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Visit nichtgenesen.orgAbout NichtGenesen
The patient organisation Non-Genesis represents the interests (research, recognition, care) of people with long-post-COVID, ME/CFS, post-vac syndrome and generally of those with post-acute infection syndromes (PAIS). The association of people with diseased patients and their relatives is active at the national and federal level both in health and social policy and is also active in the nationwide self-help. Non-Genesis is networked with actors: women from science, health care and politics and regularly brings the perspective of those affected into political and scientific discourses – among others as a participant in the round table "Long Covid" and the "Alliance Post-Infectious Diseases" in the Federal Ministry of Health as well as in exchange with the Federal Ministry of Research, Technology and Space. …
Die Patientenorganisation NichtGenesen vertritt die Interessen (Forschung, Anerkennung, Versorgung) von Menschen mit Long-/Post-COVID, ME/CFS, Post-Vac-Syndrom sowie allgemein von Betroffenen mit postakuten Infektionssyndromen (PAIS). Der Zusammenschluss aus Erkrankten und deren Angehörigen engagiert sich auf Landes- und Bundesebene sowohl gesundheits- als auch sozialpolitisch und ist zugleich in der bundesweiten Selbsthilfe aktiv. NichtGenesen ist vernetzt mit Akteur:innen aus Wissenschaft, Gesundheitswesen und Politik und bringt die Perspektive der Betroffenen regelmäßig in politische und wissenschaftliche Diskurse ein – unter anderem als Teilnehmerin des Runden Tisches „Long Covid“ und der „Allianz Postinfektiöse Erkrankungen“ im Bundesministerium für Gesundheit sowie im Austausch mit dem Bundesministerium für Forschung, Technologie und Raumfahrt. Die Organisation pflegt den Austausch mit Abgeordneten und Mitarbeitern verschiedener Fraktionen und Parteien auf Landes- und Bundesebene, im …
Translated from German by GiveRadar.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar community development in GermanyConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
From what GiveRadar has verified so far, NichtGenesen has a substantially complete profile.
- GiveRadar has verified financial records for only 1% of community development charities in Germany, and this is one of them. See national comparisons
- It has more complete contact information than nearly all comparable charities, with a verified website, email, phone and address on record. See national comparisons
- It is one of the better-documented community development charities in Germany GiveRadar currently tracks, because GiveRadar has verified its contact details. Most of those have little verified data on record yet. View this cohort
- government registration
- financial records
- disclosed leadership
- a website
- a contact email
- a donation page
- third-party accreditation
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyNichtGenesen is a registered community development nonprofit based in Torgelow, Mecklenburg-Vorpommern, Germany. It is registered with the German Vereinsregister (Association Register). Its registration number is R007749. GiveRadar's Integrity Assessment for the organization is 43/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports €0 in annual revenue.
NichtGenesen's official registration number is R007749, as recorded in the national registry of Germany.
NichtGenesen has a GiveRadar Integrity Assessment of 43/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 43 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for community development charities in Germany is 62/100.
NichtGenesen is located in Torgelow, Mecklenburg-Vorpommern, Germany.
Based on official tax filings, NichtGenesen has €0 in annual revenue. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
NichtGenesen is classified as a Community Development organization, registered in Germany. By size, it is categorized as a micro organization. It has €0 in annual revenue.
According to GiveRadar's records, NichtGenesen is registered with the German Vereinsregister (Association Register) and overseen by the local Amtsgericht (district court). GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
The patient organisation Non-Genesis represents the interests (research, recognition, care) of people with long-post-COVID, ME/CFS, post-vac syndrome and generally of those with post-acute infection syndromes (PAIS). The association of people with diseased patients and their relatives is active at the national and federal level both in health and social policy and is also active in the nationwide self-help. Non-Genesis is networked with actors: women from science, health care and politics and regularly brings the perspective of those affected into political and scientific discourses – among others as a participant in the round table "Long Covid" and the "Alliance Post-Infectious Diseases" in the Federal Ministry of Health as well as in... NichtGenesen is classified as a community development organization registered in Germany.
NichtGenesen is a registered nonprofit in Germany. Donations to recognized charitable organizations (gemeinnuetzige Organisationen) are tax-deductible up to 20% of your total income. You will need a donation receipt (Zuwendungsbestaetigung) from the organization for your tax return.
You can verify NichtGenesen's charitable status in several ways. First, check the Zuwendungsempfaengerregister (ZER) at https://www.bzst.de/DE/Unternehmen/Zuwendungsempfaengerregister_organisation/zuwendungsempfaengerregister_organisation_node.html - the BZSt maintains this federal register of all organisations eligible to receive tax-deductible donations in Germany. Second, you can look up the association in the Vereinsregister (association register) at the local Amtsgericht (district court) via https://www.handelsregister.de/ - this confirms the legal form, registered address, and board members. Third, check whether the organisation holds the Freistellungsbescheid (tax-exemption notice) from its local Finanzamt - the notice is re-issued every three years and confirms the 'gemeinnuetzig' status under the Abgabenordnung. Legitimate charities publish this on their website or provide it on request.
Contact NichtGenesen directly for current donation methods. German charities typically accept SEPA bank transfer (Ueberweisung) to the organisation's IBAN, SEPA direct debit (Lastschrift/Einzugsermaechtigung) for recurring donations, PayPal, credit card payments, and online payment processors like Stripe or Mollie. Many German charities use platforms like betterplace.org, GoFundMe, or their own Spendenseite (donation page). International donors can give via SEPA transfer (Germany is in the eurozone) or PayPal. For your donation to be tax-deductible, you need a Zuwendungsbestaetigung (donation receipt) from the organisation - for amounts up to 300 euros, a bank statement showing the transfer is sufficient.
NichtGenesen is based in Torgelow, in the state of Mecklenburg-Vorpommern on Germany's Baltic Sea coast. Germany is a federation of 16 states (Bundeslaender). Charitable status ('Gemeinnuetzigkeit') is granted by the local Finanzamt and recognised nationwide - the organisation can solicit tax-deductible donations from donors anywhere in Germany.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
German donations are deductible if NichtGenesen holds a Freistellungsbescheid (recognition as a charitable purpose) and issues a Zuwendungsbestätigung receipt.
NichtGenesen is in Germany, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
NichtGenesen is registered in Germany. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
Latest news
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Sign up to write a reviewCause areas in Germany
How many charities work in each area, with this charity's area highlighted.
Most common causes in Germany
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Bundesanzeiger (German Federal Gazette)
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Named leadership · Lead officer named
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Government registration · Registered with an official registry
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Financial dataNo Bundesanzeiger publications on file
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Executive payTop-officer pay not disclosed
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Mission statementNo self-published statement of purpose
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Programs & activitiesNo named programs listed by the charity
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Tax-deductibilityNot verified
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Founding dateYear founded not on file
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about NichtGenesen
- What is NichtGenesen?
- NichtGenesen is a community development nonprofit organization based in Torgelow, Germany. The patient organisation Non-Genesis represents the interests (research, recognition, care) of people with long-post-COVID, ME/CFS, post-vac syndrome and generally of those with post-acute infection syndromes (PAIS). The association of people with diseased patients and their relatives is active at the national and federal level both in health and social policy and is also active in the nationwide self-help. Non-Genesis is networked with actors: women from science, health care and politics and regularly brings the perspective of those affected into political and scientific discourses – among others as a participant in the round table "Long Covid" and the "Alliance Post-Infectious Diseases" in the Federal Ministry of Health as well as in exchange with the Federal Ministry of Research, Technology and Space. The organisation maintains the exchange with representatives and employees of various political groups and parties at the federal and state level, in the German Bundestag as well as in the federal ministries, and participates as an expert in various public hearings in the German Bundestag (including written statements). The perspective of those affected is also involved in the position of the situation papers or opinions submitted by the respondents on specific questions and on the state.
- Who leads NichtGenesen?
- Ricarda Piepenhagen serves as Gründerin der Organisation.
- Where is NichtGenesen located?
- Headquartered in Torgelow, Mecklenburg-Vorpommern, Germany.
- Is NichtGenesen trustworthy?
- NichtGenesen has a GiveRadar Integrity Assessment of 43 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is NichtGenesen's registration number?
- Registration: R007749 (Germany).
- What is NichtGenesen's website?
- https://nichtgenesen.org/
- Are donations to NichtGenesen tax-deductible?
- Donations may be tax-deductible for residents of Germany under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.