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Epilepsy Advocacy Network

To optimize the quality of life of individuals with epilepsy and seizure disorders by promoting community education and awareness, self-advocacy and empowerment, and helping all individuals gain proper …

Health Ottawa, IL EIN 843161755 · IRS Sign up to see website
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90
Integrity Assessment
Strong transparency
90/100 · methodology

About Epilepsy Advocacy Network

Promotion of community education and awareness, self-advocacy and empowerment to those living with epilepsy and seizure disorders.

Founded
Headquarters
Ottawa, IL
Foundation type
Supporting organization (509(a)(3))
NTEE code
G01
IRS subsection
501(c)(03)
Ruling date

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 2020

Mission

To optimize the quality of life of individuals with epilepsy and seizure disorders by promoting community education and awareness, self-advocacy and empowerment, and helping all individuals gain proper access to care.

Focus areas & reach

· What they work on and where
❤️ Health · NTEE G01
Cause tags

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 78%
Peer average: 94%
CEO comp as % of revenue This charity: 6.80%
Peer average: 0.48%
Integrity Assessment This charity: 90
Peer average: 92

Red flags

· All clear
IRS revocation history
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Where every $1 goes

$0.78
Program expenses$0.78 ($585,113)
78% to programs beats the Charity Navigator "highly efficient" threshold (75%).

Common questions

· Auto-generated from filings + methodology

Epilepsy Advocacy Network is a registered health nonprofit based in Ottawa, IL, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2019 and has been operating for 7 years. Its EIN is 843161755. It has a GiveRadar Integrity Assessment of 90/100 (Strong transparency), indicating well-documented governance, financials, and contact details. The organization reports $707K in annual revenue. 73 officers and directors are publicly disclosed. No red flags have been detected.

Epilepsy Advocacy Network has a GiveRadar Integrity Assessment of 90/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 90 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 78% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for health charities in United States is 92/100.

Epilepsy Advocacy Network is located in Ottawa, IL, United States. The organization was established in 2019 and has been active for 7 years.

Based on official tax filings, Epilepsy Advocacy Network has $707K in annual revenue. It allocates 78% of expenses to programs and services. This is below the average of 94% for health charities in United States. Its revenue is below the peer average of $38M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Epilepsy Advocacy Network is classified as a Health organization, registered in United States. It operates as a Supporting organization (509(a)(3)). It has $707K in annual revenue. The organization has 73 disclosed officers and directors.

No red flags have been detected for Epilepsy Advocacy Network. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

Epilepsy Advocacy Network has a GiveRadar Integrity Assessment of 90/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the IRS. 78% of expenses go to programs. The peer average is 94%. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

Promotion of community education and awareness, self-advocacy and empowerment to those living with epilepsy and seizure disorders. Epilepsy Advocacy Network is classified as a health organization registered in United States. The organization was founded in 2019.

Among health charities registered in United States: Epilepsy Advocacy Network's GiveRadar Integrity Assessment of 90/100 is in line with the peer average of 92/100. It allocates 78% of expenses to programs, below the peer average of 94%. Its annual revenue of $707K is below the peer average of $38M.

Yes, donations to Epilepsy Advocacy Network are generally tax-deductible in the United States. Epilepsy Advocacy Network is a 501(c)(3) tax-exempt organization. Its EIN is 843161755, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Verified against 4 official sources, last refreshed .

Annual revenue
$100K-$1M
78% to programs
Source: IRS 990 (FY2025) why this matters
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Filing history

6 years on file from IRS 990 (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2025, FY2024, FY2023, FY2022, FY2021, FY2020.
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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

RO
Rodger Salzman
President

Officers & trustees (25)

Source: Public filings

AL
Alex S•••••••
Director
AN
Angela N•••••
Director & EXEC DIR
AN
Angie N•••••
Executive Dir.
BE
Becky S••••••••
VICE PRESIDENT
BE
Becky S••••••••
VICE PRESIDENT
BE
Beth M••••••
Director
CA
Cara F•••••
SECRETARY
CA
Cari W•••••
Director
CO
Courtney S••••••••
TREASURER
DE
Denny S•••••
Director
DE
Destiny C•••••
Director
DR
Dr I•••• M•••
Director
ER
Erika F••••
SECRETARY
KA
Kari J••••
EXECUTIVE DIRECTOR
KA
Karla H•••••
Director
KE
Kelly H•••••••
Director
MA
Mary R•••••••
Director
MO
Molly D•••••••••
Director
NA
Nancy P••••••
VICE PRESIDENT
RO
Rodger S••••••
PRESIDENT
RO
Rodger S•••••••
PRESIDENT
SE
Selma S••••
Director
SU
Sue J••••••
Director
TO
Tonia Z•••
TREASURER
TR
Trisha J••••••
Director
Full names, contact details & compensation

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$0.7M revenue
FY2025
IRS_990
Form filed
$0.6M revenue
FY2024
IRS_990
Form filed
$0.5M revenue
FY2023
IRS_990
Form filed
$0.1M revenue
FY2022
IRS_990
Form filed
$0.1M revenue
FY2021
IRS_990
Form filed
$0.1M revenue
FY2020
IRS_990

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Peer charities

Other health in United States, by integrity assessment

Charity Score Revenue Program %
Epilepsy Advocacy Network This page 90 $706,971 78%
Frankie Mae Foundation 93 $200,381 92%
Hepatitis C Mentor and Support Group Inc 93 $181,567 88%
Hiv Hcv Resource Center Inc 93 $641,491 100%
Two Bear Therapeutic Riding Center 93 $418,423 90%
Vr Foundation Inc 93 $195,304 100%
Our Kids 93 $225,630 98%
Guiding Star Project 90 $196,581 90%
Old Friends Club 90 $153,875 92%

Sources and verification

Refreshed

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2025 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 73 disclosed in the public registry.
Supplementary verification
Charity Navigator

Data freshness

Last updated
May 27, 2026
Profile completeness
90%

What we don't know

Honest gaps - our score reflects transparency, not impact

Programs & projects
No named programs listed by the charity
Operating reach
Countries where programs run not specified

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Epilepsy Advocacy Network

What is Epilepsy Advocacy Network?
Epilepsy Advocacy Network is a health supporting organization (509(a)(3)) based in Ottawa, United States. Promotion of community education and awareness, self-advocacy and empowerment to those living with epilepsy and seizure disorders.
When was Epilepsy Advocacy Network founded?
Epilepsy Advocacy Network was founded in 2019.
Who leads Epilepsy Advocacy Network?
Rodger Salzman serves as President.
Where is Epilepsy Advocacy Network located?
Headquartered in Ottawa, United States.
What is Epilepsy Advocacy Network's annual budget?
Annual revenue for fiscal year 2025 is approximately $100K-$1M. 78% of expenses go to program services.
Is Epilepsy Advocacy Network trustworthy?
Epilepsy Advocacy Network has a GiveRadar Integrity Assessment of 90 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Epilepsy Advocacy Network's registration number?
IRS EIN: 843161755.
What is Epilepsy Advocacy Network's website?
http://www.epilepsyadvocacynetwork.org