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ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği

Support network for people living with ALS and motor neuron disease

Als(amyotrofi̇k Lateral Skleroz)mnh (motor Nöron Hastaliği) Derneği̇

Reg: TR-DRN-34-106-166 Sign up to see website
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42
Integrity Assessment
Partial transparency
42/100 · methodology

About ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği

Founded in December 2001 in Istanbul by ten volunteer patients and their relatives, ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) supports people affected by ALS and related motor neuron diseases. It holds public-benefit association status in Türkiye. The association connects patients and families with information, community and peer support.

Founded
Foundation type
Kamu Yararına Dernek
Operating in
Türkiye

Mission

To support and advocate for people living with ALS and motor neuron diseases in Türkiye.

Focus areas & reach

· What they work on and where
Cause tags
Health
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.
SDG 3 SDG 3 · Good Health and Well-being Ensure healthy lives and promote well-being for all at all ages.Browse all SDG 3 charities →
Operating countries (1)
Türkiye

Founding story

· Founding, renaming & milestones

ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) was founded in December 2001 by ten volunteer patients and relatives in Istanbul. It supports people living with ALS and motor neuron diseases and holds public-benefit association status.

ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) was founded in December 2001 by ten volunteer patients and relatives in Istanbul. It supports people living with ALS and motor neuron diseases and holds public-benefit association status.

How it stacks up against peers

· vs. 8 similar health in Türkiye
Integrity Assessment This charity: 42
Peer average: 43

Concerns

· None found
No red flags found
Screened for Charity registration status, Open investigations, Governance scandals, Related-party deals, Excessive exec comp.

GiveRadar Analysis

Original analysis from GiveRadar's dataset of comparable organizations

GiveRadar's verified records show ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği with a partial profile.

  • GiveRadar holds a more complete profile for this organization than for 99% of the 414 charities in Türkiye it tracks, because GiveRadar has verified its governance. Most of those have little verified data on record yet. View this cohort
  • GiveRadar has not yet verified financial records for this organization, nor for any charities in Türkiye - a gap in GiveRadar's dataset for the region, not a feature of this charity. Explore Türkiye data
GiveRadar has verified
  • government registration
  • disclosed leadership
  • a website
  • a donation page
Not yet verified by GiveRadar
  • financial records
  • a contact email
  • third-party accreditation
  • an owner-submitted profile claim

Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.

Explore View this cohort Türkiye benchmarks GiveRadar's data sources Methodology

Common questions

· Auto-generated from filings + methodology

ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is a health nonprofit in Türkiye. GiveRadar lists it from public charity directories and does not hold an official government registration record for it. It was founded in 2001 and has been operating for 25 years. Its registration number is TR-DRN-34-106-166. GiveRadar's Integrity Assessment for the organization is 42/100, which reflects how much public information is available, not whether the charity is legitimate. 10 officers and directors are publicly disclosed.

ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği has a GiveRadar Integrity Assessment of 42/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 42 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in Türkiye is 43/100.

ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is based in Türkiye. The organization was established in 2001 and has been active for 25 years.

ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is classified as a Health organization, based in Türkiye. It operates as a Kamu Yararına Dernek. The organization has 10 disclosed officers and directors.

ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is listed in GiveRadar's directory of Türkiye nonprofits, compiled from public charity directories. GiveRadar does not hold an official government registration record for it, so confirm its registration status directly before giving. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

Founded in December 2001 in Istanbul by ten volunteer patients and their relatives, ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) supports people affected by ALS and related motor neuron diseases. It holds public-benefit association status in Türkiye. The association connects patients and families with information, community and peer support. ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is a health organization based in Türkiye. The organization was founded in 2001.

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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of Türkiye under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

AL
Alper İ•••• K•••
Yönetim Kurulu Başkanı (Board Chairman)

Officers & trustees (10)

Source: Charity website (via AI extraction)

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10 officers and trustees on file - free with a GiveRadar account.

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Latest news

From global news sources

No recent news coverage found

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Cause areas in Türkiye

How many charities work in each area, with this charity's area highlighted.

Health this charity 101
Human Services 89
Education 39
Advocacy & Civil Rights 32
Arts & Culture 32
Community Development 23
Science & Technology 17
Religion 10
See all cause areas in Türkiye

Most common causes in Türkiye

Causes charities work on most, with this charity's causes ticked.

Health 103
Education 63
Community Development 51
Human Rights 44
Disability 39
Disaster Relief 36
Children 28
Arts & Culture 26
All charities in
🇹🇷 Türkiye
Best
Health in Türkiye

Data sources

No verified sources recorded yet for this charity.

Part of this profile's description was written with AI, summarizing public sources such as official registry data and the organization's own website. Financial figures, registration details, and the sources listed above are not AI-generated. Read how we use AI.

Data freshness

Last updated
Jul 11, 2026
Profile completeness
35%

What we know and don't know

Exactly which public data we hold on this charity. Our score reflects transparency, not impact.

On record · 5
  • Named leadership · 10 officers on file
  • Government registration · Registered with an official registry
  • Mission statement · Published
  • Official website · On record
  • Founding date · 2001
Not available · 6
  • Financial data
    No annual financial filings on file
  • Executive pay
    Top-officer pay not disclosed
  • Programs & activities
    No named programs listed by the charity
  • Headquarters address
    No address on file
  • Direct contact
    No email or phone published
  • Tax-deductibility
    Not verified

Methodology

GiveRadar builds each profile from official charity directories and public registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology

Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.

Quick facts about ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği

What is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği?
ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is a health kamu yararına dernek, Türkiye. Founded in December 2001 in Istanbul by ten volunteer patients and their relatives, ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) supports people affected by ALS and related motor neuron diseases. It holds public-benefit association status in Türkiye. The association connects patients and families with information, community and peer support.
When was ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği founded?
ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği was founded in 2001.
Where is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği located?
Headquartered in Türkiye.
Is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği trustworthy?
ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği has a GiveRadar Integrity Assessment of 42 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği's registration number?
Registration: TR-DRN-34-106-166 (Türkiye).
What is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği's website?
https://als.org.tr
Are donations to ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği tax-deductible?
Donations may be tax-deductible for residents of Türkiye under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.