Fibromuscular Dysplasia Society of America Inc
Fibromuscular Dysplasia Society Of
About
Patient Registry: In 2007, the Fibromuscular Dysplasia Society of America (FMDSA) began a data registry with the goal of increasing understanding of FMD. The goals of this registry are to identify patient characteristics associated with FMD, potential markers of the disease, and commonly used imaging and treatment modalities. The Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the registry. We ended the year with over 4,172 participants in the registry and two new centers joined the registry in 2023 for a total of 20 active registry centers. Researchers have identified genetic variants that are associated with FMD. The genes PHARCTR1, ATP281, LRP1, and LIMA1. In 2022, Ottowa Hospital in Ontario Canada became our first international center …
FMDSA is a public healthcare related charity working towards better diagnosis and treatments for Fibromuscular Dysplasia (FMD). The organization is engaged in funding and facilitating research, physician education and support, building awareness of FMD within the medical community and patient communities, providing patient support, and in patient education programs.
Focus & reach
Verification & registration
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Integrity assessment
A score from 0 to 100 for how openly a charity shares public information across five areas: registration, financial disclosure, governance, contact details, and data recency. It does not measure programme impact. See exactly what we do and do not have →
Financials
IRS Form 990Leadership at a glance
Official filings
GiveRadar Intelligence
GiveRadar Analysis
From what GiveRadar has verified so far, Fibromuscular Dysplasia Society of America Inc has a complete profile, cross-referenced across 4 independent sources including the IRS.
- GiveRadar holds 6 years of financial filings for this organization, the most recent for fiscal year 2025 - a deeper filing history than 91% of the 51,422 health charities in the United States with filings on record. See the filings
- GiveRadar has cross-referenced this organization across 4 independent sources, led by the IRS - more than 82% of similar organizations. See the sources
- Its integrity score of 86 places it in the top 2% of the 98,864 health charities in the United States GiveRadar tracks, because GiveRadar has verified its financial disclosures and its governance. View this cohort
- government registration
- financial records (6 filed years)
- disclosed leadership
- a website
- a contact email
- a donation page
Analysis based on GiveRadar's benchmark dataset of 2026-10-12. It describes what GiveRadar has verified, not a judgment of the organization itself.
Filing history
6 years on file from IRS Form 990: revenue, expenses, program spending, assets, and liabilities by fiscal year.
See 5 years of revenue, expense breakdowns, and balance sheet.
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Fibromuscular Dysplasia Society of America Inc is registered in United States. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
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Staff & volunteers
Leadership & board
Official filingsBoard members and senior officers on record, with disclosed pay where available.
11 officers and trustees on file, free with a GiveRadar account.
No red flags detected
Timeline
From official filingsKey dates from this charity's official filings, newest first.
In the news
No recent news coverage found
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#2,245 of 98,864 health charities in the United States on integrity score
86/100 puts it in the top 3% of the cohort, tied with 805 others. Positions are competition ranks: ties share a position. Cohorts are the tightest local peer set with at least 30 comparable organizations; a metric is left out where the cohort is too small or nearly uniform.
Bars show the share of the cohort this charity outranks. Ranks describe how much is publicly disclosed, not how good the charity is.
How it stacks up against peers
Compared with 8 similar health charities in United States.
Cause areas in United States
Charities working in each area, this charity's highlighted.
Sources and verification
- Officers and trustees
- Internal Revenue Service (IRS) - Tax Exempt Organization Search · 38 disclosed in the public registry.
What we know and don't know
Every data point we track for this charity, and whether we have found it. Disclosure only, never a judgment of the charity's work.
Data freshness
How current this profile is, and when we last checked it against the official source.
Methodology
GiveRadar builds each profile primarily from official government charity registries, supplemented where available by third-party nonprofit databases and news archives, and combines it into a single 0-100 integrity assessment. The exact sources for this charity are listed above. We don't take a cut of any donation, ever.
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Frequently asked questions about Fibromuscular Dysplasia Society of America Inc
Fibromuscular Dysplasia Society of America Inc is a registered health nonprofit based in North Olmsted, OH, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 2003 and has been operating for 23 years. Its EIN is 010771966. According to GiveRadar's records, it holds active tax-deductible status on the IRS Publication 78 list, which means donations are tax-deductible and the organization is in good standing with the IRS. GiveRadar's Integrity Assessment for the organization is 86/100, which reflects how much public information is available, not whether the charity is legitimate. The organization reports $159K in annual revenue. 38 officers and directors are publicly disclosed. No red flags have been detected.
Based on official filings, Fibromuscular Dysplasia Society of America Inc has $159K in annual revenue. Its revenue is below the peer average of $41M. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.
Patient Registry: In 2007, the Fibromuscular Dysplasia Society of America (FMDSA) began a data registry with the goal of increasing understanding of FMD. The goals of this registry are to identify patient characteristics associated with FMD, potential markers of the disease, and commonly used imaging and treatment modalities. The Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the registry. We ended the year with over 4,172 participants in the registry and two new centers joined the registry in 2023 for a total of 20 active registry centers. Researchers have identified genetic variants that are associated with FMD. The genes PHARCTR1, ATP281, LRP1, and LIMA1. In 2022... Fibromuscular Dysplasia Society of America Inc is classified as a health organization registered in United States. The organization was founded in 2003.
Fibromuscular Dysplasia Society of America Inc is classified as a Health organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a small organization. It has $159K in annual revenue. The organization has 38 disclosed officers and directors.
Fibromuscular Dysplasia Society of America Inc's EIN (Employer Identification Number) is 010771966. This is the organization's IRS tax identification number; you can use it to verify tax-exempt status and to look up its Form 990 filings with the IRS.
Fibromuscular Dysplasia Society of America Inc is located in North Olmsted, OH, United States. The organization was established in 2003 and has been active for 23 years.
Among health charities registered in United States: Its annual revenue of $159K is below the peer average of $41M.
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Quick facts about Fibromuscular Dysplasia Society of America Inc
- What is Fibromuscular Dysplasia Society of America Inc?
- Fibromuscular Dysplasia Society of America Inc is a health publicly-supported charity (509(a)(2)) based in North Olmsted, United States. Patient Registry: In 2007, the Fibromuscular Dysplasia Society of America (FMDSA) began a data registry with the goal of increasing understanding of FMD. The goals of this registry are to identify patient characteristics associated with FMD, potential markers of the disease, and commonly used imaging and treatment modalities. The Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the registry. We ended the year with over 4,172 participants in the registry and two new centers joined the registry in 2023 for a total of 20 active registry centers. Researchers have identified genetic variants that are associated with FMD. The genes PHARCTR1, ATP281, LRP1, and LIMA1. In 2022, Ottowa Hospital in Ontario Canada became our first international center and for this reason the name of the registry was changed to "The North American Registry for Fibromuscular Dysplasia". Patient Support: Patient support is a large program, due to the increase in patients diagnosedwith FMD. Due to the demand, we have continued to grow the Volunteer Support Network. These volunteers have been identified in the US and internationally. Many groups have evolved to the point of holding local meetings. We also offer support through social media platforms including Inspire, Instagram and Facebook where we have thousands of patients participating. We are also active on Twitter allowing patients, clinicians and physicians to communicate. We continue to add FMD materials and videos to our website and YouTube channel We offer FMD materials in Spanish and Japanese and work with our international colleagues who offer materials in many languages. Finally, FMDSA continue to host and participate in patient Zoom meetings. Patients globally are invited to participate. Public Awareness Program: This program was initiated in July 2005 as a Grass Roots Awareness Program. We help patients educate their family, friends and healthcare providers about FMD with written materials and
- When was Fibromuscular Dysplasia Society of America Inc founded?
- Fibromuscular Dysplasia Society of America Inc was founded in 2003.
- Who leads Fibromuscular Dysplasia Society of America Inc?
- Kay Tanner serves as President.
- Where is Fibromuscular Dysplasia Society of America Inc located?
- Headquartered in North Olmsted, OH, United States.
- What is Fibromuscular Dysplasia Society of America Inc's annual budget?
- Annual revenue for fiscal year 2025 is $158,513.
- Is Fibromuscular Dysplasia Society of America Inc trustworthy?
- Fibromuscular Dysplasia Society of America Inc has a GiveRadar Integrity Assessment of 86 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Fibromuscular Dysplasia Society of America Inc's registration number?
- IRS EIN: 010771966.
- What is Fibromuscular Dysplasia Society of America Inc's website?
- http://www.fmdsa.org