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Hereditary Neurological Disease Centre Inc

To provide diagnostic care and disease management by volunteer professionals for patients and their families dealing with huntington disease at no cost to patients or their families

Health Wichita, KS EIN: 742827829 (IRS) Sign up to see website
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52
Integrity Assessment
Partial transparency
52/100 · methodology

About Hereditary Neurological Disease Centre Inc

Breakthrough science. One moment, one day, one person at a time.

Founded
Headquarters
Wichita, KS
Foundation type
Publicly-supported charity (509(a)(2))
NTEE code
G80
IRS subsection
501(c)(03)
Ruling date
Size
medium

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 2025

Mission

To provide diagnostic care and disease management by volunteer professionals for patients and their families dealing with huntington disease at no cost to patients or their families

Focus areas & reach

· What they work on and where
❤️ Health · NTEE G80
Cause tags
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 53%
Peer average: 89%
CEO comp as % of revenue This charity: 14.57%
Peer average: 0.48%
Integrity Assessment This charity: 52
Peer average: 90

Concerns

· 2 red flags
Stale Filings
Most recent filing is from 2020, which is 6 years ago.
High Executive Pay
Top executive compensation is 16.8% of total expenses ($137,249 of $816,568).

Where every $1 goes

· FY2020 · IRS 990 (FY2020)
$0.53
Program$0.53

GiveRadar Analysis

Original analysis from GiveRadar's dataset of comparable organizations

From what GiveRadar has verified so far, Hereditary Neurological Disease Centre Inc has a complete profile, cross-referenced across 4 independent sources including the IRS.

  • GiveRadar holds 10 years of financial filings for this organization, the most recent for fiscal year 2020 - a deeper filing history than 99% of the 51,422 health charities in the United States with filings on record. See the filings
  • GiveRadar has cross-referenced this organization across 4 independent sources, led by the IRS - more than 92% of comparable charities. See the sources
  • GiveRadar's profile for Hereditary Neurological Disease Centre Inc draws on its financial disclosures and its governance, in line with the typical health charities in the United States it tracks. View this cohort
GiveRadar has verified
  • government registration
  • financial records (10 filed years)
  • disclosed leadership
  • a website
  • a donation page
  • third-party accreditation
Not yet verified by GiveRadar
  • a contact email
  • an owner-submitted profile claim

Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.

Common questions

· Auto-generated from filings + methodology

Hereditary Neurological Disease Centre Inc is a registered health nonprofit based in Wichita, KS, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1997 and has been operating for 29 years. Its EIN is 742827829. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 52/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $942K in annual revenue. GiveRadar has identified 2 potential concerns.

Hereditary Neurological Disease Centre Inc's EIN (Employer Identification Number) is 742827829. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.

Hereditary Neurological Disease Centre Inc has a GiveRadar Integrity Assessment of 52/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 52 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in United States is 90/100.

Hereditary Neurological Disease Centre Inc is located in Wichita, KS, United States. The organization was established in 1997 and has been active for 29 years.

Based on official tax filings, Hereditary Neurological Disease Centre Inc has $942K in annual revenue. It allocates 53% of expenses to programs and services. This is below the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Hereditary Neurological Disease Centre Inc is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a medium organization. It has $942K in annual revenue.

GiveRadar has identified 2 potential concerns for Hereditary Neurological Disease Centre Inc. Red flags are automatically detected from official data and may include high executive compensation relative to budget, low program spending, or missing financial filings. Red flags do not necessarily mean wrongdoing but indicate areas that may warrant further review before donating.

According to GiveRadar's records, Hereditary Neurological Disease Centre Inc holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 53% of expenses go to programs (the peer average is 89%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

Breakthrough science. One moment, one day, one person at a time. Hereditary Neurological Disease Centre Inc is classified as a health organization registered in United States. The organization was founded in 1997.

Among health charities registered in United States: It allocates 53% of expenses to programs, below the peer average of 89%. Its annual revenue of $942K is below the peer average of $41M.

Yes, donations to Hereditary Neurological Disease Centre Inc are generally tax-deductible in the United States. Hereditary Neurological Disease Centre Inc is a 501(c)(3) tax-exempt organization. Its EIN is 742827829, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Annual revenue
$100K-$1M
53% to programs
Source: IRS 990 (FY2020) why this matters
Unlock exact figures

Filing history

10 years on file from IRS 990 (FY2020): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2020, FY2019, FY2018, FY2017, FY2016, FY2015, FY2014, FY2013, FY2012, FY2011.
Financial details are free - with a GiveRadar account

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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Staff & volunteers

From filings and published profiles

Employees
5

Leadership

From FY2020 filing

GR
Gregory W S••••
Executive Director

Officers & trustees (1)

Source: Public filings

See full names, roles, and stories

1 officers and trustees on file - free with a GiveRadar account.

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$0.9M revenue
FY2020
IRS 990
Form filed
$0.7M revenue
FY2019
IRS/ProPublica
Form filed
$0.7M revenue
FY2018
IRS/ProPublica
Form filed
$0.7M revenue
FY2017
IRS/ProPublica
Form filed
$0.5M revenue
FY2016
IRS/ProPublica
Form filed
$1.1M revenue
FY2015
IRS/ProPublica
Form filed
$0.5M revenue
FY2014
IRS/ProPublica
Form filed
$0.3M revenue
FY2013
IRS/ProPublica
Form filed
$0.4M revenue
FY2012
IRS/ProPublica
Form filed
$0.4M revenue
FY2011
IRS/ProPublica

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Cause areas in United States

How many charities work in each area, with this charity's area highlighted.

Human Services 322,679
Education 195,586
Arts & Culture 133,128
Advocacy & Civil Rights 128,026
Religion 114,636
Health this charity 98,862
Community Development 56,086
Youth Development 53,450
See all cause areas in United States

Most common causes in United States

Causes charities work on most, with this charity's causes ticked.

Community Development 235,146
Education 159,016
Religion 103,741
Arts & Culture 101,203
Human Rights 76,926
Health 65,250
Youth Development 47,775
Animal Welfare 32,425

Sources and verification

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2020 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 1 disclosed in the public registry.
Supplementary verification
ProPublica Nonprofit Explorer
Supplementary verification
Charity Navigator

Data freshness

Last updated
Jun 12, 2026
Registry checked
Jun 6, 2026
Profile completeness
90%

What we know and don't know

Exactly which public data we hold on this charity. Our score reflects transparency, not impact.

On record · 10
  • Financial data · FY2020 on record
  • Named leadership · 1 officer on file
  • Executive pay · Disclosed
  • Government registration · Registered with an official registry
  • Mission statement · Published
  • Official website · On record
  • Headquarters address · On file
  • Direct contact · Email or phone published
  • Tax-deductibility · Verified
  • Founding date · 1997
Not available · 1
  • Programs & activities
    No named programs listed by the charity

Methodology

GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology

Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.

Quick facts about Hereditary Neurological Disease Centre Inc

What is Hereditary Neurological Disease Centre Inc?
Hereditary Neurological Disease Centre Inc is a health publicly-supported charity (509(a)(2)) based in Wichita, United States. Breakthrough science. One moment, one day, one person at a time.
When was Hereditary Neurological Disease Centre Inc founded?
Hereditary Neurological Disease Centre Inc was founded in 1997.
Who leads Hereditary Neurological Disease Centre Inc?
Gregory W Suter serves as Executive Director.
Where is Hereditary Neurological Disease Centre Inc located?
Headquartered in Wichita, KS, United States.
What is Hereditary Neurological Disease Centre Inc's annual budget?
Annual revenue for fiscal year 2020 is approximately $100K-$1M. 53% of expenses go to program services.
Is Hereditary Neurological Disease Centre Inc trustworthy?
Hereditary Neurological Disease Centre Inc has a GiveRadar Integrity Assessment of 52 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Hereditary Neurological Disease Centre Inc's registration number?
IRS EIN: 742827829.
What is Hereditary Neurological Disease Centre Inc's website?
http://huntingtonsdisease.com