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National Tay Sachs & Allied Diseases Association Inc logo

National Tay Sachs & Allied Diseases Association Inc

To detect, prevent and research tay-sachs and allied diseases. The organization also provides services to families and children that are living with the diseases.

National Tay-Sachs & Allied Diseases Ass

Health Brighton, MA EIN 131912877 · IRS Sign up to see website
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89
Integrity Assessment
Strong transparency
89/100 · methodology

About National Tay Sachs & Allied Diseases Association Inc

National Tay-Sachs & Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Founded
Headquarters
Brighton, MA
Foundation type
Supporting organization (509(a)(3))
NTEE code
G2XZ
IRS subsection
501(c)(03)
Ruling date
Size
medium

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 1959

Mission

To detect, prevent and research tay-sachs and allied diseases. The organization also provides services to families and children that are living with the diseases.

Focus areas & reach

· What they work on and where
❤️ Health · NTEE G2XZ
Cause tags

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 0%
Peer average: 24%
CEO comp as % of revenue This charity: 8.51%
Peer average: 0.48%
Integrity Assessment This charity: 89
Peer average: 90

Red flags

· All clear
IRS revocation history
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Common questions

· Auto-generated from filings + methodology

National Tay Sachs & Allied Diseases Association Inc is a registered health nonprofit based in Brighton, MA, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1957 and has been operating for 69 years. Its EIN is 131912877. It has a GiveRadar Integrity Assessment of 89/100 (Strong transparency), indicating well-documented governance, financials, and contact details. The organization reports $1M in annual revenue. 47 officers and directors are publicly disclosed. No red flags have been detected.

National Tay Sachs & Allied Diseases Association Inc has a GiveRadar Integrity Assessment of 89/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 89 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.

National Tay Sachs & Allied Diseases Association Inc is located in Brighton, MA, United States. The organization was established in 1957 and has been active for 69 years.

Based on official tax filings, National Tay Sachs & Allied Diseases Association Inc has $1M in annual revenue. Its revenue is below the peer average of $38M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

National Tay Sachs & Allied Diseases Association Inc is classified as a Health organization, registered in United States. It operates as a Supporting organization (509(a)(3)). By size, it is categorized as a medium organization. It has $1M in annual revenue. The organization has 47 disclosed officers and directors.

No red flags have been detected for National Tay Sachs & Allied Diseases Association Inc. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

National Tay Sachs & Allied Diseases Association Inc has a GiveRadar Integrity Assessment of 89/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the IRS. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

National Tay-Sachs & Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases. National Tay Sachs & Allied Diseases Association Inc is classified as a health organization registered in United States. The organization was founded in 1957.

Among health charities registered in United States: National Tay Sachs & Allied Diseases Association Inc's GiveRadar Integrity Assessment of 89/100 is in line with the peer average of 90/100. Its annual revenue of $1M is below the peer average of $38M.

Yes, donations to National Tay Sachs & Allied Diseases Association Inc are generally tax-deductible in the United States. National Tay Sachs & Allied Diseases Association Inc is a 501(c)(3) tax-exempt organization. Its EIN is 131912877, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Verified against 3 official sources, last refreshed .

Annual revenue
$1M-$10M
0% to programs
Source: IRS 990 (FY2025) why this matters
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Filing history

6 years on file from IRS 990 (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2025, FY2024, FY2023, FY2022, FY2021, FY2020.
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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

KA
Kathleen M Flynn
Chief Executive Officer

Officers & trustees (24)

Source: Public filings

AB
Abby R•••••
Director
AM
Amy S••••
Director
BL
Blyth L•••
Director
BO
Bonnie D••••
Director
CA
Carla S•••••••
Director
CH
Chris C••••••
Director
GE
Gerry C••
Director
JA
Jamie R•••
Director
JO
Jonathan K•••
Director
KA
Karen G•••••••
Director
KA
Kathleen M F••••
Chief Executive Officer
LA
Lauren C•••••
Director
LI
Lisajane R••••
SECRETARY
MA
Marion Y•••••••
Director
MA
Martha K•••••••
Director
MI
Michael R•••••••
TREASURER
OR
Oralea M••••••••
VICE PRESIDENT
RU
Ruth F••••••
Director
SA
Sara S•••••••••
Director
SO
Sophia P•••••••••••
Director
ST
Staci K••••••
PRESIDENT
SU
Susan K•••
FORMER EXECUTIVE DIRECTOR
SU
Susan R K•••
Executive Director
SU
Susan R••••
Director
Full names, contact details & compensation

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$1.4M revenue
FY2025
IRS_990
Form filed
$1.4M revenue
FY2024
IRS_990
Form filed
$1.2M revenue
FY2023
IRS_990
Form filed
$1.3M revenue
FY2022
IRS_990
Form filed
$1.3M revenue
FY2021
IRS_990
Form filed
$1.2M revenue
FY2020
IRS_990

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Peer charities

Other health in United States, by integrity assessment

Charity Score Revenue Program %
National Tay Sachs & Allied Diseases Association Inc This page 89 $1.4 million -
Dr Lorna Breen Heroes Foundation 93 $2.3 million 100%
Attune Center for Healing 93 $1.2 million 87%
Connections for Life 89 $2.8 million -
Dream on 3 89 $3.0 million -
Brain Injury Services Inc 89 $3.9 million 2%
Ellen Obrien Gaiser Addiction Center Inc 89 $4.8 million -
Center for Pranic Healing Inc 89 $1.8 million -
Community Blood Bank of Erie County 89 $8.1 million -

Sources and verification

Refreshed

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2025 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 47 disclosed in the public registry.

Data freshness

Last updated
May 27, 2026
Profile completeness
90%

What we don't know

Honest gaps - our score reflects transparency, not impact

Programs & projects
No named programs listed by the charity
Operating reach
Countries where programs run not specified

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about National Tay Sachs & Allied Diseases Association Inc

What is National Tay Sachs & Allied Diseases Association Inc?
National Tay Sachs & Allied Diseases Association Inc is a health supporting organization (509(a)(3)) based in Brighton, United States. National Tay-Sachs & Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.
When was National Tay Sachs & Allied Diseases Association Inc founded?
National Tay Sachs & Allied Diseases Association Inc was founded in 1957.
Who leads National Tay Sachs & Allied Diseases Association Inc?
Kathleen M Flynn serves as Chief Executive Officer.
Where is National Tay Sachs & Allied Diseases Association Inc located?
Headquartered in Brighton, United States.
What is National Tay Sachs & Allied Diseases Association Inc's annual budget?
Annual revenue for fiscal year 2025 is approximately $1M-$10M. 0% of expenses go to program services.
Is National Tay Sachs & Allied Diseases Association Inc trustworthy?
National Tay Sachs & Allied Diseases Association Inc has a GiveRadar Integrity Assessment of 89 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is National Tay Sachs & Allied Diseases Association Inc's registration number?
IRS EIN: 131912877.
What is National Tay Sachs & Allied Diseases Association Inc's website?
http://www.ntsad.org