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Muscular Dystrophy Family Foundation Inc

We assist persons with neuromuscular diseases, including muscular dystrophy. Each of the past 11 years, we have purchased at least one accessible van for a family, and we …

Muscular Dystrophy Family

Health Carmel, IN EIN: 351040153 (IRS) Sign up to see website
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73
Integrity Assessment
Strong transparency
73/100 · methodology

About Muscular Dystrophy Family Foundation Inc

The MDFF provides support and services, including financial assistance, to families affected by muscular dystrophy, ALS, and other neuromuscular diseases.

Founded
Headquarters
Carmel, IN
Foundation type
Publicly-supported charity (509(a)(2))
NTEE code
G52Z
IRS subsection
501(c)(03)
Ruling date
Size
medium

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 1960

Mission

We assist persons with neuromuscular diseases, including muscular dystrophy. Each of the past 11 years, we have purchased at least one accessible van for a family, and we have provided over $980,261 in adaptive equipment to families over the past 11 years.

Focus areas & reach

· What they work on and where
❤️ Health · NTEE G52Z
Cause tags
SDG alignment The 17 UN Sustainable Development Goals (SDGs) are the global agenda for ending poverty, protecting the planet, and ensuring prosperity by 2030. We tag each charity to the goals its work advances.

How it stacks up against peers

· vs. 8 similar health in United States
Program spending This charity: 69%
Peer average: 89%
Integrity Assessment This charity: 73
Peer average: 90

Concerns

· None found
No red flags found
Screened for IRS revocation history, Open investigations, Governance scandals, Related-party deals, Excessive exec comp.

Where every $1 goes

· FY2024 · IRS 990 (FY2024)
$0.69
Program$0.69

GiveRadar Analysis

Original analysis from GiveRadar's dataset of comparable organizations

From what GiveRadar has verified so far, Muscular Dystrophy Family Foundation Inc has a complete profile, cross-referenced across 3 independent sources including the IRS.

  • Established in 1958, it predates 91% of the health charities in the United States GiveRadar has a founding year for. View this cohort
  • It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
  • Its integrity score of 73 places it in the top 25% of the 98,862 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
GiveRadar has verified
  • government registration
  • financial records (5 filed years)
  • disclosed leadership
  • a website
  • a donation page
  • third-party accreditation
Not yet verified by GiveRadar
  • a contact email
  • an owner-submitted profile claim

Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.

Common questions

· Auto-generated from filings + methodology

Muscular Dystrophy Family Foundation Inc is a registered health nonprofit based in Carmel, IN, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1958 and has been operating for 68 years. Its EIN is 351040153. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 73/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $635K in annual revenue. 49 officers and directors are publicly disclosed. No red flags have been detected.

Muscular Dystrophy Family Foundation Inc's EIN (Employer Identification Number) is 351040153. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.

Muscular Dystrophy Family Foundation Inc has a GiveRadar Integrity Assessment of 73/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 73 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.

Muscular Dystrophy Family Foundation Inc is located in Carmel, IN, United States. The organization was established in 1958 and has been active for 68 years.

Based on official tax filings, Muscular Dystrophy Family Foundation Inc has $635K in annual revenue. It allocates 69% of expenses to programs and services. This is below the average of 89% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Muscular Dystrophy Family Foundation Inc is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a medium organization. It has $635K in annual revenue. The organization has 49 disclosed officers and directors.

No red flags have been detected for Muscular Dystrophy Family Foundation Inc. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

According to GiveRadar's records, Muscular Dystrophy Family Foundation Inc holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). It reports that 69% of expenses go to programs (the peer average is 89%). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.

The MDFF provides support and services, including financial assistance, to families affected by muscular dystrophy, ALS, and other neuromuscular diseases. Muscular Dystrophy Family Foundation Inc is classified as a health organization registered in United States. The organization was founded in 1958.

Among health charities registered in United States: It allocates 69% of expenses to programs, below the peer average of 89%. Its annual revenue of $635K is below the peer average of $41M.

Yes, donations to Muscular Dystrophy Family Foundation Inc are generally tax-deductible in the United States. Muscular Dystrophy Family Foundation Inc is a 501(c)(3) tax-exempt organization. Its EIN is 351040153, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Annual revenue
$100K-$1M
69% to programs
Source: IRS 990 (FY2024) why this matters
Unlock exact figures

Filing history

5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2024, FY2023, FY2022, FY2021, FY2020.
Financial details are free - with a GiveRadar account

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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Staff & volunteers

From filings and published profiles

Employees
5

Leadership

From FY2024 filing

JA
Jacob T B••••••
President

Officers & trustees (15)

Source: Public filings

See full names, roles, and stories

15 officers and trustees on file - free with a GiveRadar account.

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$0.6M revenue
FY2024
IRS 990
Form filed
$0.4M revenue
FY2023
IRS 990
Form filed
$0.5M revenue
FY2022
IRS 990
Form filed
$0.5M revenue
FY2021
IRS 990
Form filed
$0.4M revenue
FY2020
IRS 990

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Cause areas in United States

How many charities work in each area, with this charity's area highlighted.

Human Services 322,679
Education 195,586
Arts & Culture 133,128
Advocacy & Civil Rights 128,026
Religion 114,636
Health this charity 98,862
Community Development 56,086
Youth Development 53,450
See all cause areas in United States

Most common causes in United States

Causes charities work on most, with this charity's causes ticked.

Community Development 235,146
Education 159,016
Religion 103,741
Arts & Culture 101,203
Human Rights 76,926
Health 65,250
Youth Development 47,775
Animal Welfare 32,425

Sources and verification

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2024 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 49 disclosed in the public registry.
Supplementary verification
Charity Navigator

Data freshness

Last updated
Jun 12, 2026
Registry checked
Jun 6, 2026
Profile completeness
75%

What we know and don't know

Exactly which public data we hold on this charity. Our score reflects transparency, not impact.

On record · 9
  • Financial data · FY2024 on record
  • Named leadership · 49 officers on file
  • Government registration · Registered with an official registry
  • Mission statement · Published
  • Official website · On record
  • Headquarters address · On file
  • Direct contact · Email or phone published
  • Tax-deductibility · Verified
  • Founding date · 1958
Not available · 2
  • Executive pay
    Top-officer pay not disclosed
  • Programs & activities
    No named programs listed by the charity

Methodology

GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology

Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email [email protected] with the correct information. We review every request and respond within 30 days.

Quick facts about Muscular Dystrophy Family Foundation Inc

What is Muscular Dystrophy Family Foundation Inc?
Muscular Dystrophy Family Foundation Inc is a health publicly-supported charity (509(a)(2)) based in Carmel, United States. The MDFF provides support and services, including financial assistance, to families affected by muscular dystrophy, ALS, and other neuromuscular diseases.
When was Muscular Dystrophy Family Foundation Inc founded?
Muscular Dystrophy Family Foundation Inc was founded in 1958.
Who leads Muscular Dystrophy Family Foundation Inc?
Jacob T Buehler serves as President.
Where is Muscular Dystrophy Family Foundation Inc located?
Headquartered in Carmel, IN, United States.
What is Muscular Dystrophy Family Foundation Inc's annual budget?
Annual revenue for fiscal year 2024 is approximately $100K-$1M. 69% of expenses go to program services.
Is Muscular Dystrophy Family Foundation Inc trustworthy?
Muscular Dystrophy Family Foundation Inc has a GiveRadar Integrity Assessment of 73 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Muscular Dystrophy Family Foundation Inc's registration number?
IRS EIN: 351040153.
What is Muscular Dystrophy Family Foundation Inc's website?
http://www.mdff.org