Rare Diseases Lesotho Association
Advocacy and support for people living with rare diseases
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Visit rarediseaselesotho.wixs…About Rare Diseases Lesotho Association
Rare Diseases Lesotho Association (RDLA) is a non-profit organisation registered in 2017 under Lesotho's Societies Act of 1966, co-founded by Nthabeleng Ramoeli and Seeng Nchai. It helps patients affected by rare diseases access treatment and support care, and builds a community of patients, caregivers, healthcare providers and researchers to improve health and quality of life.
Mission
To assist people living with rare diseases in Lesotho to access treatment and support for improved health and quality of life.
Focus areas & reach
· What they work on and whereFounding story
· Founding, renaming & milestonesRare Diseases Lesotho Association was founded in October 2017 under Lesotho's Societies Act of 1966, co-founded by Nthabeleng Ramoeli, who lives with Ehlers-Danlos Syndrome, and Seeng Nchai, the mother of a child with a rare disease, to help patients access …
How it stacks up against peers
· vs. 8 similar health in LesothoConcerns
· None foundGiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
GiveRadar's verified records show Rare Diseases Lesotho Association with a partial profile.
- It is one of the better-documented charities in Lesotho GiveRadar currently tracks, because GiveRadar has verified its governance and its contact details. Most of those have little verified data on record yet. View this cohort
- It has more complete governance disclosure than nearly all comparable charities, because GiveRadar has verified leadership, a mission statement and a founding date. See national comparisons
- It has more complete contact information than 79% of comparable charities, with a verified website, phone and address on record. See national comparisons
- disclosed leadership
- a website
- financial records
- a contact email
- a donation page
- third-party accreditation
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyRare Diseases Lesotho Association is a health nonprofit based in Maseru, Lesotho. GiveRadar lists it from public charity directories and does not hold an official government registration record for it. It was founded in 2017 and has been operating for 9 years. GiveRadar's Integrity Assessment for the organization is 51/100, which reflects how much public information is available, not whether the charity is legitimate. 8 officers and directors are publicly disclosed.
Rare Diseases Lesotho Association has a GiveRadar Integrity Assessment of 51/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 51 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in Lesotho is 41/100.
Rare Diseases Lesotho Association is located in Maseru, Lesotho. The organization was established in 2017 and has been active for 9 years.
Rare Diseases Lesotho Association is classified as a Health organization, based in Lesotho. It operates as a NGO. The organization has 8 disclosed officers and directors.
Rare Diseases Lesotho Association is listed in GiveRadar's directory of Lesotho nonprofits, compiled from public charity directories. GiveRadar does not hold an official government registration record for it, so confirm its registration status directly before giving. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
Rare Diseases Lesotho Association (RDLA) is a non-profit organisation registered in 2017 under Lesotho's Societies Act of 1966, co-founded by Nthabeleng Ramoeli and Seeng Nchai. It helps patients affected by rare diseases access treatment and support care, and builds a community of patients, caregivers, healthcare providers and researchers to improve health and quality of life. Rare Diseases Lesotho Association is a health organization based in Lesotho. The organization was founded in 2017.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of Lesotho under local rules. Confirm with the charity directly.
Rare Diseases Lesotho Association is listed in Lesotho. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Rare Diseases Lesotho Association is listed in Lesotho. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Leadership
Officers & trustees (8)
Source: Charity website (via AI extraction)
8 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
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Sign up to write a reviewCause areas in Lesotho
How many charities work in each area, with this charity's area highlighted.
Most common causes in Lesotho
Causes charities work on most, with this charity's causes ticked.
Sources and verification
- News and media coverage
- GDELT Project + Google News
Part of this profile's description was written with AI, summarizing public sources such as official registry data and the organization's own website. Financial figures, registration details, and the sources listed above are not AI-generated. Read how we use AI.
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Named leadership · 8 officers on file
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Founding date · 2017
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Financial dataNo annual financial filings on file
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Executive payTop-officer pay not disclosed
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Government registrationNo public registry ID
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Programs & activitiesNo named programs listed by the charity
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Tax-deductibilityNot verified
Methodology
GiveRadar builds each profile from official charity directories and public registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Rare Diseases Lesotho Association
- What is Rare Diseases Lesotho Association?
- Rare Diseases Lesotho Association is a health ngo based in Maseru, Lesotho. Rare Diseases Lesotho Association (RDLA) is a non-profit organisation registered in 2017 under Lesotho's Societies Act of 1966, co-founded by Nthabeleng Ramoeli and Seeng Nchai. It helps patients affected by rare diseases access treatment and support care, and builds a community of patients, caregivers, healthcare providers and researchers to improve health and quality of life.
- When was Rare Diseases Lesotho Association founded?
- Rare Diseases Lesotho Association was founded in 2017.
- Where is Rare Diseases Lesotho Association located?
- Headquartered in Maseru, Lesotho.
- Is Rare Diseases Lesotho Association trustworthy?
- Rare Diseases Lesotho Association has a GiveRadar Integrity Assessment of 51 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Rare Diseases Lesotho Association's website?
- https://rarediseaselesotho.wixsite.com/website
- Are donations to Rare Diseases Lesotho Association tax-deductible?
- Donations may be tax-deductible for residents of Lesotho under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.