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Andrews Firefly Fund

To fund and support research and education to acclerate a cure for rare and fatal neurodegenerative genetic diseases that affect children.

Health Austin, TX EIN: 813737330 (IRS) Sign up to see website
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74
Integrity Assessment
Strong transparency
74/100 · methodology

About Andrews Firefly Fund

Newborn screening: since 2017 firefly fund has been leading the npc nbs initiative with a vision that all newborns will be screened for npc, enabling early diagnosis and intervention. The initiative is led by a broad stakeholder working group, chaired by drs. Elizabeth berry-kravis of rush and marc patterson of mayo clinic, which includes the npc community and industry stakeholders. Twenty nine (29) npc and nbs expert clinicians from around the us and canada make up the npc nbs clinical roundtable serving the initiative as advisors. Firefly fund supports medical research that could provide therapeutics for the treatment of niemann pick type c disease. Patient access/impact: work with academic centers of excellence and patient advocacy organizations to remove barriers to …

Founded
Headquarters
Austin, TX
Foundation type
Publicly-supported charity (509(a)(2))
NTEE code
G80
IRS subsection
501(c)(03)
Ruling date
Size
small

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 2017

Mission

To fund and support research and education to acclerate a cure for rare and fatal neurodegenerative genetic diseases that affect children.

Focus areas & reach

· What they work on and where
❤️ Health · NTEE G80
Cause tags
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 80%
Peer average: 89%
CEO comp as % of revenue This charity: 18.80%
Peer average: 0.48%
Integrity Assessment This charity: 74
Peer average: 90

Concerns

· 1 red flag
High Executive Pay
Top executive compensation is 16.6% of total expenses ($122,071 of $737,307).

Where every $1 goes

· FY2024 · IRS 990 (FY2024)
$0.80
Program$0.80
80% to programs beats the Charity Navigator "highly efficient" threshold (75%).

GiveRadar Analysis

Original analysis from GiveRadar's dataset of comparable organizations

GiveRadar's verified records show Andrews Firefly Fund with a complete profile, cross-referenced across 3 independent sources including the IRS.

  • It has more complete contact information than nearly all comparable charities, with a verified website, email, phone and address on record. See national comparisons
  • It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
  • Its integrity score of 74 places it in the top 25% of the 98,862 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its governance. View this cohort
GiveRadar has verified
  • government registration
  • financial records (5 filed years)
  • disclosed leadership
  • a website
  • a contact email
  • a donation page
Not yet verified by GiveRadar
  • an owner-submitted profile claim

Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.

Common questions

· Auto-generated from filings + methodology

Andrews Firefly Fund is a registered health nonprofit based in Austin, TX, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2015 and has been operating for 11 years. Its EIN is 813737330. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 74/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $649K in annual revenue. 35 officers and directors are publicly disclosed. GiveRadar has identified 1 potential concern.

Andrews Firefly Fund's EIN (Employer Identification Number) is 813737330. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.

Andrews Firefly Fund has a GiveRadar Integrity Assessment of 74/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 74 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 80% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for health charities in United States is 90/100.

Andrews Firefly Fund is located in Austin, TX, United States. The organization was established in 2015 and has been active for 11 years.

Based on official tax filings, Andrews Firefly Fund has $649K in annual revenue. It allocates 80% of expenses to programs and services. This is below the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Andrews Firefly Fund is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $649K in annual revenue. The organization has 35 disclosed officers and directors.

GiveRadar has identified 1 potential concern for Andrews Firefly Fund. Red flags are automatically detected from official data and may include high executive compensation relative to budget, low program spending, or missing financial filings. Red flags do not necessarily mean wrongdoing but indicate areas that may warrant further review before donating.

According to GiveRadar's records, Andrews Firefly Fund holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 80% of expenses go to programs (the peer average is 89%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

Newborn screening: since 2017 firefly fund has been leading the npc nbs initiative with a vision that all newborns will be screened for npc, enabling early diagnosis and intervention. The initiative is led by a broad stakeholder working group, chaired by drs. Elizabeth berry-kravis of rush and marc patterson of mayo clinic, which includes the npc community and industry stakeholders. Twenty nine (29) npc and nbs expert clinicians from around the us and canada make up the npc nbs clinical roundtable serving the initiative as advisors. Firefly fund supports medical research that could provide therapeutics for the treatment of niemann pick type c disease. Patient access/impact: work with academic centers... Andrews Firefly Fund is classified as a health organization registered in United States. The organization was founded in 2015.

Among health charities registered in United States: It allocates 80% of expenses to programs, below the peer average of 89%. Its annual revenue of $649K is below the peer average of $41M.

Yes, donations to Andrews Firefly Fund are generally tax-deductible in the United States. Andrews Firefly Fund is a 501(c)(3) tax-exempt organization. Its EIN is 813737330, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Annual revenue
$100K-$1M
80% to programs
Source: IRS 990 (FY2024) why this matters
Unlock exact figures

Filing history

5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2024, FY2023, FY2022, FY2021, FY2020.
Financial details are free - with a GiveRadar account

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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Staff & volunteers

From filings and published profiles

Employees
2

Leadership

From FY2024 filing

BE
Beryl C••••••
Director

Officers & trustees (14)

Source: Public filings

See full names, roles, and stories

14 officers and trustees on file - free with a GiveRadar account.

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$0.6M revenue
FY2024
IRS 990
Form filed
$0.1M revenue
FY2023
IRS 990
Form filed
$0.0M revenue
FY2022
IRS 990
Form filed
$0.6M revenue
FY2021
IRS 990
Form filed
$0.5M revenue
FY2020
IRS 990

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Cause areas in United States

How many charities work in each area, with this charity's area highlighted.

Human Services 322,679
Education 195,586
Arts & Culture 133,128
Advocacy & Civil Rights 128,026
Religion 114,636
Health this charity 98,862
Community Development 56,086
Youth Development 53,450
See all cause areas in United States

Most common causes in United States

Causes charities work on most, with this charity's causes ticked.

Community Development 235,146
Education 159,016
Religion 103,741
Arts & Culture 101,203
Human Rights 76,926
Health 65,250
Youth Development 47,775
Animal Welfare 32,425

Sources and verification

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2024 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 35 disclosed in the public registry.
Supplementary verification
Charity Navigator

Data freshness

Last updated
Jun 12, 2026
Registry checked
Jun 6, 2026
Profile completeness
90%

What we know and don't know

Exactly which public data we hold on this charity. Our score reflects transparency, not impact.

On record · 10
  • Financial data · FY2024 on record
  • Named leadership · 35 officers on file
  • Executive pay · Disclosed
  • Government registration · Registered with an official registry
  • Mission statement · Published
  • Official website · On record
  • Headquarters address · On file
  • Direct contact · Email or phone published
  • Tax-deductibility · Verified
  • Founding date · 2015
Not available · 1
  • Programs & activities
    No named programs listed by the charity

Methodology

GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology

Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.

Quick facts about Andrews Firefly Fund

What is Andrews Firefly Fund?
Andrews Firefly Fund is a health publicly-supported charity (509(a)(2)) based in Austin, United States. Newborn screening: since 2017 firefly fund has been leading the npc nbs initiative with a vision that all newborns will be screened for npc, enabling early diagnosis and intervention. The initiative is led by a broad stakeholder working group, chaired by drs. Elizabeth berry-kravis of rush and marc patterson of mayo clinic, which includes the npc community and industry stakeholders. Twenty nine (29) npc and nbs expert clinicians from around the us and canada make up the npc nbs clinical roundtable serving the initiative as advisors. Firefly fund supports medical research that could provide therapeutics for the treatment of niemann pick type c disease. Patient access/impact: work with academic centers of excellence and patient advocacy organizations to remove barriers to care and access to therapies necessary for their loved ones with an npc diagnosis.
When was Andrews Firefly Fund founded?
Andrews Firefly Fund was founded in 2015.
Who leads Andrews Firefly Fund?
Beryl Crowley serves as Director.
Where is Andrews Firefly Fund located?
Headquartered in Austin, TX, United States.
What is Andrews Firefly Fund's annual budget?
Annual revenue for fiscal year 2024 is approximately $100K-$1M. 80% of expenses go to program services.
Is Andrews Firefly Fund trustworthy?
Andrews Firefly Fund has a GiveRadar Integrity Assessment of 74 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Andrews Firefly Fund's registration number?
IRS EIN: 813737330.
What is Andrews Firefly Fund's website?
http://fireflyfund.org