The Schinzel-Giedion Syndrome Foundation
About
Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.
Focus & reach
Verification & registration
Every mark links to the official registry entry and opens in a new tab.
Integrity assessment
A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. See exactly what we do and do not have →
Financials
Charity Commission (UK)Leadership at a glance
Official filingsSimilar charities
GiveRadar Intelligence
GiveRadar Analysis
Based on the records currently verified by GiveRadar, The Schinzel-Giedion Syndrome Foundation has a substantially complete profile, sourced from the Charity Commission.
- GiveRadar holds 5 years of financial filings for this organization, the most recent for fiscal year 2025. See the filings
- Its integrity score of 82 places it in the top 10% of the 28,401 health charities in the United Kingdom GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
- government registration
- financial records (5 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Filing history
5 years on file from Charity Commission (UK): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
Sign up to viewTax deductibility
Whether a gift to The Schinzel-Giedion Syndrome Foundation lowers your own taxes depends on where you pay them. Choose your country to see the rule that applies.
UK donations qualify for Gift Aid. THE SCHINZEL-GIEDION SYNDROME FOUNDATION is registered with the Charity Commission. Eligible UK taxpayers can boost their gift by 25% at no extra cost.
THE SCHINZEL-GIEDION SYNDROME FOUNDATION is in United Kingdom, a TGE (Transnational Giving Europe) member country. Dutch donors can route gifts via Stichting Transnational Giving Europe to receive Dutch ANBI-equivalent deductibility, subject to TGE's 5% pass-through fee.
THE SCHINZEL-GIEDION SYNDROME FOUNDATION is registered in United Kingdom. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
This is general guidance, not tax advice. Confirm treatment with the charity or your tax advisor before donating.
Leadership & board
Official filingsBoard members and senior officers on record, with disclosed pay where available.
3 officers and trustees on file, free with a GiveRadar account.
No red flags detected
Timeline
From official filingsKey dates from this charity's official filings, newest first.
In the news
No recent news coverage found
News coverage will appear here when articles mention this organization.
How it stacks up against peers
Compared with 8 similar health charities in United Kingdom.
Cause areas in United Kingdom
Charities working in each area, this charity's highlighted.
Sources and verification
- Officers and trustees
- Charity Commission for England and Wales - Register of Charities · 3 disclosed in the public registry.
What we know and don't know
Every data point we track for this charity, and whether we have found it. Disclosure only, never a judgment of the charity's work.
Data freshness
How current this profile is, and when we last checked it against the official source.
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
Read full methodologyIf you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email info@giveradar.com with the correct information. We review every request and respond within 30 days.
Frequently asked questions about The Schinzel-Giedion Syndrome Foundation
The Schinzel-Giedion Syndrome Foundation is a registered health nonprofit based in Crawley, England, United Kingdom. It is registered with the Charity Commission for England and Wales. It was founded in 2019 and has been operating for 7 years. GiveRadar's Integrity Assessment for the organization is 82/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports £68K in annual revenue. No red flags have been detected.
Based on official filings, The Schinzel-Giedion Syndrome Foundation has £68K in annual revenue. Its revenue is below the peer average of £1M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS. The Schinzel-Giedion Syndrome Foundation is classified as a health organization registered in United Kingdom. The organization was founded in 2019.
The Schinzel-Giedion Syndrome Foundation is a Charitable Incorporated Organisation (CIO), a legal form introduced by the Charities Act 2006 that gives a charity its own legal personality without requiring Companies House registration. CIOs are regulated solely by the Charity Commission and must file annual returns and accounts directly with the Commission.
The Schinzel-Giedion Syndrome Foundation's registered charity number is 1186327. You can use it to look up the organization on the Charity Commission register.
The Schinzel-Giedion Syndrome Foundation is located in Crawley, England, United Kingdom. The organization was established in 2019 and has been active for 7 years.
The Schinzel-Giedion Syndrome Foundation is based in Crawley in England. The Charity Commission for England and Wales (CCEW) is the primary regulator. Scotland has its own regulator (OSCR), and Northern Ireland has the Charity Commission for Northern Ireland (CCNI). A charity registered with the CCEW may operate across the whole of the UK or internationally.
Check any charity before you give
Search 7.9M+ nonprofits across 100+ countries. Free, and no account needed.
Report an issue
Tell us what's wrong with this charity's page. We review every report and typically reply within 2 business days.
Report sent
Thanks for flagging this. Our team will review it.
Press Esc to close
Save The Schinzel-Giedion Syndrome Foun…?Download this profile as a PDFVisit The Schinzel-Giedion Syndrome Foun…'s websiteLog a donation to The Schinzel-Giedion Syndrome Foun…
Create a free GiveRadar account to save charities and track them in your dashboard.Create a free GiveRadar account to download charity profiles as a clean PDF.Create a free GiveRadar account to open charity websites and keep your research in one place.Create a free GiveRadar account to record donations and track your giving over time.
Quick facts about The Schinzel-Giedion Syndrome Foundation
- What is The Schinzel-Giedion Syndrome Foundation?
- The Schinzel-Giedion Syndrome Foundation is a health cio based in Crawley, United Kingdom. Proving support to families caring for a child with SGS, raising awareness of SGS and facilitating and supporting medical research that will help to improve the quality and length of life of children living with SGS.
- When was The Schinzel-Giedion Syndrome Foundation founded?
- The Schinzel-Giedion Syndrome Foundation was founded in 2019.
- Where is The Schinzel-Giedion Syndrome Foundation located?
- Headquartered in Crawley, England, United Kingdom.
- What is The Schinzel-Giedion Syndrome Foundation's annual budget?
- Annual revenue for fiscal year 2025 is £68,345.
- Is The Schinzel-Giedion Syndrome Foundation trustworthy?
- The Schinzel-Giedion Syndrome Foundation has a GiveRadar Integrity Assessment of 82 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is The Schinzel-Giedion Syndrome Foundation's website?
- https://www.sgsfoundation.org
- Are donations to The Schinzel-Giedion Syndrome Foundation tax-deductible?
- Donations may be tax-deductible for residents of United Kingdom under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.