Mds UK Patient Support Group
About
Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.
Focus & reach
Verification & registration
Every mark links to the official registry entry and opens in a new tab.
Integrity assessment
A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. document.querySelector('#data-knowledge') && document.querySelector('#data-knowledge').scrollIntoView({behavior:'smooth', block:'start'}))" class="gr-link" style="color:#0E827A;font-weight:700;text-decoration:none;cursor:pointer">See exactly what we do and do not have →
Financials
Charity Commission (UK)Leadership at a glance
Official filingsSimilar charities
GiveRadar Intelligence
GiveRadar Analysis
From what GiveRadar has verified so far, Mds UK Patient Support Group has a substantially complete profile, sourced from the Charity Commission.
- GiveRadar holds 5 years of financial filings for this organization, the most recent for fiscal year 2025. See the filings
- Its integrity score of 82 places it in the top 10% of the 28,401 health charities in the United Kingdom GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Filing history
5 years on file from Charity Commission (UK): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
Sign up to viewTax deductibility
Whether a gift to Mds UK Patient Support Group lowers your own taxes depends on where you pay them. Choose your country to see the rule that applies.
UK donations qualify for Gift Aid. MDS UK PATIENT SUPPORT GROUP is registered with the Charity Commission. Eligible UK taxpayers can boost their gift by 25% at no extra cost.
MDS UK PATIENT SUPPORT GROUP is in United Kingdom, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
MDS UK PATIENT SUPPORT GROUP is registered in United Kingdom. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
This is general guidance, not tax advice. Confirm treatment with the charity or your tax advisor before donating.
Leadership & board
Official filingsBoard members and senior officers on record, with disclosed pay where available.
7 officers and trustees on file, free with a GiveRadar account.
No red flags detected
Timeline
From official filingsKey dates from this charity's official filings, newest first.
In the news
No recent news coverage found
News coverage will appear here when articles mention this organization.
How it stacks up against peers
Compared with 8 similar health charities in United Kingdom.
Cause areas in United Kingdom
Charities working in each area, this charity's highlighted.
Sources and verification
- Officers and trustees
- Charity Commission for England and Wales - Register of Charities · 7 disclosed in the public registry.
What we know and don't know
Every data point we track for this charity, and whether we have found it. Disclosure only, never a judgment of the charity's work.
Data freshness
How current this profile is, and when we last checked it against the official source.
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
Read full methodologyIf you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email info@giveradar.com with the correct information. We review every request and respond within 30 days.
Frequently asked questions about Mds UK Patient Support Group
Mds UK Patient Support Group is a registered health nonprofit based in Stokesley, England, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 2011 and has been operating for 15 years. Its registration number is 1145214. According to GiveRadar's records, it holds registration with the UK Fundraising Regulator, which means it has committed to the Code of Fundraising Practice and accountable fundraising standards. GiveRadar's Integrity Assessment for the organization is 82/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £254K in annual revenue. 7 officers and directors are publicly disclosed. No red flags have been detected.
Based on official filings, Mds UK Patient Support Group has £254K in annual revenue. Its revenue is below the peer average of £1M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS. Mds UK Patient Support Group is classified as a health organization registered in United Kingdom. The organization was founded in 2011.
Mds UK Patient Support Group is a Charitable Incorporated Organisation (CIO), a legal form introduced by the Charities Act 2006 that gives a charity its own legal personality without requiring Companies House registration. CIOs are regulated solely by the Charity Commission and must file annual returns and accounts directly with the Commission. Its Charity Commission registration number is 1145214.
Mds UK Patient Support Group's registered charity number is 1145214. You can use it to look up the organization on the Charity Commission register.
Mds UK Patient Support Group is located in Stokesley, England, United Kingdom. The organization was established in 2011 and has been active for 15 years.
Mds UK Patient Support Group is based in Stokesley in England. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.
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Quick facts about Mds UK Patient Support Group
- What is Mds UK Patient Support Group?
- Mds UK Patient Support Group is a health cio based in Stokesley, United Kingdom. Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.
- When was Mds UK Patient Support Group founded?
- Mds UK Patient Support Group was founded in 2011.
- Where is Mds UK Patient Support Group located?
- Headquartered in Stokesley, England, United Kingdom.
- What is Mds UK Patient Support Group's annual budget?
- Annual revenue for fiscal year 2025 is £254,314.
- Is Mds UK Patient Support Group trustworthy?
- Mds UK Patient Support Group has a GiveRadar Integrity Assessment of 82 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Mds UK Patient Support Group's registration number?
- Registration: 1145214 (United Kingdom).
- What is Mds UK Patient Support Group's website?
- https://www.mdspatientsupport.org.uk
- Are donations to Mds UK Patient Support Group tax-deductible?
- Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.


