Rare Diseases Lesotho Association
Advocacy and support for people living with rare diseases
About
Rare Diseases Lesotho Association (RDLA) is a non-profit organisation registered in 2017 under Lesotho's Societies Act of 1966, co-founded by Nthabeleng Ramoeli and Seeng Nchai. It helps patients affected by rare diseases access treatment and support care, and builds a community of patients, caregivers, healthcare providers and researchers to improve health and quality of life.
To assist people living with rare diseases in Lesotho to access treatment and support for improved health and quality of life.
Rare Diseases Lesotho Association was founded in October 2017 under Lesotho's Societies Act of 1966, co-founded by Nthabeleng Ramoeli, who lives with Ehlers-Danlos Syndrome, and Seeng Nchai, the mother of a child with a rare disease, to help patients access …
Focus & reach
Lesotho
Integrity assessment
A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. See exactly what we do and do not have →
Leadership at a glance
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GiveRadar Analysis
GiveRadar's verified records show Rare Diseases Lesotho Association with a partial profile.
- It is one of the better-documented charities in Lesotho GiveRadar currently tracks, because GiveRadar has verified its governance and its contact details. Most of those have little verified data on record yet. View this cohort
- It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, a mission statement and a founding date. See national comparisons
- It has more complete contact information than 79% of comparable charities, with a verified website, phone and address on record. See national comparisons
- disclosed leadership
- a website
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Whether a gift to Rare Diseases Lesotho Association lowers your own taxes depends on where you pay them. Choose your country to see the rule that applies.
Donations may be tax-deductible for residents of Lesotho under local rules. Confirm with the charity directly.
Rare Diseases Lesotho Association is listed in Lesotho. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Rare Diseases Lesotho Association is listed in Lesotho. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
This is general guidance, not tax advice. Confirm treatment with the charity or your tax advisor before donating.
Leadership & board
From the charityBoard members and senior officers on record, with disclosed pay where available.
8 officers and trustees on file, free with a GiveRadar account.
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In the news
No recent news coverage found
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How it stacks up against peers
Compared with 8 similar health charities in Lesotho.
Cause areas in Lesotho
Charities working in each area, this charity's highlighted.
Sources and verification
What we know and don't know
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Data freshness
How current this profile is, and when we last checked it against the official source.
Methodology
GiveRadar builds each profile from official charity directories and public registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Part of this profile's description was written with AI, summarizing public sources such as official registry data and the organization's own website. Financial figures, registration details, and the sources listed above are not AI-generated. Read how we use AI.
Frequently asked questions about Rare Diseases Lesotho Association
Rare Diseases Lesotho Association is a health nonprofit based in Maseru, Lesotho. GiveRadar lists it from public charity directories and does not hold an official government registration record for it. It was founded in 2017 and has been operating for 9 years. GiveRadar's Integrity Assessment for the organization is 51/100, which reflects how much public information is available, not whether the charity is legitimate. 8 officers and directors are publicly disclosed.
Rare Diseases Lesotho Association (RDLA) is a non-profit organisation registered in 2017 under Lesotho's Societies Act of 1966, co-founded by Nthabeleng Ramoeli and Seeng Nchai. It helps patients affected by rare diseases access treatment and support care, and builds a community of patients, caregivers, healthcare providers and researchers to improve health and quality of life. Rare Diseases Lesotho Association is a health organization based in Lesotho. The organization was founded in 2017.
Rare Diseases Lesotho Association is classified as a Health organization, based in Lesotho. It operates as a NGO. The organization has 8 disclosed officers and directors.
Rare Diseases Lesotho Association is located in Maseru, Lesotho. The organization was established in 2017 and has been active for 9 years.
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Quick facts about Rare Diseases Lesotho Association
- What is Rare Diseases Lesotho Association?
- Rare Diseases Lesotho Association is a health ngo based in Maseru, Lesotho. Rare Diseases Lesotho Association (RDLA) is a non-profit organisation registered in 2017 under Lesotho's Societies Act of 1966, co-founded by Nthabeleng Ramoeli and Seeng Nchai. It helps patients affected by rare diseases access treatment and support care, and builds a community of patients, caregivers, healthcare providers and researchers to improve health and quality of life.
- When was Rare Diseases Lesotho Association founded?
- Rare Diseases Lesotho Association was founded in 2017.
- Where is Rare Diseases Lesotho Association located?
- Headquartered in Maseru, Lesotho.
- Is Rare Diseases Lesotho Association trustworthy?
- Rare Diseases Lesotho Association has a GiveRadar Integrity Assessment of 51 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Rare Diseases Lesotho Association's website?
- https://rarediseaselesotho.wixsite.com/website
- Are donations to Rare Diseases Lesotho Association tax-deductible?
- Donations may be tax-deductible for residents of Lesotho under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.