Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen
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The Eva Luise and Horst Köhler Foundation for People with Rare Diseases is an independent foundation of civil law. Through targeted research funding and networking work, they are committed to improving the medical care of people with rare diseases. The aim of the Eva Luise and Horst Köhler Foundation's interest group is to raise awareness of the special interests of people with rare diseases and to give impetus to their life situation. The Foundation also represents the interests of the Alliance4Rare gGmbH research network, which it initiated, which combines the expertise of research-strong university hospitals with the design will of civil society funding partners. The Foundation awards a research prize annually and organizes a scientific symposium, to which government members, …
Die Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen ist eine selbstständige Stiftung bürgerlichen Rechts. Sie setzt sich durch gezielte Forschungsförderung und Netzwerkarbeit für eine bessere medizinische Versorgung von Menschen mit Seltenen Erkrankungen ein. Ziel der Interessenvertretung der Eva Luise und Horst Köhler Stiftung ist es, auf die besonderen Belange von Menschen mit Seltenen Erkrankungen aufmerksam zu machen und Impulse zur Verbesserung ihrer Lebenssituation zu geben. Die Stiftung vertritt auch die Interessen des von ihr initiierten Forschungsnetzwerks Alliance4Rare gGmbH, das die Expertise forschungsstarker Universitätskliniken mit dem Gestaltungswillen zivilgesellschaftlicher Förderpartner verbindet. Die Stiftung vergibt jährlich einen Forschungspreis und veranstaltet ein wissenschaftliches Symposium, zu dem auch Regierungsmitglieder, Abgeordnete und Vertreterinnen und Vertreter von Ministerien eingeladen werden. Darüber hinaus werden …
Translated from German by GiveRadar.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar community development in GermanyConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
From what GiveRadar has verified so far, Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen has a substantially complete profile, cross-referenced across 3 independent sources.
- GiveRadar has verified financial records for only 1% of community development charities in Germany, and this is one of them. See national comparisons
- GiveRadar has verified more about this organization than about 99% of the 333,723 community development charities in Germany it tracks, because GiveRadar has verified its governance and its contact details. Most of those have little verified data on record yet. View this cohort
- It has more complete contact information than nearly all similar organizations, with a verified website, email, phone and address on record. See national comparisons
- government registration
- financial records
- disclosed leadership
- a website
- a contact email
- a donation page
- third-party accreditation
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyEva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is a registered community development nonprofit based in Bonn, North Rhine-Westphalia, Germany. It is registered with the German Vereinsregister (Association Register). It was founded in 2006 and has been operating for 20 years. Its registration number is R003973. GiveRadar's Integrity Assessment for the organization is 47/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports €5K in annual revenue.
Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen's official registration number is R003973, as recorded in the national registry of Germany.
Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen has a GiveRadar Integrity Assessment of 47/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 47 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for community development charities in Germany is 62/100.
Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is located in Bonn, North Rhine-Westphalia, Germany. The organization was established in 2006 and has been active for 20 years.
Based on official tax filings, Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen has €5K in annual revenue. Its revenue is below the peer average of €4M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is classified as a Community Development organization, registered in Germany. By size, it is categorized as a small organization. It has €5K in annual revenue.
According to GiveRadar's records, Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is registered with the German Vereinsregister (Association Register) and overseen by the local Amtsgericht (district court). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
The Eva Luise and Horst Köhler Foundation for People with Rare Diseases is an independent foundation of civil law. Through targeted research funding and networking work, they are committed to improving the medical care of people with rare diseases. The aim of the Eva Luise and Horst Köhler Foundation's interest group is to raise awareness of the special interests of people with rare diseases and to give impetus to their life situation. The Foundation also represents the interests of the Alliance4Rare gGmbH research network, which it initiated, which combines the expertise of research-strong university hospitals with the design will of civil society funding partners. The Foundation awards a research prize... Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is classified as a community development organization registered in Germany. The organization was founded in 2006.
Among community development charities registered in Germany: Its annual revenue of €5K is below the peer average of €4M.
Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is a registered nonprofit in Germany. Donations to recognized charitable organizations (gemeinnuetzige Organisationen) are tax-deductible up to 20% of your total income. You will need a donation receipt (Zuwendungsbestaetigung) from the organization for your tax return.
You can verify Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen's charitable status in several ways. First, check the Zuwendungsempfaengerregister (ZER) at https://www.bzst.de/DE/Unternehmen/Zuwendungsempfaengerregister_organisation/zuwendungsempfaengerregister_organisation_node.html - the BZSt maintains this federal register of all organisations eligible to receive tax-deductible donations in Germany. Second, you can look up the association in the Vereinsregister (association register) at the local Amtsgericht (district court) via https://www.handelsregister.de/ - this confirms the legal form, registered address, and board members. Third, check whether the organisation holds the Freistellungsbescheid (tax-exemption notice) from its local Finanzamt - the notice is re-issued every three years and confirms the 'gemeinnuetzig' status under the Abgabenordnung. Legitimate charities publish this on their website or provide it on request.
You can donate to Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen directly through its donation page (https://elhks.de/spenden/spenden-moeglichkeiten/). German charities typically accept SEPA bank transfer (Ueberweisung) to the organisation's IBAN, SEPA direct debit (Lastschrift/Einzugsermaechtigung) for recurring donations, PayPal, credit card payments, and online payment processors like Stripe or Mollie. Many German charities use platforms like betterplace.org, GoFundMe, or their own Spendenseite (donation page). International donors can give via SEPA transfer (Germany is in the eurozone) or PayPal. For your donation to be tax-deductible, you need a Zuwendungsbestaetigung (donation receipt) from the organisation - for amounts up to 300 euros, a bank statement showing the transfer is sufficient.
Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is based in Bonn, in the state of North Rhine-Westphalia (Nordrhein-Westfalen), Germany's most populous state, home to Cologne, Düsseldorf, and Dortmund. Germany is a federation of 16 states (Bundeslaender). Charitable status ('Gemeinnuetzigkeit') is granted by the local Finanzamt and recognised nationwide - the organisation can solicit tax-deductible donations from donors anywhere in Germany.
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Tax-deductibility for donors
German donations are deductible if Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen holds a Freistellungsbescheid (recognition as a charitable purpose) and issues a Zuwendungsbestätigung receipt.
Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is in Germany, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is registered in Germany. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
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Sources and verification
- Registration and legal identity
- Bundesanzeiger (German Federal Gazette)
- Financial filings
- Bundesanzeiger annual disclosures
- News and media coverage
- GDELT Project + Google News
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · Annual revenue figure on record
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Named leadership · Lead officer named
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Government registration · Registered with an official registry
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Founding date · 2006
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Executive payTop-officer pay not disclosed
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Mission statementNo self-published statement of purpose
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Programs & activitiesNo named programs listed by the charity
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Tax-deductibilityNot verified
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen
- What is Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen?
- Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen is a community development nonprofit organization based in Bonn, Germany. The Eva Luise and Horst Köhler Foundation for People with Rare Diseases is an independent foundation of civil law. Through targeted research funding and networking work, they are committed to improving the medical care of people with rare diseases. The aim of the Eva Luise and Horst Köhler Foundation's interest group is to raise awareness of the special interests of people with rare diseases and to give impetus to their life situation. The Foundation also represents the interests of the Alliance4Rare gGmbH research network, which it initiated, which combines the expertise of research-strong university hospitals with the design will of civil society funding partners. The Foundation awards a research prize annually and organizes a scientific symposium, to which government members, representatives and representatives of ministries are invited. In addition, discussions are conducted with members of the Bundestag and the Federal Government and in individual cases, opinions on concrete legislative projects are developed and transmitted.
- When was Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen founded?
- Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen was founded in 2006.
- Who leads Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen?
- Annette Grüters-Kieslich serves as Board Chair.
- Where is Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen located?
- Headquartered in Bonn, North Rhine-Westphalia, Germany.
- What is Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen's annual budget?
- Annual revenue is approximately Under €10K.
- Is Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen trustworthy?
- Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen has a GiveRadar Integrity Assessment of 47 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen's registration number?
- Registration: R003973 (Germany).
- What is Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen's website?
- https://www.elhks.de
- Are donations to Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen tax-deductible?
- Donations may be tax-deductible for residents of Germany under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.