PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen
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As the oldest and largest patient organisation for people with retinal diseases, PRO RETINA has always been committed to supporting social processes. PRO RETINA is an active patient organisation at various levels for the interests of people with a rare retinal degeneration and age-dependent macula degeneration (AMD). PRO RETINA is a nationwide patient organisation, which is geographically structured in almost 60 regional groups and structured in four areas of expertise and content. One focus is the professional dialogue with research, medicine, pharmaceutical industry, social associations and politics. This is done within the framework of various event formats, patient symposia or discussion forums. In addition, ProRetina actively engages in the interests of blind and visually impaired persons at all political levels. …
Als älteste und größte Patientenorganisation für Menschen mit Netzhauterkrankungen erhebt PRO RETINA seit jeher den Anspruch, gesellschaftliche Prozesse zu begleiten. PRO RETINA setzt sich aktiv auf verschiedenen Ebenen für die Interessen von Menschen mit einer seltenen Netzhautdegeneration und Altersabhängiger Makula-Degeneration (AMD) ein. PRO RETINA ist eine bundesweit agierende Patientenorganisation, die in fast 60 Regionalgruppen geographisch gegliedert und fachlich und inhaltlich in vier Fachbereichen strukturiert ist. Ein Fokus ist dabei der fachliche Dialog mit Forschung, Medizin, pharmazeutischer Industrie, Sozialverbänden und Politik. Dieser geschieht im Rahmen von verschiedenen Veranstaltungsformaten, Patientensymposien oder Diskussionsforen. Außerdem setzt sich ProRetina aktiv auf allen politischen Ebenen für die Interessen von erblindeten und sehbehinderten Personen ein. Häufig wird im Rahmen von Koalitionsverhandlungen und Gesetzgebungsverfahren noch ohne uns über …
Translated from German by GiveRadar.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in GermanyConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
Based on the records currently verified by GiveRadar, PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen has a substantially complete profile.
- GiveRadar has verified financial records for only 1% of health charities in Germany, and this is one of them. See national comparisons
- It has more complete contact information than nearly all comparable charities, with a verified website, email, phone and address on record. See national comparisons
- GiveRadar has verified more about this organization than about 95% of the 33,744 health charities in Germany it tracks, because GiveRadar has verified its contact details. Most of those have little verified data on record yet. View this cohort
- government registration
- financial records
- disclosed leadership
- a website
- a contact email
- a donation page
- third-party accreditation
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyPRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is a registered health nonprofit based in Bonn, North Rhine-Westphalia, Germany. It is registered with the German Vereinsregister (Association Register). Its registration number is R001384. GiveRadar's Integrity Assessment for the organization is 46/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports €75K in annual revenue.
PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen's official registration number is R001384, as recorded in the national registry of Germany.
PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen has a GiveRadar Integrity Assessment of 46/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 46 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in Germany is 64/100.
PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is located in Bonn, North Rhine-Westphalia, Germany.
Based on official tax filings, PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen has €75K in annual revenue. Its revenue is below the peer average of €11M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is classified as a Health organization, registered in Germany. By size, it is categorized as a micro organization. It has €75K in annual revenue.
According to GiveRadar's records, PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is registered with the German Vereinsregister (Association Register) and overseen by the local Amtsgericht (district court). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
As the oldest and largest patient organisation for people with retinal diseases, PRO RETINA has always been committed to supporting social processes. PRO RETINA is an active patient organisation at various levels for the interests of people with a rare retinal degeneration and age-dependent macula degeneration (AMD). PRO RETINA is a nationwide patient organisation, which is geographically structured in almost 60 regional groups and structured in four areas of expertise and content. One focus is the professional dialogue with research, medicine, pharmaceutical industry, social associations and politics. This is done within the framework of various event formats, patient symposia or discussion forums. In addition, ProRetina actively engages in the interests... PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is classified as a health organization registered in Germany.
Among health charities registered in Germany: Its annual revenue of €75K is below the peer average of €11M.
PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is a registered nonprofit in Germany. Donations to recognized charitable organizations (gemeinnuetzige Organisationen) are tax-deductible up to 20% of your total income. You will need a donation receipt (Zuwendungsbestaetigung) from the organization for your tax return.
You can verify PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen's charitable status in several ways. First, check the Zuwendungsempfaengerregister (ZER) at https://www.bzst.de/DE/Unternehmen/Zuwendungsempfaengerregister_organisation/zuwendungsempfaengerregister_organisation_node.html - the BZSt maintains this federal register of all organisations eligible to receive tax-deductible donations in Germany. Second, you can look up the association in the Vereinsregister (association register) at the local Amtsgericht (district court) via https://www.handelsregister.de/ - this confirms the legal form, registered address, and board members. Third, check whether the organisation holds the Freistellungsbescheid (tax-exemption notice) from its local Finanzamt - the notice is re-issued every three years and confirms the 'gemeinnuetzig' status under the Abgabenordnung. Legitimate charities publish this on their website or provide it on request.
You can donate to PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen directly through its donation page (https://www.pro-retina.de/pro-retina/spenden/spendenformular). German charities typically accept SEPA bank transfer (Ueberweisung) to the organisation's IBAN, SEPA direct debit (Lastschrift/Einzugsermaechtigung) for recurring donations, PayPal, credit card payments, and online payment processors like Stripe or Mollie. Many German charities use platforms like betterplace.org, GoFundMe, or their own Spendenseite (donation page). International donors can give via SEPA transfer (Germany is in the eurozone) or PayPal. For your donation to be tax-deductible, you need a Zuwendungsbestaetigung (donation receipt) from the organisation - for amounts up to 300 euros, a bank statement showing the transfer is sufficient.
PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is based in Bonn, in the state of North Rhine-Westphalia (Nordrhein-Westfalen), Germany's most populous state, home to Cologne, Düsseldorf, and Dortmund. Germany is a federation of 16 states (Bundeslaender). Charitable status ('Gemeinnuetzigkeit') is granted by the local Finanzamt and recognised nationwide - the organisation can solicit tax-deductible donations from donors anywhere in Germany.
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Tax-deductibility for donors
German donations are deductible if PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen holds a Freistellungsbescheid (recognition as a charitable purpose) and issues a Zuwendungsbestätigung receipt.
PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is in Germany, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is registered in Germany. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
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How many charities work in each area, with this charity's area highlighted.
Most common causes in Germany
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Bundesanzeiger (German Federal Gazette)
- Financial filings
- Bundesanzeiger annual disclosures
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · Annual revenue figure on record
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Named leadership · Lead officer named
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Government registration · Registered with an official registry
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Executive payTop-officer pay not disclosed
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Mission statementNo self-published statement of purpose
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Programs & activitiesNo named programs listed by the charity
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Tax-deductibilityNot verified
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Founding dateYear founded not on file
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen
- What is PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen?
- PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen is a health nonprofit organization based in Bonn, Germany. As the oldest and largest patient organisation for people with retinal diseases, PRO RETINA has always been committed to supporting social processes. PRO RETINA is an active patient organisation at various levels for the interests of people with a rare retinal degeneration and age-dependent macula degeneration (AMD). PRO RETINA is a nationwide patient organisation, which is geographically structured in almost 60 regional groups and structured in four areas of expertise and content. One focus is the professional dialogue with research, medicine, pharmaceutical industry, social associations and politics. This is done within the framework of various event formats, patient symposia or discussion forums. In addition, ProRetina actively engages in the interests of blind and visually impaired persons at all political levels. Often, in the context of coalition negotiations and legislative procedures, it is still negotiated and decided about us without us. Especially in the field of rare diseases, people affected have often been very difficult to make themselves heard and actively participate in the public and political processes of the German parliament. In order to counteract this and to strengthen the rights of the people involved, the office's representatives and their representatives.
- Who leads PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen?
- Stefan Küster serves as Board Chair.
- Where is PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen located?
- Headquartered in Bonn, North Rhine-Westphalia, Germany.
- What is PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen's annual budget?
- Annual revenue is approximately €10K-€100K.
- Is PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen trustworthy?
- PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen has a GiveRadar Integrity Assessment of 46 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen's registration number?
- Registration: R001384 (Germany).
- What is PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen's website?
- https://www.pro-retina.de
- Are donations to PRO RETINA e.V. - Selbsthilfevereinigung für Menschen mit Netzhautdegenerationen tax-deductible?
- Donations may be tax-deductible for residents of Germany under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.