National Tay Sachs & Allied Diseases Association Inc
To detect, prevent and research tay-sachs and allied diseases. The organization also provides services to families and children that are living with the diseases.
National Tay-Sachs & Allied Diseases Ass
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National Tay-Sachs & Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
To detect, prevent and research tay-sachs and allied diseases. The organization also provides services to families and children that are living with the diseases.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesRed flags
· All clearCommon questions
· Auto-generated from filings + methodologyNational Tay Sachs & Allied Diseases Association Inc is a registered health nonprofit based in Brighton, MA, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1957 and has been operating for 69 years. Its EIN is 131912877. It has a GiveRadar Integrity Assessment of 89/100 (Strong transparency), indicating well-documented governance, financials, and contact details. The organization reports $1M in annual revenue. 47 officers and directors are publicly disclosed. No red flags have been detected.
National Tay Sachs & Allied Diseases Association Inc has a GiveRadar Integrity Assessment of 89/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 89 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.
National Tay Sachs & Allied Diseases Association Inc is located in Brighton, MA, United States. The organization was established in 1957 and has been active for 69 years.
Based on official tax filings, National Tay Sachs & Allied Diseases Association Inc has $1M in annual revenue. Its revenue is below the peer average of $38M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
National Tay Sachs & Allied Diseases Association Inc is classified as a Health organization, registered in United States. It operates as a Supporting organization (509(a)(3)). By size, it is categorized as a medium organization. It has $1M in annual revenue. The organization has 47 disclosed officers and directors.
No red flags have been detected for National Tay Sachs & Allied Diseases Association Inc. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.
National Tay Sachs & Allied Diseases Association Inc has a GiveRadar Integrity Assessment of 89/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the IRS. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.
National Tay-Sachs & Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases. National Tay Sachs & Allied Diseases Association Inc is classified as a health organization registered in United States. The organization was founded in 1957.
Among health charities registered in United States: National Tay Sachs & Allied Diseases Association Inc's GiveRadar Integrity Assessment of 89/100 is in line with the peer average of 90/100. Its annual revenue of $1M is below the peer average of $38M.
Yes, donations to National Tay Sachs & Allied Diseases Association Inc are generally tax-deductible in the United States. National Tay Sachs & Allied Diseases Association Inc is a 501(c)(3) tax-exempt organization. Its EIN is 131912877, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Verified against 3 official sources, last refreshed .
Filing history
6 years on file from IRS 990 (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
Officers & trustees (24)
Source: Public filings
Latest news
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Other health in United States, by integrity assessment
Sources and verification
Refreshed
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2025 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 47 disclosed in the public registry.
Data freshness
What we don't know
Honest gaps - our score reflects transparency, not impact
Methodology
GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.
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Quick facts about National Tay Sachs & Allied Diseases Association Inc
- What is National Tay Sachs & Allied Diseases Association Inc?
- National Tay Sachs & Allied Diseases Association Inc is a health supporting organization (509(a)(3)) based in Brighton, United States. National Tay-Sachs & Allied Diseases Association leads the worldwide mission to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.
- When was National Tay Sachs & Allied Diseases Association Inc founded?
- National Tay Sachs & Allied Diseases Association Inc was founded in 1957.
- Who leads National Tay Sachs & Allied Diseases Association Inc?
- Kathleen M Flynn serves as Chief Executive Officer.
- Where is National Tay Sachs & Allied Diseases Association Inc located?
- Headquartered in Brighton, United States.
- What is National Tay Sachs & Allied Diseases Association Inc's annual budget?
- Annual revenue for fiscal year 2025 is approximately $1M-$10M. 0% of expenses go to program services.
- Is National Tay Sachs & Allied Diseases Association Inc trustworthy?
- National Tay Sachs & Allied Diseases Association Inc has a GiveRadar Integrity Assessment of 89 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is National Tay Sachs & Allied Diseases Association Inc's registration number?
- IRS EIN: 131912877.
- What is National Tay Sachs & Allied Diseases Association Inc's website?
- http://www.ntsad.org