The Dystonia Society
About
Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research
Focus & reach
Verification & registration
Every mark links to the official registry entry and opens in a new tab.
Integrity assessment
A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. See exactly what we do and do not have →
Financials
Charity Commission (UK)Leadership at a glance
Official filingsSimilar charities
GiveRadar Intelligence
GiveRadar Analysis
GiveRadar's verified records show The Dystonia Society with a substantially complete profile, sourced from the Charity Commission.
- By reported annual revenue, it is larger than 83% of the 9,257 community development charities in the United Kingdom with financial records on GiveRadar. See the filings
- GiveRadar holds 5 years of financial filings for this organization, the most recent for fiscal year 2025. See the filings
- Its integrity score of 86 places it in the top 1% of the 10,748 community development charities in the United Kingdom GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Filing history
5 years on file from Charity Commission (UK): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
Sign up to viewTax deductibility
Whether a gift to The Dystonia Society lowers your own taxes depends on where you pay them. Choose your country to see the rule that applies.
UK donations qualify for Gift Aid. THE DYSTONIA SOCIETY is registered with the Charity Commission. Eligible UK taxpayers can boost their gift by 25% at no extra cost.
THE DYSTONIA SOCIETY is in United Kingdom, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
THE DYSTONIA SOCIETY is registered in United Kingdom. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
This is general guidance, not tax advice. Confirm treatment with the charity or your tax advisor before donating.
Leadership & board
Official filingsBoard members and senior officers on record, with disclosed pay where available.
9 officers and trustees on file, free with a GiveRadar account.
No red flags detected
Timeline
From official filingsKey dates from this charity's official filings, newest first.
In the news
No recent news coverage found
News coverage will appear here when articles mention this organization.
How it stacks up against peers
Compared with 8 similar community development charities in United Kingdom.
Cause areas in United Kingdom
Charities working in each area, this charity's highlighted.
Sources and verification
- Officers and trustees
- Charity Commission for England and Wales - Register of Charities · 9 disclosed in the public registry.
What we know and don't know
Every data point we track for this charity, and whether we have found it. Disclosure only, never a judgment of the charity's work.
Data freshness
How current this profile is, and when we last checked it against the official source.
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
Read full methodologyIf you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email info@giveradar.com with the correct information. We review every request and respond within 30 days.
Frequently asked questions about The Dystonia Society
The Dystonia Society is a registered community development nonprofit based in London, England, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 1997 and has been operating for 29 years. Its registration number is 042127. According to GiveRadar's records, it holds registration with the UK Fundraising Regulator, which means it has committed to the Code of Fundraising Practice and accountable fundraising standards. GiveRadar's Integrity Assessment for the organization is 86/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £422K in annual revenue. 9 officers and directors are publicly disclosed. No red flags have been detected.
Based on official filings, The Dystonia Society has £422K in annual revenue. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research The Dystonia Society is classified as a community development organization registered in United Kingdom. The organization was founded in 1997.
The Dystonia Society is a charitable company limited by guarantee, the most common incorporated form for UK charities. It is registered with both Companies House and the Charity Commission, and must file annual accounts with both regulators. Directors (who are also charity trustees) have limited liability. Its Charity Commission registration number is 042127.
The Dystonia Society's registered charity number is 1062595. You can use it to look up the organization on the Charity Commission register.
The Dystonia Society is located in London, England, United Kingdom. The organization was established in 1997 and has been active for 29 years.
The Dystonia Society is based in London in England. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.
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Quick facts about The Dystonia Society
- What is The Dystonia Society?
- The Dystonia Society is a community development charitable company based in London, United Kingdom. Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research
- When was The Dystonia Society founded?
- The Dystonia Society was founded in 1997.
- Where is The Dystonia Society located?
- Headquartered in London, England, United Kingdom.
- What is The Dystonia Society's annual budget?
- Annual revenue for fiscal year 2025 is £422,337.
- Is The Dystonia Society trustworthy?
- The Dystonia Society has a GiveRadar Integrity Assessment of 86 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is The Dystonia Society's registration number?
- Registration: 042127 (United Kingdom).
- What is The Dystonia Society's website?
- https://www.dystonia.org.uk
- Are donations to The Dystonia Society tax-deductible?
- Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.