Charities United States Health Cure Sanfilippo Foundation
Cure Sanfilippo Foundation logo

Cure Sanfilippo Foundation

To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families …

Health Columbia, SC EIN 464322131 · IRS Sign up to see website
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79
Integrity Assessment
Strong transparency
79/100 · methodology

About Cure Sanfilippo Foundation

A cure can't wait. The Foundation accelerates research to find a cure and/or treatment for Sanfilippo Syndrome (MPS III), childhood dementia.

Founded
Headquarters
Columbia, SC
Foundation type
Publicly-supported charity (509(a)(2))
NTEE code
H80
IRS subsection
501(c)(03)
Ruling date
Size
medium

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 2014

Mission

To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.

Focus areas & reach

· What they work on and where
❤️ Health · NTEE H80
Cause tags

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 0%
Peer average: 24%
CEO comp as % of revenue This charity: 4.90%
Peer average: 0.48%
Integrity Assessment This charity: 79
Peer average: 90

Red flags

· All clear
IRS revocation history
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Common questions

· Auto-generated from filings + methodology

Cure Sanfilippo Foundation is a registered health nonprofit based in Columbia, SC, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2013 and has been operating for 13 years. Its EIN is 464322131. It has a GiveRadar Integrity Assessment of 79/100 (Strong transparency), indicating well-documented governance, financials, and contact details. This is below the average of 90/100 for health charities in United States. The organization reports $3M in annual revenue. 51 officers and directors are publicly disclosed. No red flags have been detected.

Cure Sanfilippo Foundation has a GiveRadar Integrity Assessment of 79/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 79 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.

Cure Sanfilippo Foundation is located in Columbia, SC, United States. The organization was established in 2013 and has been active for 13 years.

Based on official tax filings, Cure Sanfilippo Foundation has $3M in annual revenue. Its revenue is below the peer average of $38M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Cure Sanfilippo Foundation is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a medium organization. It has $3M in annual revenue. The organization has 51 disclosed officers and directors.

No red flags have been detected for Cure Sanfilippo Foundation. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

Cure Sanfilippo Foundation has a GiveRadar Integrity Assessment of 79/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the IRS. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

A cure can't wait. The Foundation accelerates research to find a cure and/or treatment for Sanfilippo Syndrome (MPS III), childhood dementia. Cure Sanfilippo Foundation is classified as a health organization registered in United States. The organization was founded in 2013.

Among health charities registered in United States: Cure Sanfilippo Foundation's GiveRadar Integrity Assessment of 79/100 is below the peer average of 90/100. Its annual revenue of $3M is below the peer average of $38M.

Yes, donations to Cure Sanfilippo Foundation are generally tax-deductible in the United States. Cure Sanfilippo Foundation is a 501(c)(3) tax-exempt organization. Its EIN is 464322131, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Verified against 4 official sources, last refreshed .

Annual revenue
$1M-$10M
0% to programs
Source: IRS 990 (FY2024) why this matters
Unlock exact figures

Filing history

5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2024, FY2023, FY2022, FY2021, FY2020.
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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

GL
Glenn O'Neill
President

Officers & trustees (11)

Source: Public filings

AD
Adam S•••••••
Director
BE
Ben V•• W•••
Director
CA
Cara O••••••
Chief Science
DA
Daniel F•••••
Board Chair
FA
Faith M••••••
Director
GL
Glenn O••••••
Exe Dir/Pres
JE
Jessica H••••••
Director
KA
Katie W•••••
Vice President
RA
Rachel B•••
Director
SH
Shelby L•••••••
Secretary
VA
Valerie B••••
Director
Full names, contact details & compensation

Free with an account.

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$2.8M revenue
FY2024
IRS_990
Form filed
$2.1M revenue
FY2023
IRS_990
Form filed
$2.7M revenue
FY2022
IRS_990
Form filed
$2.2M revenue
FY2021
IRS_990
Form filed
$2.1M revenue
FY2020
IRS_990

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Peer charities

Other health in United States, by integrity assessment

Charity Score Revenue Program %
Cure Sanfilippo Foundation This page 79 $2.8 million -
Dr Lorna Breen Heroes Foundation 93 $2.3 million 100%
Attune Center for Healing 93 $1.2 million 87%
Connections for Life 89 $2.8 million -
Dream on 3 89 $3.0 million -
Brain Injury Services Inc 89 $3.9 million 2%
Ellen Obrien Gaiser Addiction Center Inc 89 $4.8 million -
Center for Pranic Healing Inc 89 $1.8 million -
Community Blood Bank of Erie County 89 $8.1 million -

Sources and verification

Refreshed

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2024 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 51 disclosed in the public registry.
Supplementary verification
Charity Navigator

Data freshness

Last updated
May 27, 2026
Profile completeness
90%

What we don't know

Honest gaps - our score reflects transparency, not impact

Programs & projects
No named programs listed by the charity
Operating reach
Countries where programs run not specified

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Cure Sanfilippo Foundation

What is Cure Sanfilippo Foundation?
Cure Sanfilippo Foundation is a health publicly-supported charity (509(a)(2)) based in Columbia, United States. A cure can't wait. The Foundation accelerates research to find a cure and/or treatment for Sanfilippo Syndrome (MPS III), childhood dementia.
When was Cure Sanfilippo Foundation founded?
Cure Sanfilippo Foundation was founded in 2013.
Who leads Cure Sanfilippo Foundation?
Glenn O'Neill serves as President.
Where is Cure Sanfilippo Foundation located?
Headquartered in Columbia, United States.
What is Cure Sanfilippo Foundation's annual budget?
Annual revenue for fiscal year 2024 is approximately $1M-$10M. 0% of expenses go to program services.
Is Cure Sanfilippo Foundation trustworthy?
Cure Sanfilippo Foundation has a GiveRadar Integrity Assessment of 79 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Cure Sanfilippo Foundation's registration number?
IRS EIN: 464322131.
What is Cure Sanfilippo Foundation's website?
http://www.curesanfilippofoundation.org