Barth Syndrome UK
About
Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.
Focus & reach
Verification & registration
Every mark links to the official registry entry and opens in a new tab.
Integrity assessment
A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. See exactly what we do and do not have →
Financials
Charity Commission (UK)Leadership at a glance
Official filingsSimilar charities
GiveRadar Intelligence
GiveRadar Analysis
GiveRadar's verified records show Barth Syndrome UK with a substantially complete profile, sourced from the Charity Commission.
- GiveRadar holds 5 years of financial filings for this organization, the most recent for fiscal year 2024. See the filings
- GiveRadar's profile for Barth Syndrome UK draws on its financial disclosures and its registration, in line with the typical arts & culture charities in the United Kingdom it tracks. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Filing history
5 years on file from Charity Commission (UK): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
Sign up to viewTax deductibility
Whether a gift to Barth Syndrome UK lowers your own taxes depends on where you pay them. Choose your country to see the rule that applies.
UK donations qualify for Gift Aid. BARTH SYNDROME UK is registered with the Charity Commission. Eligible UK taxpayers can boost their gift by 25% at no extra cost.
BARTH SYNDROME UK is in United Kingdom, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
BARTH SYNDROME UK is registered in United Kingdom. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
This is general guidance, not tax advice. Confirm treatment with the charity or your tax advisor before donating.
Leadership & board
Official filingsBoard members and senior officers on record, with disclosed pay where available.
5 officers and trustees on file, free with a GiveRadar account.
No red flags detected
Timeline
From official filingsKey dates from this charity's official filings, newest first.
In the news
No recent news coverage found
News coverage will appear here when articles mention this organization.
How it stacks up against peers
Compared with 8 similar arts & culture charities in United Kingdom.
Cause areas in United Kingdom
Charities working in each area, this charity's highlighted.
Sources and verification
- Officers and trustees
- Charity Commission for England and Wales - Register of Charities · 5 disclosed in the public registry.
What we know and don't know
Every data point we track for this charity, and whether we have found it. Disclosure only, never a judgment of the charity's work.
Data freshness
How current this profile is, and when we last checked it against the official source.
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
Read full methodologyIf you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email info@giveradar.com with the correct information. We review every request and respond within 30 days.
Frequently asked questions about Barth Syndrome UK
Barth Syndrome UK is a registered arts & culture nonprofit based in Romsey, England, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 2019 and has been operating for 7 years. Its registration number is 1181830. GiveRadar's Integrity Assessment for the organization is 72/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £58K in annual revenue. 5 officers and directors are publicly disclosed. No red flags have been detected.
Based on official filings, Barth Syndrome UK has £58K in annual revenue. Its revenue is below the peer average of £814K. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure. Barth Syndrome UK is classified as an arts & culture organization registered in United Kingdom. The organization was founded in 2019.
Barth Syndrome UK is a Charitable Incorporated Organisation (CIO), a legal form introduced by the Charities Act 2006 that gives a charity its own legal personality without requiring Companies House registration. CIOs are regulated solely by the Charity Commission and must file annual returns and accounts directly with the Commission. Its Charity Commission registration number is 1181830.
Barth Syndrome UK's registered charity number is 1181830. You can use it to look up the organization on the Charity Commission register.
Barth Syndrome UK is located in Romsey, England, United Kingdom. The organization was established in 2019 and has been active for 7 years.
Barth Syndrome UK is based in Romsey in England. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.
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Quick facts about Barth Syndrome UK
- What is Barth Syndrome UK?
- Barth Syndrome UK is a arts & culture cio based in Romsey, United Kingdom. Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.
- When was Barth Syndrome UK founded?
- Barth Syndrome UK was founded in 2019.
- Where is Barth Syndrome UK located?
- Headquartered in Romsey, England, United Kingdom.
- What is Barth Syndrome UK's annual budget?
- Annual revenue for fiscal year 2024 is £58,080.
- Is Barth Syndrome UK trustworthy?
- Barth Syndrome UK has a GiveRadar Integrity Assessment of 72 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Barth Syndrome UK's registration number?
- Registration: 1181830 (United Kingdom).
- What is Barth Syndrome UK's website?
- https://www.barthsyndrome.org.uk
- Are donations to Barth Syndrome UK tax-deductible?
- Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.