Neurofibromatosis Inc
Neurofibromatosis Network
About
The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities.
To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.
Focus & reach
Verification & registration
Every mark links to the official registry entry and opens in a new tab.
Integrity assessment
A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. See exactly what we do and do not have →
Financials
IRS Form 990Leadership at a glance
Official filings
GiveRadar Intelligence
GiveRadar Analysis
GiveRadar's verified records show Neurofibromatosis Inc with a complete profile, cross-referenced across 3 independent sources including the IRS.
- It has more complete contact information than nearly all comparable charities, with a verified website, email, phone and address on record. See national comparisons
- It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, executive compensation, a mission statement and a founding date. See national comparisons
- GiveRadar's profile for Neurofibromatosis Inc draws on its financial disclosures and its governance, in line with the typical health charities in the United States it tracks. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
Analysis based on GiveRadar's benchmark dataset of 2026-09-21. It describes what GiveRadar has verified, not a judgment of the organization itself.
Filing history
5 years on file from IRS Form 990: revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
Sign up to viewTax deductibility
Whether a gift to Neurofibromatosis Inc lowers your own taxes depends on where you pay them. Choose your country to see the rule that applies.
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
Neurofibromatosis Inc is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
This is general guidance, not tax advice. Confirm treatment with the charity or your tax advisor before donating.
Staff & volunteers
Leadership & board
Official filingsBoard members and senior officers on record, with disclosed pay where available.
23 officers and trustees on file, free with a GiveRadar account.
1 red flag detected
Timeline
From official filingsKey dates from this charity's official filings, newest first.
In the news
No recent news coverage found
News coverage will appear here when articles mention this organization.
#31,071 of 98,864 health charities in the United States on integrity score
70/100 puts it in the top 32% of the cohort, tied with 5,242 others. Positions are competition ranks: ties share a position. Cohorts are the tightest local peer set with at least 30 comparable organizations; a metric is left out where the cohort is too small or nearly uniform.
Bars show the share of the cohort this charity outranks. Ranks describe how much is publicly disclosed, not how good the charity is.
How it stacks up against peers
Compared with 8 similar health charities in United States.
Cause areas in United States
Charities working in each area, this charity's highlighted.
Sources and verification
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search · 73 disclosed in the public registry.
What we know and don't know
Every data point we track for this charity, and whether we have found it. Disclosure only, never a judgment of the charity's work.
Data freshness
How current this profile is, and when we last checked it against the official source.
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
Read full methodologyIf you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email info@giveradar.com with the correct information. We review every request and respond within 30 days.
Frequently asked questions about Neurofibromatosis Inc
Neurofibromatosis Inc is a registered health nonprofit based in Wheaton, IL, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1990 and has been operating for 36 years. Its EIN is 043030760. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 70/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $452K in annual revenue. 73 officers and directors are publicly disclosed. GiveRadar has identified 1 potential concern.
Neurofibromatosis Inc's highest-paid executive, Gregg Erickson, received $104,158 in reported compensation in its most recent filing (2024). This figure comes straight from the organization's official filing and covers salary plus other reportable pay. Executive pay generally scales with the size and complexity of a nonprofit, so it is best read alongside the organization's revenue and what it does.
Based on official filings, Neurofibromatosis Inc has $452K in annual revenue. It allocates 81% of expenses to programs and services. This is below the average of 87% for health charities in United States. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities. Neurofibromatosis Inc is classified as a health organization registered in United States. The organization was founded in 1990.
GiveRadar has identified 1 potential concern for Neurofibromatosis Inc. Red flags are automatically detected from official data and may include high executive compensation relative to budget, low program spending, or missing financial filings. Red flags do not necessarily mean wrongdoing but indicate areas that may warrant further review before donating.
Neurofibromatosis Inc is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $452K in annual revenue. The organization has 73 disclosed officers and directors.
Neurofibromatosis Inc's EIN (Employer Identification Number) is 043030760. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
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Quick facts about Neurofibromatosis Inc
- What is Neurofibromatosis Inc?
- Neurofibromatosis Inc is a health publicly-supported charity (509(a)(2)) based in Wheaton, United States. The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities.
- When was Neurofibromatosis Inc founded?
- Neurofibromatosis Inc was founded in 1990.
- Who leads Neurofibromatosis Inc?
- Gregg Erickson serves as Treasurer.
- Where is Neurofibromatosis Inc located?
- Headquartered in Wheaton, IL, United States.
- What is Neurofibromatosis Inc's annual budget?
- Annual revenue for fiscal year 2024 is $452,414. 81% of expenses go to program services.
- Is Neurofibromatosis Inc trustworthy?
- Neurofibromatosis Inc has a GiveRadar Integrity Assessment of 70 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Neurofibromatosis Inc's registration number?
- IRS EIN: 043030760.
- What is Neurofibromatosis Inc's website?
- http://www.nfnetwork.org