiveRadar Integrity Assessment of 76 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Alport Syndrome Foundation Inc's registration number?
- IRS EIN: 208237159.
- What is Alport Syndrome Foundation Inc's website?
- http://alportsyndrome.org