Spina Bifida Association of America
The mission of the spina bifida association is to build a better and brighter future for all those impacted by spina bifida.
GiveRadar doesn't take a cut. Donate directly on their site.
Make your donationAbout Spina Bifida Association of America
What can we help you find? Find support Helping people live longer, healthier lives Making an impact 40+ Clinic Care Partners across the U.S. 15 years...
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
The mission of the spina bifida association is to build a better and brighter future for all those impacted by spina bifida.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesConcerns
· None foundWhere every $1 goes
· FY2024 · IRS 990 (FY2024)GiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
GiveRadar's verified records show Spina Bifida Association of America with a complete profile, sourced from the IRS.
- Established in 1973, it predates 82% of the health charities in the United States GiveRadar has a founding year for. View this cohort
- It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
- Its integrity score of 77 places it in the top 25% of the 98,862 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its governance. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a donation page
- third-party accreditation
- a contact email
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologySpina Bifida Association of America is a registered health nonprofit based in Alexandria, VA, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1973 and has been operating for 53 years. Its EIN is 581342181. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 77/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $2M in annual revenue. 78 officers and directors are publicly disclosed. No red flags have been detected.
Spina Bifida Association of America's EIN (Employer Identification Number) is 581342181. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
Spina Bifida Association of America has a GiveRadar Integrity Assessment of 77/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 77 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 80% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for health charities in United States is 90/100.
Spina Bifida Association of America is located in Alexandria, VA, United States. The organization was established in 1973 and has been active for 53 years.
Based on official tax filings, Spina Bifida Association of America has $2M in annual revenue. It allocates 80% of expenses to programs and services. This is in line with the average of 81% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Spina Bifida Association of America is classified as a Health organization, registered in United States. It operates as a Supporting organization (509(a)(3)). By size, it is categorized as a medium organization. It has $2M in annual revenue. The organization has 78 disclosed officers and directors.
No red flags have been detected for Spina Bifida Association of America. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.
According to GiveRadar's records, Spina Bifida Association of America holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 80% of expenses go to programs (the peer average is 81%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
What can we help you find? Find support Helping people live longer, healthier lives Making an impact 40+ Clinic Care Partners across the U.S. 15 years... Spina Bifida Association of America is classified as a health organization registered in United States. The organization was founded in 1973.
Among health charities registered in United States: It allocates 80% of expenses to programs, in line with the peer average of 81%. Its annual revenue of $2M is below the peer average of $41M.
Yes, donations to Spina Bifida Association of America are generally tax-deductible in the United States. Spina Bifida Association of America is a 501(c)(3) tax-exempt organization. Its EIN is 581342181, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Filing history
5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
Sign up to viewTaxes
Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
SPINA BIFIDA ASSOCIATION OF AMERICA is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Staff & volunteers
From filings and published profiles
Leadership
From FY2024 filing
Officers & trustees (25)
Source: Public filings
25 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
News coverage will appear here when articles mention this organization.
Activity timeline
Filings and press mentions, merged
No reviews yet. Be the first to share your experience.
Have you donated or volunteered here?
Share your experience - it takes 30 seconds. Verified reviews help other donors decide.
Sign up to write a reviewCause areas in United States
How many charities work in each area, with this charity's area highlighted.
Most common causes in United States
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2024 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 78 disclosed in the public registry.
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
-
Financial data · FY2024 on record
-
Named leadership · 78 officers on file
-
Executive pay · Disclosed
-
Government registration · Registered with an official registry
-
Mission statement · Published
-
Official website · On record
-
Headquarters address · On file
-
Direct contact · Email or phone published
-
Tax-deductibility · Verified
-
Founding date · 1973
-
Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
Read full methodologyAre you the owner or a board member?
If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.
Report an issue
Tell us what's wrong with this charity's page. We review every report and typically reply within 2 business days.
Report sent
Thanks for flagging this. Our team will review it.
Press Esc to close
Save Spina Bifida Association of America?
Create a free GiveRadar account to save charities and track them in your dashboard.
Quick facts about Spina Bifida Association of America
- What is Spina Bifida Association of America?
- Spina Bifida Association of America is a health supporting organization (509(a)(3)) based in Alexandria, United States. What can we help you find? Find support Helping people live longer, healthier lives Making an impact 40+ Clinic Care Partners across the U.S. 15 years...
- When was Spina Bifida Association of America founded?
- Spina Bifida Association of America was founded in 1973.
- Who leads Spina Bifida Association of America?
- Sara Struwe serves as President And CEO.
- Where is Spina Bifida Association of America located?
- Headquartered in Alexandria, VA, United States.
- What is Spina Bifida Association of America's annual budget?
- Annual revenue for fiscal year 2024 is approximately $1M-$10M. 80% of expenses go to program services.
- Is Spina Bifida Association of America trustworthy?
- Spina Bifida Association of America has a GiveRadar Integrity Assessment of 77 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Spina Bifida Association of America's registration number?
- IRS EIN: 581342181. Registration: 58-1342181 (United States).
- What is Spina Bifida Association of America's website?
- https://www.spinabifidaassociation.org/