Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)
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Visit www.dig-pku.deAbout Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)
The purpose of the association is the promotion of public health care and public health care in particular in the field of phenylketonuria (PKU) and related congenital metabolic disorders as well as the selfless support of people with these diseases and their relatives. This is realized, among other things, by representing the interests of patients and relatives towards political decision-makers. In the context of this political representation of the interests of our members, we maintain contacts with members of the Bundestag and its employees: - We correspond in writing (by letter and/or e-mail) as well as by telephone with members of the Bundestag and its employees. - We conduct personal discussions with members of the Bundestag and its employees. - …
Zweck des Vereins ist die Förderung des öffentlichen Gesundheitswesens und der öffentlichen Gesundheitspflege insbesondere auf dem Gebiet der Phenylketonurie (PKU) und verwandter angeborener Stoffwechselstörungen sowie die selbstlose Unterstützung von Menschen mit diesen Erkrankungen und ihren Angehörigen. Dies wird u.a. verwirklicht durch die Vertretung der Interessen von Patienten und Angehörigen gegenüber politischen Entscheidungsträgern. Im Rahmen dieser politischen Vertretung der Interessen unserer Mitglieder pflegen wir Kontakte zu Mitgliedern des Bundestages und ihren Mitarbeitenden: - Wir korrespondieren schriftlich (per Brief und/oder E-Mail) sowie telefonisch mit Mitgliedern des Bundestages und ihren Mitarbeitenden. - Wir führen persönliche Gespräche mit den Mitgliedern des Bundestages und ihren Mitarbeitenden. - Wir nehmen schriftlich z.B. zu Gesetz- und Verordnungsentwürfen Stellung. - Wir nehmen an Veranstaltungen wie z.B. parlamentarischen Frühstücken, …
Translated from German by GiveRadar.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar community development in GermanyConcerns
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Original analysis from GiveRadar's dataset of comparable organizations
Based on the records currently verified by GiveRadar, Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) has a substantially complete profile.
- GiveRadar has verified financial records for only 1% of community development charities in Germany, and this is one of them. See national comparisons
- It is one of the better-documented community development charities in Germany GiveRadar currently tracks, because GiveRadar has verified its contact details. Most of those have little verified data on record yet. View this cohort
- It has more complete contact information than nearly all comparable organizations, with a verified website, email, phone and address on record. See national comparisons
- government registration
- financial records
- disclosed leadership
- a website
- a contact email
- a donation page
- third-party accreditation
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyDeutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is a registered community development nonprofit based in Fürth, Bavaria, Germany. It is registered with the German Vereinsregister (Association Register). Its registration number is R005418. GiveRadar's Integrity Assessment for the organization is 46/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports €15K in annual revenue.
Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)'s official registration number is R005418, as recorded in the national registry of Germany.
Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) has a GiveRadar Integrity Assessment of 46/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 46 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for community development charities in Germany is 62/100.
Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is located in Fürth, Bavaria, Germany.
Based on official tax filings, Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) has €15K in annual revenue. Its revenue is below the peer average of €4M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is classified as a Community Development organization, registered in Germany. By size, it is categorized as a micro organization. It has €15K in annual revenue.
According to GiveRadar's records, Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is registered with the German Vereinsregister (Association Register) and overseen by the local Amtsgericht (district court). GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
The purpose of the association is the promotion of public health care and public health care in particular in the field of phenylketonuria (PKU) and related congenital metabolic disorders as well as the selfless support of people with these diseases and their relatives. This is realized, among other things, by representing the interests of patients and relatives towards political decision-makers. In the context of this political representation of the interests of our members, we maintain contacts with members of the Bundestag and its employees: - We correspond in writing (by letter and/or e-mail) as well as by telephone with members of the Bundestag and its employees. - We conduct personal... Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is classified as a community development organization registered in Germany.
Among community development charities registered in Germany: Its annual revenue of €15K is below the peer average of €4M.
Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is a registered nonprofit in Germany. Donations to recognized charitable organizations (gemeinnuetzige Organisationen) are tax-deductible up to 20% of your total income. You will need a donation receipt (Zuwendungsbestaetigung) from the organization for your tax return.
You can verify Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)'s charitable status in several ways. First, check the Zuwendungsempfaengerregister (ZER) at https://www.bzst.de/DE/Unternehmen/Zuwendungsempfaengerregister_organisation/zuwendungsempfaengerregister_organisation_node.html - the BZSt maintains this federal register of all organisations eligible to receive tax-deductible donations in Germany. Second, you can look up the association in the Vereinsregister (association register) at the local Amtsgericht (district court) via https://www.handelsregister.de/ - this confirms the legal form, registered address, and board members. Third, check whether the organisation holds the Freistellungsbescheid (tax-exemption notice) from its local Finanzamt - the notice is re-issued every three years and confirms the 'gemeinnuetzig' status under the Abgabenordnung. Legitimate charities publish this on their website or provide it on request.
Contact Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) directly for current donation methods. German charities typically accept SEPA bank transfer (Ueberweisung) to the organisation's IBAN, SEPA direct debit (Lastschrift/Einzugsermaechtigung) for recurring donations, PayPal, credit card payments, and online payment processors like Stripe or Mollie. Many German charities use platforms like betterplace.org, GoFundMe, or their own Spendenseite (donation page). International donors can give via SEPA transfer (Germany is in the eurozone) or PayPal. For your donation to be tax-deductible, you need a Zuwendungsbestaetigung (donation receipt) from the organisation - for amounts up to 300 euros, a bank statement showing the transfer is sufficient.
Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is based in Fürth, in the Free State of Bavaria (Bayern) in southeastern Germany, the largest German state by area. Germany is a federation of 16 states (Bundeslaender). Charitable status ('Gemeinnuetzigkeit') is granted by the local Finanzamt and recognised nationwide - the organisation can solicit tax-deductible donations from donors anywhere in Germany.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
German donations are deductible if Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) holds a Freistellungsbescheid (recognition as a charitable purpose) and issues a Zuwendungsbestätigung receipt.
Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is in Germany, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is registered in Germany. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
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Sources and verification
- Registration and legal identity
- Bundesanzeiger (German Federal Gazette)
- Financial filings
- Bundesanzeiger annual disclosures
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · Annual revenue figure on record
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Named leadership · Lead officer named
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Government registration · Registered with an official registry
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Executive payTop-officer pay not disclosed
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Mission statementNo self-published statement of purpose
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Programs & activitiesNo named programs listed by the charity
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Tax-deductibilityNot verified
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Founding dateYear founded not on file
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)
- What is Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)?
- Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) is a community development nonprofit organization based in Fürth, Germany. The purpose of the association is the promotion of public health care and public health care in particular in the field of phenylketonuria (PKU) and related congenital metabolic disorders as well as the selfless support of people with these diseases and their relatives. This is realized, among other things, by representing the interests of patients and relatives towards political decision-makers. In the context of this political representation of the interests of our members, we maintain contacts with members of the Bundestag and its employees: - We correspond in writing (by letter and/or e-mail) as well as by telephone with members of the Bundestag and its employees. - We conduct personal discussions with members of the Bundestag and its employees. - We make written comments e.g. on draft laws and regulations. - We take part in events such as parliamentary breakfasts, specialist discussions etc., occasionally we organize such discussions.
- Who leads Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)?
- Andreas Waldenspuhl serves as Chair.
- Where is Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) located?
- Headquartered in Fürth, Bavaria, Germany.
- What is Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)'s annual budget?
- Annual revenue is approximately €10K-€100K.
- Is Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) trustworthy?
- Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) has a GiveRadar Integrity Assessment of 46 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)'s registration number?
- Registration: R005418 (Germany).
- What is Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU)'s website?
- https://www.dig-pku.de
- Are donations to Deutsche Interessengemeinschaft Phenylketonurie und verwandte angeborene Stoffwechselstörungen e.V. (DIG PKU) tax-deductible?
- Donations may be tax-deductible for residents of Germany under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.