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Make your donationAbout Fop Friends
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
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Confirmed against the issuing authority - not self-reported.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar science & technology in United KingdomConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
Based on the records currently verified by GiveRadar, Fop Friends has a partial profile, sourced from the Charity Commission.
- GiveRadar holds 4 years of financial filings for this organization, the most recent for fiscal year 2024. See the filings
- GiveRadar's profile for Fop Friends draws on its financial disclosures and its registration, in line with the typical science & technology charities in the United Kingdom it tracks. View this cohort
- government registration
- financial records (4 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
- third-party accreditation
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyFop Friends is a registered science & technology nonprofit based in Sale, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 2012 and has been operating for 14 years. According to GiveRadar's records, it holds registration with the UK Fundraising Regulator, which means it has committed to the Code of Fundraising Practice and accountable fundraising standards. GiveRadar's Integrity Assessment for the organization is 72/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £143K in annual revenue. 6 officers and directors are publicly disclosed. No red flags have been detected.
Fop Friends's registered charity number is 1147704. You can use it to look up the organization on the Charity Commission register.
Fop Friends has a GiveRadar Integrity Assessment of 72/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 72 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for science & technology charities in United Kingdom is 86/100.
Fop Friends is located in Sale, United Kingdom. The organization was established in 2012 and has been active for 14 years.
Based on official tax filings, Fop Friends has £143K in annual revenue. Its revenue is below the peer average of £1M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Fop Friends is classified as a Science & Technology organization, registered in United Kingdom. It operates as a Trust. By size, it is categorized as a small organization. It has £143K in annual revenue. The organization has 6 disclosed officers and directors.
No red flags have been detected for Fop Friends. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.
According to GiveRadar's records, Fop Friends holds registration with the UK Fundraising Regulator, which means it has committed to the Code of Fundraising Practice and accountable fundraising standards. It is registered with the Charity Commission for England and Wales. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure. Fop Friends is classified as a science & technology organization registered in United Kingdom. The organization was founded in 2012.
Among science & technology charities registered in United Kingdom: Its annual revenue of £143K is below the peer average of £1M.
Fop Friends is a charitable trust, the oldest legal form for UK charities. Trusts are governed by a trust deed and overseen by trustees who manage the charity's assets for the benefit of its stated purposes. Trusts are not incorporated and do not have a separate legal personality.
You can verify Fop Friends in several ways. First, search the Charity Commission Register at https://register-of-charities.charitycommission.gov.uk/ - every charity registered in England and Wales appears here with its registration number, trustees, governing document, and filed accounts. Second, check whether the charity's annual return and accounts are up to date - the Commission flags charities with overdue filings. Third, look for the Fundraising Regulator badge on the charity's website, which signals voluntary compliance with the Code of Fundraising Practice.
You can donate to Fop Friends directly through its donation page (https://www.fopfriends.com/you-can-help/donate/). UK charities typically accept online card payments, direct debit, and bank transfer. Many also use platforms such as JustGiving or Charities Aid Foundation (CAF). If you are a UK taxpayer, make sure to tick the Gift Aid box: it lets the charity reclaim 25p from HMRC for every pound you give at no extra cost to you. Higher-rate taxpayers can claim back the difference between basic-rate and their marginal rate through Self Assessment. Payroll Giving (Give As You Earn) lets you donate pre-tax through your employer.
Yes, Fop Friends is registered with the Fundraising Regulator (FR), the independent regulator of charitable fundraising in England, Wales, and Northern Ireland. Registration means the charity has committed to following the Code of Fundraising Practice and the Fundraising Promise, which set standards for honest, respectful, and transparent fundraising. Donors can complain to the FR if they believe a charity has breached the Code.
Donations to Fop Friends are eligible for Gift Aid if you are a UK income-tax or capital-gains-tax payer. Gift Aid adds 25% to your donation at no cost to you (the charity reclaims basic-rate tax from HMRC). Higher-rate and additional-rate taxpayers can also claim back the difference through Self Assessment or by adjusting their PAYE tax code. Gifts of shares, property, or land to charity are free of Capital Gains Tax and can be deducted from your income for Income Tax purposes. Legacy gifts (in your will) reduce the value of your estate for Inheritance Tax and can lower the IHT rate from 40% to 36% if you leave at least 10% to charity.
Fop Friends is based in Sale. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.
Fop Friends was first registered in 2012, making it approximately 14 years old. UK charities must file an annual return with the Charity Commission to remain on the register. A long registration history generally indicates sustained operations and continuous regulatory compliance.
Filing history
4 years on file from Charity Commission (UK) (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
UK donations qualify for Gift Aid. FOP FRIENDS is registered with the Charity Commission. Eligible UK taxpayers can boost their gift by 25% at no extra cost.
FOP FRIENDS is in United Kingdom, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
FOP FRIENDS is registered in United Kingdom. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
From FY2024 filing
Officers & trustees (6)
Source: Public filings
6 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
News coverage will appear here when articles mention this organization.
Activity timeline
Filings and press mentions, merged
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Sign up to write a reviewCause areas in United Kingdom
How many charities work in each area, with this charity's area highlighted.
Most common causes in United Kingdom
Causes charities work on most.
Sources and verification
- Registration and legal identity
- Charity Commission for England and Wales - Register of Charities
- Financial filings
- Charity Commission annual returns - Fiscal year 2024 most recent on file.
- Officers and trustees
- Charity Commission for England and Wales - Register of Charities - 6 disclosed in the public registry.
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · FY2024 on record
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Named leadership · 6 officers on file
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Government registration · Registered with an official registry
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Tax-deductibility · Verified
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Founding date · 2012
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Executive payTop-officer pay not disclosed
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Mission statementNo self-published statement of purpose
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Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Fop Friends
- What is Fop Friends?
- Fop Friends is a science & technology trust based in Sale, United Kingdom. FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
- When was Fop Friends founded?
- Fop Friends was founded in 2012.
- Where is Fop Friends located?
- Headquartered in Sale, United Kingdom.
- What is Fop Friends's annual budget?
- Annual revenue for fiscal year 2024 is approximately £100K-£1M.
- Is Fop Friends trustworthy?
- Fop Friends has a GiveRadar Integrity Assessment of 72 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Fop Friends's website?
- https://www.fopfriends.com
- Are donations to Fop Friends tax-deductible?
- Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.