Malaysian Rare Disorders Society (MRDS)
Supporting families affected by rare disorders in Malaysia
Malaysian Rare Disorders Society
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Make your donationAbout Malaysian Rare Disorders Society (MRDS)
The Malaysian Rare Disorders Society is a support group founded by parents of children receiving care at the University Malaya Medical Centre. It is dedicated to assisting individuals and families dealing with rare medical conditions, which may be caused by genetic, environmental, or unknown factors, including conditions such as brittle bone disease, Duchenne Muscular Dystrophy, and Prader-Willi syndrome. The society's objectives include caring for the wellbeing of affected individuals and their families and raising awareness of rare disorders.
Mission
To support individuals and families living with rare disorders through community, advocacy, and welfare services.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in MalaysiaConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
Based on the records currently verified by GiveRadar, Malaysian Rare Disorders Society (MRDS) has a partial profile.
- GiveRadar holds a more complete profile for this organization than for 87% of the 141 health charities in Malaysia it tracks, because GiveRadar has verified its governance and its contact details. Most of those have little verified data on record yet. View this cohort
- It has more complete governance disclosure than nearly all similar organizations, because GiveRadar has verified leadership, a mission statement and a founding date. See national comparisons
- GiveRadar has not yet verified financial records for this organization, nor for any health charities in Malaysia - a gap in GiveRadar's dataset for the region, not a feature of this charity. Explore Malaysia data
- government registration
- disclosed leadership
- a website
- a contact email
- a donation page
- financial records
- third-party accreditation
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyMalaysian Rare Disorders Society (MRDS) is a health nonprofit based in Petaling Jaya, Selangor, Malaysia. GiveRadar lists it from public charity directories and does not hold an official government registration record for it. It was founded in 2004 and has been operating for 22 years. Its registration number is PPM-014-14-18012007. GiveRadar's Integrity Assessment for the organization is 46/100, which reflects how much public information is available, not whether the charity is legitimate.
Malaysian Rare Disorders Society (MRDS) has a GiveRadar Integrity Assessment of 46/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 46 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in Malaysia is 48/100.
Malaysian Rare Disorders Society (MRDS) is located in Petaling Jaya, Selangor, Malaysia. The organization was established in 2004 and has been active for 22 years.
Malaysian Rare Disorders Society (MRDS) is classified as a Health organization, based in Malaysia. The organization has 3 disclosed officers and directors.
Malaysian Rare Disorders Society (MRDS) is listed in GiveRadar's directory of Malaysia nonprofits, compiled from public charity directories. GiveRadar does not hold an official government registration record for it, so confirm its registration status directly before giving. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
The Malaysian Rare Disorders Society is a support group founded by parents of children receiving care at the University Malaya Medical Centre. It is dedicated to assisting individuals and families dealing with rare medical conditions, which may be caused by genetic, environmental, or unknown factors, including conditions such as brittle bone disease, Duchenne Muscular Dystrophy, and Prader-Willi syndrome. The society's objectives include caring for the wellbeing of affected individuals and their families and raising awareness of rare disorders. Malaysian Rare Disorders Society (MRDS) is a health organization based in Malaysia. The organization was founded in 2004.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of Malaysia under local rules. Confirm with the charity directly.
Malaysian Rare Disorders Society is listed in Malaysia. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Malaysian Rare Disorders Society is listed in Malaysia. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
Officers & trustees (3)
Source: Charity website (via AI extraction)
3 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
News coverage will appear here when articles mention this organization.
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How many charities work in each area, with this charity's area highlighted.
Most common causes in Malaysia
Causes charities work on most.
Sources and verification
- News and media coverage
- GDELT Project + Google News
Part of this profile's description was written with AI, summarizing public sources such as official registry data and the organization's own website. Financial figures, registration details, and the sources listed above are not AI-generated. Read how we use AI.
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Named leadership · 3 officers on file
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Founding date · 2004
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Financial dataNo annual financial filings on file
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Executive payTop-officer pay not disclosed
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Programs & activitiesNo named programs listed by the charity
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Tax-deductibilityNot verified
Methodology
GiveRadar builds each profile from official charity directories and public registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Malaysian Rare Disorders Society (MRDS)
- What is Malaysian Rare Disorders Society (MRDS)?
- Malaysian Rare Disorders Society (MRDS) is a health nonprofit organization based in Petaling Jaya, Malaysia. The Malaysian Rare Disorders Society is a support group founded by parents of children receiving care at the University Malaya Medical Centre. It is dedicated to assisting individuals and families dealing with rare medical conditions, which may be caused by genetic, environmental, or unknown factors, including conditions such as brittle bone disease, Duchenne Muscular Dystrophy, and Prader-Willi syndrome. The society's objectives include caring for the wellbeing of affected individuals and their families and raising awareness of rare disorders.
- When was Malaysian Rare Disorders Society (MRDS) founded?
- Malaysian Rare Disorders Society (MRDS) was founded in 2004.
- Where is Malaysian Rare Disorders Society (MRDS) located?
- Headquartered in Petaling Jaya, Selangor, Malaysia.
- Is Malaysian Rare Disorders Society (MRDS) trustworthy?
- Malaysian Rare Disorders Society (MRDS) has a GiveRadar Integrity Assessment of 46 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Malaysian Rare Disorders Society (MRDS)'s registration number?
- Registration: PPM-014-14-18012007 (Malaysia).
- What is Malaysian Rare Disorders Society (MRDS)'s website?
- https://www.mrds.org.my
- Are donations to Malaysian Rare Disorders Society (MRDS) tax-deductible?
- Donations may be tax-deductible for residents of Malaysia under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.