Familial Dysautonomia Now Foundation
To discover new treatments and cures for patients with famalial dysautonomia, a rare, fatal, genetic disease present at birth
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Familial Dysautonomia Now Foundation is a health organization based in BUFFALO GROVE, United States. Annual revenue: $293K. EIN: 263531031.
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
To discover new treatments and cures for patients with famalial dysautonomia, a rare, fatal, genetic disease present at birth
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesConcerns
· None foundWhere every $1 goes
· FY2025 · IRS 990 (FY2025)GiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
Based on the records currently verified by GiveRadar, Familial Dysautonomia Now Foundation has a complete profile, cross-referenced across 3 independent sources including the IRS.
- GiveRadar holds 6 years of financial filings for this organization, the most recent for fiscal year 2025 - a deeper filing history than 91% of the 51,422 health charities in the United States with filings on record. See the filings
- It has more complete contact information than nearly all comparable organizations, with a verified website, email, phone and address on record. See national comparisons
- Its integrity score of 86 places it in the top 2% of the 98,862 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
- government registration
- financial records (6 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyFamilial Dysautonomia Now Foundation is a registered health nonprofit based in Buffalo Grove, IL, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2009 and has been operating for 17 years. Its EIN is 263531031. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 86/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $289K in annual revenue. 37 officers and directors are publicly disclosed. No red flags have been detected.
Familial Dysautonomia Now Foundation's EIN (Employer Identification Number) is 263531031. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
Familial Dysautonomia Now Foundation has a GiveRadar Integrity Assessment of 86/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 86 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 93% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for health charities in United States is 90/100.
Familial Dysautonomia Now Foundation is located in Buffalo Grove, IL, United States. The organization was established in 2009 and has been active for 17 years.
Based on official tax filings, Familial Dysautonomia Now Foundation has $289K in annual revenue. It allocates 93% of expenses to programs and services. This is in line with the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Familial Dysautonomia Now Foundation is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $289K in annual revenue. The organization has 37 disclosed officers and directors.
No red flags have been detected for Familial Dysautonomia Now Foundation. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.
According to GiveRadar's records, Familial Dysautonomia Now Foundation holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 93% of expenses go to programs (the peer average is 89%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
Familial Dysautonomia Now Foundation is a health organization based in BUFFALO GROVE, United States. Annual revenue: $293K. EIN: 263531031. Familial Dysautonomia Now Foundation is classified as a health organization registered in United States. The organization was founded in 2009.
Among health charities registered in United States: It allocates 93% of expenses to programs, in line with the peer average of 89%. Its annual revenue of $289K is below the peer average of $41M.
Yes, donations to Familial Dysautonomia Now Foundation are generally tax-deductible in the United States. Familial Dysautonomia Now Foundation is a 501(c)(3) tax-exempt organization. Its EIN is 263531031, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Filing history
6 years on file from IRS 990 (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
FAMILIAL DYSAUTONOMIA NOW FOUNDATION is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
From FY2025 filing
Officers & trustees (9)
Source: Public filings
9 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
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Activity timeline
Filings and press mentions, merged
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How many charities work in each area, with this charity's area highlighted.
Most common causes in United States
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2025 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 37 disclosed in the public registry.
- Supplementary verification
- Charity Navigator
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · FY2025 on record
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Named leadership · 37 officers on file
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Tax-deductibility · Verified
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Founding date · 2009
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Executive payTop-officer pay not disclosed
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Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Familial Dysautonomia Now Foundation
- What is Familial Dysautonomia Now Foundation?
- Familial Dysautonomia Now Foundation is a health publicly-supported charity (509(a)(2)) based in Buffalo Grove, United States. Familial Dysautonomia Now Foundation is a health organization based in BUFFALO GROVE, United States. Annual revenue: $293K. EIN: 263531031.
- When was Familial Dysautonomia Now Foundation founded?
- Familial Dysautonomia Now Foundation was founded in 2009.
- Who leads Familial Dysautonomia Now Foundation?
- Ann Slaw serves as President.
- Where is Familial Dysautonomia Now Foundation located?
- Headquartered in Buffalo Grove, IL, United States.
- What is Familial Dysautonomia Now Foundation's annual budget?
- Annual revenue for fiscal year 2025 is approximately $100K-$1M. 93% of expenses go to program services.
- Is Familial Dysautonomia Now Foundation trustworthy?
- Familial Dysautonomia Now Foundation has a GiveRadar Integrity Assessment of 86 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Familial Dysautonomia Now Foundation's registration number?
- IRS EIN: 263531031.
- What is Familial Dysautonomia Now Foundation's website?
- http://www.fdnow.org