Primary Ciliary Dyskinesia Support UK

Primary Ciliary Dyskinesia Support UK is a registered science & technology nonprofit based in Berkshire, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 1995 and has been operating for 31 years. Its registration number is 1049931. GiveRadar's Integrity Assessment for the organization is 72/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £66K in annual revenue. No red flags have been detected.

Primary Ciliary Dyskinesia Support UK's registered charity number is 1049931. You can use it to look up the organization on the Charity Commission register.

Primary Ciliary Dyskinesia Support UK has a GiveRadar Integrity Assessment of 72/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 72 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for science & technology charities in United Kingdom is 86/100.

Primary Ciliary Dyskinesia Support UK is located in Berkshire, United Kingdom. The organization was established in 1995 and has been active for 31 years.

Based on official tax filings, Primary Ciliary Dyskinesia Support UK has £66K in annual revenue. Its revenue is below the peer average of £1M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Primary Ciliary Dyskinesia Support UK is classified as a Science & Technology organization, registered in United Kingdom. It operates as an Unincorporated Association. By size, it is categorized as a small organization. It has £66K in annual revenue. The organization has 4 disclosed officers and directors.

No red flags have been detected for Primary Ciliary Dyskinesia Support UK. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

According to GiveRadar's records, Primary Ciliary Dyskinesia Support UK is registered with the Charity Commission for England and Wales and overseen by the Charity Commission. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

1.Provide support to patients and their carers who have, or are suspected of having, PCD2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public.3.To promote research to aid diagnosis and treatment of patients with PCD.4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care. Primary Ciliary Dyskinesia Support UK is classified as a science & technology organization registered in United Kingdom. The organization was founded in 1995.

Among science & technology charities registered in United Kingdom: Its annual revenue of £66K is below the peer average of £1M.

Primary Ciliary Dyskinesia Support UK is an unincorporated association, a group of people who agree to come together for a common charitable purpose. This is the simplest legal structure: it has no separate legal identity, so contracts and property must be held by individual trustees on behalf of the charity. Its Charity Commission registration number is 1049931.

You can verify Primary Ciliary Dyskinesia Support UK in several ways. First, search the Charity Commission Register at https://register-of-charities.charitycommission.gov.uk/ - every charity registered in England and Wales appears here with its registration number, trustees, governing document, and filed accounts. Second, check whether the charity's annual return and accounts are up to date - the Commission flags charities with overdue filings. Third, look for the Fundraising Regulator badge on the charity's website, which signals voluntary compliance with the Code of Fundraising Practice.

Contact Primary Ciliary Dyskinesia Support UK directly for current donation methods. UK charities typically accept online card payments, direct debit, and bank transfer. Many also use platforms such as JustGiving or Charities Aid Foundation (CAF). If you are a UK taxpayer, make sure to tick the Gift Aid box: it lets the charity reclaim 25p from HMRC for every pound you give at no extra cost to you. Higher-rate taxpayers can claim back the difference between basic-rate and their marginal rate through Self Assessment. Payroll Giving (Give As You Earn) lets you donate pre-tax through your employer.

Donations to Primary Ciliary Dyskinesia Support UK are eligible for Gift Aid if you are a UK income-tax or capital-gains-tax payer. Gift Aid adds 25% to your donation at no cost to you (the charity reclaims basic-rate tax from HMRC). Higher-rate and additional-rate taxpayers can also claim back the difference through Self Assessment or by adjusting their PAYE tax code. Gifts of shares, property, or land to charity are free of Capital Gains Tax and can be deducted from your income for Income Tax purposes. Legacy gifts (in your will) reduce the value of your estate for Inheritance Tax and can lower the IHT rate from 40% to 36% if you leave at least 10% to charity.

Primary Ciliary Dyskinesia Support UK is based in Berkshire. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.

Primary Ciliary Dyskinesia Support UK was first registered in 1995, making it approximately 31 years old. UK charities must file an annual return with the Charity Commission to remain on the register. A long registration history generally indicates sustained operations and continuous regulatory compliance.