Fibromuscular Dysplasia Society of America Inc
FMDSA is a public healthcare related charity working towards better diagnosis and treatments for Fibromuscular Dysplasia (FMD). The organization is engaged in funding and facilitating research, physician education …
Fibromuscular Dysplasia Society Of
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Patient Registry: In 2007, the Fibromuscular Dysplasia Society of America (FMDSA) began a data registry with the goal of increasing understanding of FMD. The goals of this registry are to identify patient characteristics associated with FMD, potential markers of the disease, and commonly used imaging and treatment modalities. The Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the registry. We ended the year with over 4,172 participants in the registry and two new centers joined the registry in 2023 for a total of 20 active registry centers. Researchers have identified genetic variants that are associated with FMD. The genes PHARCTR1, ATP281, LRP1, and LIMA1. In 2022, Ottowa Hospital in Ontario Canada became our first international center …
Verified certifications
Confirmed against the issuing authority - not self-reported.
Mission
FMDSA is a public healthcare related charity working towards better diagnosis and treatments for Fibromuscular Dysplasia (FMD). The organization is engaged in funding and facilitating research, physician education and support, building awareness of FMD within the medical community and patient communities, providing patient support, and in patient education programs.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in United StatesConcerns
· None foundWhere every $1 goes
· FY2024 · IRS 990 (FY2025)GiveRadar Analysis
Original analysis from GiveRadar's dataset of comparable organizations
From what GiveRadar has verified so far, Fibromuscular Dysplasia Society of America Inc has a complete profile, cross-referenced across 3 independent sources including the IRS.
- GiveRadar holds 6 years of financial filings for this organization, the most recent for fiscal year 2025 - a deeper filing history than 91% of the 51,422 health charities in the United States with filings on record. See the filings
- It has more complete contact information than nearly all similar organizations, with a verified website, email, phone and address on record. See national comparisons
- Its integrity score of 86 places it in the top 2% of the 98,862 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its registration. View this cohort
- government registration
- financial records (6 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
- an owner-submitted profile claim
Analysis based on GiveRadar's benchmark dataset of 2026-07-03. It describes what GiveRadar has verified, not a judgment of the organization itself.
Common questions
· Auto-generated from filings + methodologyFibromuscular Dysplasia Society of America Inc is a registered health nonprofit based in North Olmsted, OH, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2003 and has been operating for 23 years. Its EIN is 010771966. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 86/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $159K in annual revenue. 38 officers and directors are publicly disclosed. No red flags have been detected.
Fibromuscular Dysplasia Society of America Inc's EIN (Employer Identification Number) is 010771966. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
Fibromuscular Dysplasia Society of America Inc has a GiveRadar Integrity Assessment of 86/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 86 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for health charities in United States is 90/100.
Fibromuscular Dysplasia Society of America Inc is located in North Olmsted, OH, United States. The organization was established in 2003 and has been active for 23 years.
Based on official tax filings, Fibromuscular Dysplasia Society of America Inc has $159K in annual revenue. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Fibromuscular Dysplasia Society of America Inc is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $159K in annual revenue. The organization has 38 disclosed officers and directors.
No red flags have been detected for Fibromuscular Dysplasia Society of America Inc. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.
According to GiveRadar's records, Fibromuscular Dysplasia Society of America Inc holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. It is registered with the Internal Revenue Service (IRS). You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research and does not endorse any organization. A GiveRadar Integrity Assessment reflects how much public data is available, not whether an organization is safe to donate to, so it is always smart to do your own research before giving.
Patient Registry: In 2007, the Fibromuscular Dysplasia Society of America (FMDSA) began a data registry with the goal of increasing understanding of FMD. The goals of this registry are to identify patient characteristics associated with FMD, potential markers of the disease, and commonly used imaging and treatment modalities. The Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the registry. We ended the year with over 4,172 participants in the registry and two new centers joined the registry in 2023 for a total of 20 active registry centers. Researchers have identified genetic variants that are associated with FMD. The genes PHARCTR1, ATP281, LRP1, and LIMA1. In 2022... Fibromuscular Dysplasia Society of America Inc is classified as a health organization registered in United States. The organization was founded in 2003.
Among health charities registered in United States: Its annual revenue of $159K is below the peer average of $41M.
Yes, donations to Fibromuscular Dysplasia Society of America Inc are generally tax-deductible in the United States. Fibromuscular Dysplasia Society of America Inc is a 501(c)(3) tax-exempt organization. Its EIN is 010771966, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.
Filing history
6 years on file from IRS 990 (FY2025): revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.
FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Always confirm tax treatment with the charity directly or your tax advisor before donating.
Staff & volunteers
From filings and published profiles
Leadership
From FY2025 filing
Officers & trustees (11)
Source: Public filings
11 officers and trustees on file - free with a GiveRadar account.
Latest news
From global news sources
No recent news coverage found
News coverage will appear here when articles mention this organization.
Activity timeline
Filings and press mentions, merged
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Sources and verification
- Registration and legal identity
- Internal Revenue Service (IRS) - Tax Exempt Organization Search
- Financial filings
- IRS Form 990 filings - Fiscal year 2025 most recent on file.
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search - 38 disclosed in the public registry.
- Supplementary verification
- Charity Navigator
Data freshness
What we know and don't know
Exactly which public data we hold on this charity. Our score reflects transparency, not impact.
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Financial data · FY2025 on record
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Named leadership · 38 officers on file
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Government registration · Registered with an official registry
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Mission statement · Published
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Official website · On record
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Headquarters address · On file
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Direct contact · Email or phone published
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Tax-deductibility · Verified
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Founding date · 2003
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Executive payTop-officer pay not disclosed
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Programs & activitiesNo named programs listed by the charity
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Quick facts about Fibromuscular Dysplasia Society of America Inc
- What is Fibromuscular Dysplasia Society of America Inc?
- Fibromuscular Dysplasia Society of America Inc is a health publicly-supported charity (509(a)(2)) based in North Olmsted, United States. Patient Registry: In 2007, the Fibromuscular Dysplasia Society of America (FMDSA) began a data registry with the goal of increasing understanding of FMD. The goals of this registry are to identify patient characteristics associated with FMD, potential markers of the disease, and commonly used imaging and treatment modalities. The Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the registry. We ended the year with over 4,172 participants in the registry and two new centers joined the registry in 2023 for a total of 20 active registry centers. Researchers have identified genetic variants that are associated with FMD. The genes PHARCTR1, ATP281, LRP1, and LIMA1. In 2022, Ottowa Hospital in Ontario Canada became our first international center and for this reason the name of the registry was changed to "The North American Registry for Fibromuscular Dysplasia". Patient Support: Patient support is a large program, due to the increase in patients diagnosedwith FMD. Due to the demand, we have continued to grow the Volunteer Support Network. These volunteers have been identified in the US and internationally. Many groups have evolved to the point of holding local meetings. We also offer support through social media platforms including Inspire, Instagram and Facebook where we have thousands of patients participating. We are also active on Twitter allowing patients, clinicians and physicians to communicate. We continue to add FMD materials and videos to our website and YouTube channel We offer FMD materials in Spanish and Japanese and work with our international colleagues who offer materials in many languages. Finally, FMDSA continue to host and participate in patient Zoom meetings. Patients globally are invited to participate. Public Awareness Program: This program was initiated in July 2005 as a Grass Roots Awareness Program. We help patients educate their family, friends and healthcare providers about FMD with written materials and
- When was Fibromuscular Dysplasia Society of America Inc founded?
- Fibromuscular Dysplasia Society of America Inc was founded in 2003.
- Who leads Fibromuscular Dysplasia Society of America Inc?
- Kay Tanner serves as President.
- Where is Fibromuscular Dysplasia Society of America Inc located?
- Headquartered in North Olmsted, OH, United States.
- What is Fibromuscular Dysplasia Society of America Inc's annual budget?
- Annual revenue for fiscal year 2025 is approximately $100K-$1M.
- Is Fibromuscular Dysplasia Society of America Inc trustworthy?
- Fibromuscular Dysplasia Society of America Inc has a GiveRadar Integrity Assessment of 86 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Fibromuscular Dysplasia Society of America Inc's registration number?
- IRS EIN: 010771966.
- What is Fibromuscular Dysplasia Society of America Inc's website?
- http://www.fmdsa.org