Charities United Kingdom Advocacy & Civil Rights Down'S Syndrome Association
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Down'S Syndrome Association

Charity No 1061474 · Charity Commission Sign up to see website
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87
Integrity Assessment
Strong transparency
87/100 · methodology

About Down'S Syndrome Association

We provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them.We strive to improve knowledge of the condition.We champion the rights of people with Down's syndrome.

Founded
Size
medium

Focus areas & reach

· What they work on and where
Advocacy & Civil Rights

How it stacks up against peers

· vs. 8 similar advocacy & civil rights in United Kingdom
Program spending This charity: 84%
Peer average: 98%
Integrity Assessment This charity: 87
Peer average: 87

Red flags

· All clear
Charity Commission removal
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Where every £1 goes

£0.84
Program expenses£0.84 (£2.0 million)
84% to programs beats the Charity Navigator "highly efficient" threshold (75%).

Common questions

· Auto-generated from filings + methodology

Down'S Syndrome Association is a registered advocacy & civil rights nonprofit, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 1997 and has been operating for 29 years. It has a GiveRadar Integrity Assessment of 87/100 (Strong transparency), indicating well-documented governance, financials, and contact details. The organization reports £3M in annual revenue. 6 officers and directors are publicly disclosed. No red flags have been detected. The charity has 1 community review with an average rating of 1.0/5. On Trustpilot, it has a rating of 3.2/5 based on 1 review.

Down'S Syndrome Association has a GiveRadar Integrity Assessment of 87/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 87 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. The charity allocates 84% of expenses to programs, which contributes positively to its score. For comparison, the average integrity assessment for advocacy & civil rights charities in United Kingdom is 87/100.

Down'S Syndrome Association is registered in United Kingdom. The organization was established in 1997 and has been active for 29 years.

Based on official tax filings, Down'S Syndrome Association has £3M in annual revenue. It allocates 84% of expenses to programs and services. This is below the average of 98% for advocacy & civil rights charities in United Kingdom. Its revenue is significantly above the peer average of £671K. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Down'S Syndrome Association is classified as a Advocacy & Civil Rights organization, registered in United Kingdom. By size, it is categorized as a medium organization. It has £3M in annual revenue. The organization has 6 disclosed officers and directors.

No red flags have been detected for Down'S Syndrome Association. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

Down'S Syndrome Association has a GiveRadar Integrity Assessment of 87/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the Charity Commission. 84% of expenses go to programs. The peer average is 98%. The organization has a moderate Trustpilot rating of 3.2/5. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

We provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them.We strive to improve knowledge of the condition.We champion the rights of people with Down's syndrome. Down'S Syndrome Association is classified as a advocacy & civil rights organization registered in United Kingdom. The organization was founded in 1997.

Among advocacy & civil rights charities registered in United Kingdom: Down'S Syndrome Association's GiveRadar Integrity Assessment of 87/100 is in line with the peer average of 87/100. It allocates 84% of expenses to programs, below the peer average of 98%. Its annual revenue of £3M is well above the peer average of £671K.

Down'S Syndrome Association is a registered charity in the United Kingdom. If you are a UK taxpayer, your donation may qualify for Gift Aid, which allows the charity to claim an extra 25p for every 1 pound you donate at no cost to you. Higher-rate and additional-rate taxpayers can also claim additional relief on their Self Assessment tax return.

Verified against 6 official sources, last refreshed .

Annual revenue
£1M-£10M
84% to programs
Source: Charity Commission (UK) (FY2025) why this matters
Unlock exact figures

Filing history

5 years on file from Charity Commission (UK) (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2025, FY2024, FY2023, FY2022, FY2021.
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Taxes

Tax-deductibility for donors

UK donations qualify for Gift Aid. DOWN'S SYNDROME ASSOCIATION is registered with the Charity Commission. Eligible UK taxpayers can boost their gift by 25% at no extra cost.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

DA
Darren Warkcup
Trustee

Officers & trustees (6)

Source: Public filings

DA
Darren W••••••
Trustee
DR
Dr J••• G••••• C••••••
Trustee
PR
Professor A•••••• J H••••••
Trustee
RO
Robert S•••••••
Trustee
SA
Sarah L•••••
Trustee
TR
Trevor P•••••
Trustee
Full names, contact details & compensation

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Latest news

From global news sources

10 articles found

From global news sources

Sentiment

Positive

Mayor recognises Causeway Down’s Syndrome Support Group - Causeway Coast & Glens Borough Council

causewaycoastandglens.gov.uk · · Neutral

Fulham Badgers take over Craven Cottage for World Down’s Syndrome Day - Fulham FC

www.fulhamfc.com · · Neutral

Tackling loneliness is key theme of Down’s Syndrome Awareness Week - Learning Disability Today

www.learningdisabilitytoday.co.uk · · Neutral

This Is Belonging: Sale Sharks Foundation Driving Inclusion for People with Down’s Syndrome in the North West - Sale Sharks

www.salesharks.com · · Neutral

New University study reveals long term trends in number of babies with Down's syndrome in Scotland - University of Aberdeen

www.abdn.ac.uk · · Neutral

Supporting World Down's Syndrome Day With Warrington Wolves - Community Integrated Care

www.communityintegratedcare.co.uk · · Positive

Partnership aims to boost employment of people with Down’s syndrome at Edinburgh Zoo - Midlothian View

www.midlothianview.com · · Positive

Four years after Down’s syndrome law, nothing has changed - The Times

www.thetimes.com · · Neutral

AI may improve accuracy of 'combined' prenatal test for Down's syndrome - Progress Educational Trust

www.progress.org.uk · · Positive

East Lancs Down’s Syndrome Support Group Calls for Community and Business Partnerships | Member News - East Lancashire Chamber of Commerce

www.chamberelancs.co.uk · · Positive

Activity timeline

Filings and press mentions, merged

Mayor recognises Causeway Down’s Syndrome Support Group - Causeway Coast & Glens Borough Council
Apr 2026
causewaycoastandglens.gov.uk
Fulham Badgers take over Craven Cottage for World Down’s Syndrome Day - Fulham FC
Mar 2026
www.fulhamfc.com
Tackling loneliness is key theme of Down’s Syndrome Awareness Week - Learning Disability Today
Mar 2026
www.learningdisabilitytoday.co.uk
This Is Belonging: Sale Sharks Foundation Driving Inclusion for People with Down’s Syndrome in the North West - Sale Sha
Mar 2026
www.salesharks.com
New University study reveals long term trends in number of babies with Down's syndrome in Scotland - University of Aberd
Mar 2026
www.abdn.ac.uk
Supporting World Down's Syndrome Day With Warrington Wolves - Community Integrated Care
Mar 2026
www.communityintegratedcare.co.uk
Partnership aims to boost employment of people with Down’s syndrome at Edinburgh Zoo - Midlothian View
Mar 2026
www.midlothianview.com
Four years after Down’s syndrome law, nothing has changed - The Times
Feb 2026
www.thetimes.com
AI may improve accuracy of 'combined' prenatal test for Down's syndrome - Progress Educational Trust
Feb 2026
www.progress.org.uk
East Lancs Down’s Syndrome Support Group Calls for Community and Business Partnerships | Member News - East Lancashire C
Feb 2026
www.chamberelancs.co.uk
Form filed
£2.7M revenue
FY2025
CCEW
Form filed
£1.8M revenue
FY2024
CCEW
Form filed
£2.0M revenue
FY2023
CCEW
Form filed
£2.1M revenue
FY2022
CCEW
Form filed
£2.9M revenue
FY2021
CCEW

Donor reviews (1)

1.0 / 5 average · includes imported Trustpilot

1.0
1 review
Abusive Staff…

Services Development Manager is a very bad individual who makes threats and talks to people as if they are dirt. A highly unprofessional individual who does nothing but give abuse, I am shocked a charity would have someone like this on board, but here we are.

Ian Kemp Donor · Mar 26, 2026 Trustpilot Trustpilot

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Peer charities

Other advocacy & civil rights in United Kingdom, by integrity assessment

Charity Score Revenue Program %
Down'S Syndrome Association This page 87 £2.7 million 84%
Citizens Advice Somerset 87 £2.3 million 100%
Cardiff and Vale Citizens Advice Bureau 87 £4.9 million 100%
The Institute for Agriculture and Horticulture 87 £2.2 million 100%
Carers Choices 87 £1.8 million 100%
The Legal Advice Centre(university House) 87 £1.1 million 95%
Commonwealth Parliamentary Association (united Kingdom Branch) 87 £3.2 million 100%
Inquest Charitable Trust 87 £1.2 million 92%
Rushmoor Citizens Advice Bureaux 87 £1.3 million 100%

Sources and verification

Refreshed

Registration and legal identity
Charity Commission for England and Wales - Register of Charities
Financial filings
Charity Commission annual returns - Fiscal year 2025 most recent on file.
Officers and trustees
Charity Commission for England and Wales - Register of Charities - 6 disclosed in the public registry.
News and media coverage
GDELT Project + Google News
Donor reviews (external)
Trustpilot consumer reviews
Community reviews (verified email)
GiveRadar Community Reviews - 1 verified review(s) on file.

Data freshness

Last updated
Mar 5, 2026
Profile completeness
85%

What we don't know

Honest gaps - our score reflects transparency, not impact

Executive compensation
Top-officer pay not disclosed
Mission statement
No self-published statement of purpose
Programs & projects
No named programs listed by the charity
Headquarters address
No street address on file
Operating reach
Countries where programs run not specified
Programmatic detail
Specific cause areas not yet tagged

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Down'S Syndrome Association

What is Down'S Syndrome Association?
Down'S Syndrome Association is a advocacy & civil rights nonprofit organization, United Kingdom. We provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them.We strive to improve knowledge of the condition.We champion the rights of people with Down's syndrome.
When was Down'S Syndrome Association founded?
Down'S Syndrome Association was founded in 1997.
Where is Down'S Syndrome Association located?
Headquartered in United Kingdom.
What is Down'S Syndrome Association's annual budget?
Annual revenue for fiscal year 2025 is approximately £1M-£10M. 84% of expenses go to program services.
Is Down'S Syndrome Association trustworthy?
Down'S Syndrome Association has a GiveRadar Integrity Assessment of 87 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Down'S Syndrome Association's website?
https://www.downs-syndrome.org.uk
Are donations to Down'S Syndrome Association tax-deductible?
Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.