Home Countries Türkiye Health ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği

ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği

Als(amyotrofi̇k Lateral Skleroz)mnh (motor Nöron Hastaliği) Derneği̇

Support network for people living with ALS and motor neuron disease

Türkiye Reg TR-DRN-34-106-166 Health
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42 / 100
Integrity score
Partial transparency

About

Founded in December 2001 in Istanbul by ten volunteer patients and their relatives, ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) supports people affected by ALS and related motor neuron diseases. It holds public-benefit association status in Türkiye. The association connects patients and families with information, community and peer support.

Mission

To support and advocate for people living with ALS and motor neuron diseases in Türkiye.

Founder story

ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) was founded in December 2001 by ten volunteer patients and relatives in Istanbul. It supports people living with ALS and motor neuron diseases and holds public-benefit association status.

ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) was founded in December 2001 by ten volunteer patients and relatives in Istanbul. It supports people living with ALS and motor neuron diseases and holds public-benefit association status.

Focus & reach

Category
Operating in
Türkiye flagTürkiye
Causes
Health
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3Good Health and Well-being SDG 3 · Good Health and Well-being Ensure healthy lives and promote well-being for all at all ages.Browse all SDG 3 charities →

Verification & registration

Every mark links to the official registry entry and opens in a new tab.

Official registry
Government register · TR-DRN-34-106-166
On record

Integrity assessment

A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. See exactly what we do and do not have →

Registration 8/20
Self-reported registration ID +4
Not sourced from official registry 0
Cross-referenced (2+ sources) +4
Profile not yet claimed by organization 0
Financial Transparency 6/30
Financial documents published on website +6
No financial filing on record 0
No revenue figure disclosed 0
No spending figure disclosed 0
No detailed financial breakdown disclosed 0
Governance 16/20
At least 1 officer disclosed +5
3+ officers disclosed +3
Officer titles disclosed +2
Executive compensation not disclosed 0
Mission / description on file +3
Founding date on file +3
Contact Availability 3/10
Website +3
No email on file 0
No phone on file 0
No physical address on file 0
Data Recency 20/20
Updated within 6 months +20
Red flags 0
No red flags detected, so nothing is deducted 0

Leadership at a glance

From the charity
AL
Alper İ••••••••
Yönetim Kurulu Başkanı (Board Chairman)
AY
Aydın Ç••••••••
2. Başkan Yardımcısı (2nd Vice Chairman)
AY
Ayşen G••••••••
1. Başkan Yardımcısı (1st Vice Chairman)
BI
Birsen P••••••••
Üye (Member)

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GiveRadarGiveRadar Intelligence

GiveRadar Analysis

GiveRadar's verified records show ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği with a partial profile.

  • GiveRadar holds a more complete profile for this organization than for 86% of the 101 health charities in Türkiye it tracks, because GiveRadar has verified its governance. Most of those have little verified data on record yet. View this cohort
  • It has more complete governance disclosure than nearly all similar organizations, because GiveRadar has verified leadership, a mission statement and a founding date. See national comparisons
  • GiveRadar has not yet verified financial records for this organization, nor for any health charities in Türkiye - a gap in GiveRadar's dataset for the region, not a feature of this charity. Explore Türkiye data
GiveRadar has verified
  • government registration
  • disclosed leadership
  • a website
  • a donation page

Analysis based on GiveRadar's benchmark dataset of 2026-09-07. It describes what GiveRadar has verified, not a judgment of the organization itself.

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Tax deductibility

Whether a gift to ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği lowers your own taxes depends on where you pay them. Choose your country to see the rule that applies.

Sometimes deductible

Donations may be tax-deductible for residents of Türkiye under local rules. Confirm with the charity directly.

This is general guidance, not tax advice. Confirm treatment with the charity or your tax advisor before donating.

Leadership & board

From the charity

Board members and senior officers on record, with disclosed pay where available.

See full names, roles, and stories

10 officers and trustees on file, free with a GiveRadar account.

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No red flags detected

Screened for the risks donors care about.
Charity registration status None found
Open investigations None found
Governance scandals None found
Related-party deals None found
Excessive exec comp None found

In the news

From public news

No recent news coverage found

News coverage will appear here when articles mention this organization.

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Where it ranks

#6 of 101 health charities in Türkiye on integrity score

42/100 puts it in the top 6% of the cohort, tied with 8 others. Positions are competition ranks: ties share a position. Cohorts are the tightest local peer set with at least 30 comparable organizations; a metric is left out where the cohort is too small or nearly uniform.

Integrity score42/100
#6 of 101 tie
health charities in Türkiye
Governance disclosure3/5
#1 of 101 tie
health charities in Türkiye
Contact completeness3/10
#20 of 101 tie
health charities in Türkiye
Profile completeness40%
#3 of 101 tie
health charities in Türkiye
Independent sources4 sources
#40 of 101 tie
health charities in Türkiye
Agefounded 2001
#39 of 41
health charities in Türkiye

Bars show the share of the cohort this charity outranks. Ranks describe how much is publicly disclosed, not how good the charity is.

How it stacks up against peers

Compared with 8 similar health charities in Türkiye.

Integrity Assessment Behind peer average
This charity
42 Peer average
43

Cause areas in Türkiye

Charities working in each area, this charity's highlighted.

Health
101
Human Services
89
Education
39
Advocacy & Civil Rights
32
Arts & Culture
32
Community Development
23
Science & Technology
17
Religion
10
See all cause areas

Sources and verification

News and media coverage
GDELT Project + Google News

What we know and don't know

Every data point we track for this charity, and whether we have found it. Disclosure only, never a judgment of the charity's work.

Named leadership
Government registration
Mission statement
Official website
Founding date
Financial data
Executive pay
Programs & activities
Headquarters address
Direct contact
Tax-deductibility

Data freshness

How current this profile is, and when we last checked it against the official source.

Last updated
July 11, 2026
Profile edits and newly added data
Profile completeness
35%
Data points we track that are filled in

Methodology

GiveRadar builds each profile from official charity directories and public registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.

Read full methodology
Are you the owner or a board member?

If you represent this organization and want to correct or update its data, you can claim this listing to edit details yourself, or email info@giveradar.com with the correct information. We review every request and respond within 30 days.

Part of this profile's description was written with AI, summarizing public sources such as official registry data and the organization's own website. Financial figures, registration details, and the sources listed above are not AI-generated. Read how we use AI.

FAQ

Frequently asked questions about ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği

ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is a health nonprofit in Türkiye. GiveRadar lists it from public charity directories and does not hold an official government registration record for it. It was founded in 2001 and has been operating for 25 years. Its registration number is TR-DRN-34-106-166. GiveRadar's Integrity Assessment for the organization is 42/100, which reflects how much public information is available, not whether the charity is legitimate. 10 officers and directors are publicly disclosed.

Founded in December 2001 in Istanbul by ten volunteer patients and their relatives, ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) supports people affected by ALS and related motor neuron diseases. It holds public-benefit association status in Türkiye. The association connects patients and families with information, community and peer support. ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is a health organization based in Türkiye. The organization was founded in 2001.

ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is classified as a Health organization, based in Türkiye. It operates as a Kamu Yararına Dernek. The organization has 10 disclosed officers and directors.

ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is based in Türkiye. The organization was established in 2001 and has been active for 25 years.

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Quick facts about ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği

What is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği?
ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği is a health kamu yararına dernek, Türkiye. Founded in December 2001 in Istanbul by ten volunteer patients and their relatives, ALS-MNH Dernegi (Amyotrophic Lateral Sclerosis and Motor Neuron Disease Association) supports people affected by ALS and related motor neuron diseases. It holds public-benefit association status in Türkiye. The association connects patients and families with information, community and peer support.
When was ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği founded?
ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği was founded in 2001.
Where is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği located?
Headquartered in Türkiye.
Is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği trustworthy?
ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği has a GiveRadar Integrity Assessment of 42 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği's registration number?
Registration: TR-DRN-34-106-166 (Türkiye).
What is ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği's website?
https://als.org.tr
Are donations to ALS(Amyotrofik Lateral Skleroz)MNH (Motor Nöron Hastalığı) Derneği tax-deductible?
Donations may be tax-deductible for residents of Türkiye under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.